title: [Recommendation for the collection and analysis of data on participation and disability from the perspective of the World Health Organization].
abstract: BACKGROUND
  The Convention on the Rights of Persons with Disabilities (UNCRPD) demands actions to improve participation of people with disability and to remove barriers that hinder participation in society on an equal basis with others. Policymaking in this area requires reliable and detailed data on all aspects of disability. Up to now, there has been no standardized tool for collecting data on disability and participation in the general population. In November 2011, WHO, in collaboration with the World Bank, started the development of the Model Disability Survey (MDS). The MDS addresses WHO's conceptualization of disability as an outcome of interactions between a person with a health condition and contextual factors.
  
  
  OBJECTIVE
  Presentation of the development and implementation of the MDS and the guidelines for standardized data analysis.
  
  
  METHODS
  The development of the MDS was performed in three phases: (1) situation analysis and drafting an alpha version, (2) testing and piloting the alpha version and (3) implementation.
  
  
  RESULTS
  The MDS is consequently designed as a survey for the general population without using filters. It has a modular structure and consists of two parts (household questionnaire and individual questionnaire with eight modules). This format allows for its use as a stand alone survey as well as its integration in other (national) surveys. The MDS has been cognitive tested, piloted and implemented in several countries.
  
  
  CONCLUSIONS
  The MDS is the first general population survey that provides standardized, detailed and nuanced information on disability and participation of the general population to monitor the implementation of the UNCRPD.
authors: Institut für Medizinische Informationsverarbeitung, Biometrie und Epidemiologie - IBE, Lehrstuhl für Public Health und Versorgungsforschung, Forschungseinheit für Biopsychosoziale Gesundheit, Ludwig-Maximilians-Universität (LMU) München, Marchioninistraße 17, 81377, München, Deutschland. michaela.coenen@med.lmu.de.
authors: Michaela
authors: M
authors: Coenen
authors: Institut für Medizinische Informationsverarbeitung, Biometrie und Epidemiologie - IBE, Lehrstuhl für Public Health und Versorgungsforschung, Forschungseinheit für Biopsychosoziale Gesundheit, Ludwig-Maximilians-Universität (LMU) München, Marchioninistraße 17, 81377, München, Deutschland.
authors: Carla
authors: C
authors: Sabariego
authors: Disability and Rehabilitation, World Health Organization, Genf, Schweiz.
authors: Alarcos
authors: A
authors: Cieza
mesh_terms: D057225:Data Mining / Q000592:standards*; D004185:Disability Evaluation; D006233:Persons with Disabilities / Q000523:psychology / Q000534:rehabilitation* / Q000706:statistics & numerical data*; D005858:Germany; D006302:Health Services Research / Q000592:standards*; D006801:Humans; D038622:Internationality; D011159:Population Surveillance / Q000379:methods; D017410:Practice Guidelines as Topic; D012934:Social Isolation / Q000523:psychology; D062487:Social Marginalization / Q000523:psychology; D058992:Social Participation / Q000523:psychology*
keywords: Disability; International Classification of Functioning, Disability and Health; Model Disability Survey; Participation