title: Patient-reported and proxy-reported outcome measures for the assessment of health-related quality of life among patients receiving enteral feeding: a systematic review protocol.
abstract: The objective is to systematically review the psychometric properties and the clinical utility of patient-reported outcome measures (PROMs) and proxy-reported outcome measures that assess health-related quality of life (HRQoL) among patients receiving enteral feeding to make recommendations for use in clinical practice and research. The purpose of this systematic review is to evaluate the psychometric properties and the clinical utility of:The research question is: What are the psychometric properties and the clinical utility of these measures? We will summarize evidence on the following properties: validity (content validity, criterion-related validity, construct validity, floor and ceiling effects), reliability (reproducibility and internal consistency) and responsiveness and clinical utility (interpretability and feasibility to complete the PROM and the proxy-reported outcome measure).
authors.affiliation: 1Department Paramedical Professions, VIVES University College, Bruges, Belgium 2Department Speech-Language Pathology, AZ Delta, Menen, Belgium 3University of Antwerp, Antwerp, Belgium 4Department of Experimental Psychology, KU Leuven, Leuven, Belgium 5Belgian Interuniversity Collaboration for Evidence-based Practice (BICEP): an Affiliate Center of the Joanna Briggs Institute 6Belgian Center for Evidence-Based Medicine (CEBAM): an Affiliate Center of the Joanna Briggs Institute 7Centre for Research and Innovation in Care (CRIC), University of Antwerp, Antwerp, Belgium 8Department of Otolaryngology and Rehabilitation Centre for Communication Disorders, Antwerp University Hospital, Antwerp, Belgium 9Department of Translational Neurosciences, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium 10Department of Speech, Language and Hearing Sciences, Faculty of Medicine and Health Sciences, Ghent University, Ghent, Belgium.
authors.forename: Ingeborg
authors.initials: I
authors.lastname: Simpelaere
authors.forename: Anne
authors.initials: A
authors.lastname: White
authors.forename: Geertruida E
authors.initials: GE
authors.lastname: Bekkering
authors.forename: Bart
authors.initials: B
authors.lastname: Geurden
authors.forename: Gwen
authors.initials: G
authors.lastname: Van Nuffelen
authors.forename: Marc
authors.initials: M
authors.lastname: De Bodt
mesh_terms: D004750:Enteral Nutrition; D006801:Humans; D017063:Outcome Assessment, Health Care; D011594:Psychometrics; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D000078202:Systematic Reviews as Topic