title: "I Have to Push Him with a Wheelbarrow to the Clinic": Community Health Workers' Roles, Needs, and Strategies to Improve HIV Care in Rural South Africa.
abstract: With a 19.2% HIV prevalence, South Africa has the largest HIV/AIDS epidemic worldwide. Despite a recent scale-up of public sector HIV resources, including community-based programs to expand HIV care, suboptimal rates of antiretroviral therapy (ART) initiation and adherence persist. As community stakeholders with basic healthcare training, community health workers (CHWs) are uniquely positioned to provide healthcare and insight into potential strategies to improve HIV treatment outcomes. The study goal was to qualitatively explore the self-perceived role of the CHW, unmet CHW needs, and strategies to improve HIV care in rural KwaZulu-Natal, South Africa. Focus groups were conducted in May-August 2014, with 21 CHWs working in Msinga subdistrict. Interviews were audio-recorded, transcribed, and translated from Zulu into English. A hybrid deductive and inductive analytical method borrowed from grounded theory was applied to identify emergent themes. CHWs felt they substantially contributed to HIV care provision but were inadequately supported by the healthcare system. CHWs' recommendations included: (1) sufficiently equipping CHWs to provide education, counseling, social support, routine antiretroviral medication, and basic emergency care, (2) modifying clinical practice to provide less stigmatizing, more patient-centered care, (3) collaborating with traditional healers and church leaders to reduce competition with ART and provide more holistic care, and (4) offsetting socioeconomic barriers to HIV care. In conclusion, CHWs can serve as resources when designing and implementing interventions to improve HIV care. As HIV/AIDS policy and practice evolves in South Africa, it will be important to recognize and formally expand CHWs' roles supporting the healthcare system.
authors: 1 Yale AIDS Program, Yale University School of Medicine , New Haven, Connecticut.|2 Department of Epidemiology of Microbial Diseases, Yale University School of Public Health , New Haven, Connecticut.
authors: Kelsey B
authors: KB
authors: Loeliger
authors: 2 Department of Epidemiology of Microbial Diseases, Yale University School of Public Health , New Haven, Connecticut.
authors: Linda M
authors: LM
authors: Niccolai
authors: 3 Philanjalo NGO , Tugela Ferry, South Africa .
authors: Lillian N
authors: LN
authors: Mtungwa
authors: 3 Philanjalo NGO , Tugela Ferry, South Africa .
authors: Anthony
authors: A
authors: Moll
authors: 1 Yale AIDS Program, Yale University School of Medicine , New Haven, Connecticut.
authors: Sheela V
authors: SV
authors: Shenoi
mesh_terms: D000554:Ambulatory Care Facilities; D003150:Community Health Workers / Q000523:psychology*; D003695:Delivery of Health Care; D005260:Female; D017144:Focus Groups; D015658:HIV Infections / Q000523:psychology / Q000628:therapy*; D006801:Humans; D008297:Male; D018802:Patient-Centered Care; D036301:Qualitative Research; D012424:Rural Population; D012649:Self Concept; D013019:South Africa / Q000453:epidemiology