title: [Parental roles and needs in neonatal intensive care: a review of Portuguese guidelines].
abstract: The scope of this article is to analyze the parental roles and needs included in Neonatal Intensive Care Unit guidelines. Thematic content analysis was conducted of 33 guidelines (28 consensuses and 5 documents directed to parents) freely available on the Portuguese Pediatrics Society website in August 2014. These documents deal mainly with information needs, child care activities performed by the parents and the respective responsibilities in decision making with respect to the health of children. Furthermore, parental and family characteristics were mentioned as risk factors for prematurity and perinatal diseases. The psychosocial consequences of parenthood experienced in Neonatal Intensive Care Units, as well as the adequacy of their environmental characteristics to parental needs, were less frequently touched upon. Issues related to the safety and comfort, confidence of parents in healthcare and social support were rarely touched upon. The results reflect sociocultural norms associated with intensive parenting, which is exclusively child centered, highly emotional and performed under the guidance of health professionals. The important aspect is to issue and disseminate guidelines that foster the integration of family-centered care in the dynamics of Neonatal Intensive Care Units.
authors.affiliation: ISPUP-EPIUnit,, Universidade do Porto. R. das Taipas 135. 4050-600 Porto Portugal. mariana.amorim@ispup.up.pt.
authors.forename: Mariana
authors.initials: M
authors.lastname: Amorim
authors.affiliation: ISPUP-EPIUnit,, Universidade do Porto. R. das Taipas 135. 4050-600 Porto Portugal. mariana.amorim@ispup.up.pt.
authors.forename: Elisabete
authors.initials: E
authors.lastname: Alves
authors.affiliation: ISPUP-EPIUnit,, Universidade do Porto. R. das Taipas 135. 4050-600 Porto Portugal. mariana.amorim@ispup.up.pt.
authors.forename: Henrique
authors.initials: H
authors.lastname: Barros
authors.affiliation: ISPUP-EPIUnit,, Universidade do Porto. R. das Taipas 135. 4050-600 Porto Portugal. mariana.amorim@ispup.up.pt.
authors.forename: Susana
authors.initials: S
authors.lastname: Silva
mesh_terms: D006301:Health Services Needs and Demand; D006801:Humans; D015931:Intensive Care, Neonatal; D010290:Parents; D011174:Portugal; D017410:Practice Guidelines as Topic; D012380:Role