title: Short-term family-centered workshop for children with developmental delays enhances family functioning and satisfaction: A prospective clinical trial.
abstract: We investigated the clinical efficacy on family functioning and parental satisfaction of a short-term family-centered workshop for children with developmental delays.A total of 32 children with developmental delays and their parents participated in 2-hour weekly group therapy sessions over 6 weeks. The workshop was conducted by rehabilitation professionals and teachers using a family-centered multidisciplinary approach. Both before and after the 6-week workshop, the parents were administered the Pediatric Quality of Life Inventory (PedsQL) Family Impact Module, the PedsQL Healthcare Satisfaction Module, the Hospital Anxiety and Depression Scale, and the World Health Organization Quality of Life brief assessment instrument. Overall satisfaction with the workshop was also evaluated.Significant improvements were noted in physical aspect (P = 0.03), communication (P = 0.002), and daily activities (P = 0.04) in the PedsQL Family Impact Module, and in communication (P = 0.03) and technical skills (P = 0.05) in the PedsQL Healthcare Satisfaction Module. Overall satisfaction with the workshop was rated as very high. There was no significant effect on psychological distress or quality of life.Short-term family-centered workshops for children with developmental delays improved family functioning and the parental perception of satisfaction, including health care satisfaction.
authors: Department of Physical Medicine and Rehabilitation, Shin Kong Wu Ho-Su Memorial Hospital Department of Physical Medicine and Rehabilitation, School of Medicine, College of Medicine, Taipei Medical University Department of Child Care and Education and Research Center for Industry of Human Ecology, College of Human Ecology, Chang Gung University of Science and Technology Institute of Epidemiology and Preventive Medicine, College of Public Health, National Taiwan University, Taipei, Taiwan.
authors: Ru-Lan
authors: RL
authors: Hsieh
authors: Wen-Huei
authors: WH
authors: Hsieh
authors: Wen-Chung
authors: WC
authors: Lee
mesh_terms: D000328:Adult; D002675:Child, Preschool; D002658:Developmental Disabilities / Q000175:diagnosis / Q000628:therapy*; D004493:Education; D005195:Family Relations / Q000523:psychology*; D005260:Female; D006784:Hospitals, Teaching; D006801:Humans; D007223:Infant; D008297:Male; D010290:Parents / Q000193:education*; D010353:Patient Education as Topic / Q000379:methods; D018802:Patient-Centered Care / Q000458:organization & administration; D011446:Prospective Studies; D011788:Quality of Life; D011795:Surveys and Questionnaires; D013624:Taiwan; D013997:Time Factors; D016896:Treatment Outcome