title: School Performance and Disease Interference in Adolescents with Sickle Cell Disease.
abstract: Sickle cell disease (SCD) results in neuropsychological complications that place adolescents at higher risk for limited educational achievement. A first step to developing effective educational interventions is to understand the impact of SCD on school performance. The current study assessed perceptions of school performance, SCD interference and acceptability of educational support strategies in adolescents with SCD. To identify potential risk factors, the relationship between school performance, SCD interference and demographics were also examined. Thirty adolescents aged 12 to 20 completed demographics and SCD school performance questionnaires. Approximately 37% of participants reported receiving special education services, but more than 60% reported that SCD interfered with their school performance. Females reported that SCD impacted their schooling more than males (X2(1,N= 30) = 5.00,p< .05). Study findings provide important insights into demographic risk factors and support the need for individualized health and educational plans for adolescents with SCD.
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Lori E
authors.initials: LE
authors.lastname: Crosby
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Naomi E
authors.initials: NE
authors.lastname: Joffe
authors.affiliation: Nationwide Children's Hospital.
authors.forename: Mary Kay
authors.initials: MK
authors.lastname: Irwin
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Heather
authors.initials: H
authors.lastname: Strong
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: James
authors.initials: J
authors.lastname: Peugh
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Lisa
authors.initials: L
authors.lastname: Shook
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Karen A
authors.initials: KA
authors.lastname: Kalinyak
authors.affiliation: Cincinnati Children's Hospital Medical Center & University of Cincinnati College of Medicine.
authors.forename: Monica J
authors.initials: MJ
authors.lastname: Mitchell
keywords: adolescent health; chronic disease; health disabilities; school performance