title: Development and feasibility of an evidence-informed self-management education program in pediatric concussion rehabilitation.
abstract: Concussion is a considerable public health problem in youth. However, identifying, understanding and implementing best evidence informed recovery guidelines may be challenging for families given the vast amount of information available in the public domains (e.g. Internet). The objective of this study was to develop, implement and evaluate the feasibility of an evidence-informed self-management education program for concussion recovery in youth.
  
  
  
  Synthesis of best evidence, principles of knowledge translation and exchange, and expert opinion were integrated within a self-management program framework to develop a comprehensive curriculum. The program was implemented and evaluated in a children's rehabilitation hospital within a universal health care system. A retrospective secondary analysis of anonymous data from a program evaluation survey was used to evaluate program feasibility, to identify features of importance to program participants and to assess changes in participants' knowledge.
  
  
  
  The program, "Concussion & You" includes a comprehensive, evidence informed, population specific curriculum that teaches participants practical strategies for management of return to school and play, sleep, nutrition, relaxation and energy conservation. A 'wheel of health' is used to facilitate participants' self-management action plan. Results from eighty-seven participant surveys indicate that the program is feasible and participant knowledge increased in all areas of the program with the highest changes reported in knowledge about sleep hygiene, rest and energy conservation.
  
  
  
  Findings indicate that "Concussion & You" is a feasible program that is acceptable to youth and their families, and fills a health system service gap.
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.
authors.forename: Anne W
authors.initials: AW
authors.lastname: Hunt
authors.affiliation: Department of Occupational Science & Occupational Therapy, University of Toronto, 160-500 University Ave, Toronto, Ontario, M5G 1V7, Canada.
authors.forename: Luciano
authors.initials: L
authors.lastname: De Feo
authors.affiliation: Department of Occupational Science & Occupational Therapy, University of Toronto, 160-500 University Ave, Toronto, Ontario, M5G 1V7, Canada.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Macintyre
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.
authors.forename: Dayna
authors.initials: D
authors.lastname: Greenspoon
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.
authors.forename: Talia
authors.initials: T
authors.lastname: Dick
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.|University of Toronto, Rehabilitation Sciences Institute, 160-500 University Ave., Toronto, Ontario, M5G 1V7, Canada.
authors.forename: Katherine
authors.initials: K
authors.lastname: Mah
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.|University of Toronto, Rehabilitation Sciences Institute, 160-500 University Ave., Toronto, Ontario, M5G 1V7, Canada.
authors.forename: Melissa
authors.initials: M
authors.lastname: Paniccia
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada.
authors.forename: Christine
authors.initials: C
authors.lastname: Provvidenza
authors.affiliation: Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Room 4W221, Toronto, Ontario, M4G 1R8, Canada. nreed@hollandbloorview.ca.|Department of Occupational Science & Occupational Therapy, University of Toronto, 160-500 University Ave, Toronto, Ontario, M5G 1V7, Canada. nreed@hollandbloorview.ca.|University of Toronto, Rehabilitation Sciences Institute, 160-500 University Ave., Toronto, Ontario, M5G 1V7, Canada. nreed@hollandbloorview.ca.
authors.forename: Nick
authors.initials: N
authors.lastname: Reed
mesh_terms: D000293:Adolescent; D001265:Athletic Injuries / Q000534:rehabilitation*; D001924:Brain Concussion / Q000534:rehabilitation*; D002648:Child; D003479:Curriculum; D019317:Evidence-Based Medicine; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D010353:Patient Education as Topic / Q000379:methods*; D015397:Program Evaluation; D011634:Public Health; D012189:Retrospective Studies; D000068958:Return to Sport; D012574:Schools; D012648:Self Care; D011795:Surveys and Questionnaires; D057170:Translational Research, Biomedical
keywords: Children; Concussion; Education; Knowledge translation; Pediatric; Self-management; Youth