title: Un/Paid Labor: Medicaid Home and Community Based Services Waivers That Pay Family as Personal Care Providers.
abstract: The United States long-term services and supports system is built on largely unpaid (informal) labor. There are a number of benefits to allowing family caregivers to serve as paid personal care providers including better health and satisfaction outcomes, expanded workforces, and cost effectiveness. The purpose of this study was to examine how Medicaid HCBS Section 1915(c) waivers for people with intellectual and developmental disabilities allocate personal care services to pay family caregivers. Our analysis revealed about two thirds of waivers in fiscal year (FY) 2014 allowed for family caregivers to potentially be paid for personal care services. This amounted to up to $2.71 billion of projected spending, which is slightly more than half of all personal care service expenditures in FY 2014.
authors: Carli Friedman, University of Illinois at Chicago, USA; and Mary C. Rizzolo, The Council on Quality and Leadership (CQL), USA.
authors: Carli
authors: C
authors: Friedman
authors: Carli Friedman, University of Illinois at Chicago, USA; and Mary C. Rizzolo, The Council on Quality and Leadership (CQL), USA.
authors: Mary C
authors: MC
authors: Rizzolo
mesh_terms: D017028:Caregivers / Q000191:economics*; D003153:Community Health Services / Q000191:economics*; D004651:Employment; D017048:Health Care Costs; D005102:Health Expenditures; D006699:Home Care Services / Q000191:economics*; D006801:Humans; D007182:Income; D008607:Intellectual Disability / Q000191:economics*; D008484:Medicaid; D014481:United States
keywords: Medicaid Home and Community Based Services; Personal care; caregiving; intellectual and developmental disabilities