title: Advance Care Planning in Norwegian nursing homes-Who is it for?
abstract: Advance care planning (ACP) is an international concept for improving patient autonomy and communication in the context of anticipated deterioration and end-of-life care. In a preparatory conversation, health care professionals facilitate one or more conversations where nursing home residents are invited to reflect on, and articulate wishes and preferences concerning future medical treatment and end-of-life care. Our aim with this study was to increase knowledge of existing ACP practices in Norwegian nursing homes. We wanted to know how nursing home residents, relatives and nursing home staff take part in the conversations, and to what extent these conversations can be regarded as promoting autonomy, legal rights and individual needs for the residents. We conducted participant observation of seven preparatory conversations, followed by interviews with health care staff (together) and resident and relative (together). In the result section, we present an informative case example of an ACP conversation where common and important characteristics running through our data are present. These are further elaborated under the following headings: Life critical questions, Residents' quiet participation in the conversations, the Dying phase - a clinical issue, Nurses and physicians; different domains and Timing. We find that nursing home staff in our study wants to contribute to open awareness, autonomy and a good death, but there are little reflections about the purpose and content of the conversations, how they should be carried out and when, and what frail nursing home residents are able to understand and express in ACP conversations.
authors.affiliation: University of Oslo Centre for Medical Ethics, Kirkeveien 166, Fredrik Holsts hus, 0450 Oslo Norway. Electronic address: lisbeth.thoresen@medisin.uio.no.
authors.forename: Lisbeth
authors.initials: L
authors.lastname: Thoresen
authors.affiliation: University of Karlstad, Universitetsgatan 2, 651 88 Karlstad, Sverige, Sweden.
authors.forename: Rolf
authors.initials: R
authors.lastname: Ahlzén
authors.affiliation: University of Oslo Centre for Medical Ethics, Kirkeveien 166, Fredrik Holsts hus, 0450 Oslo Norway.
authors.forename: Kari Nyheim
authors.initials: KN
authors.lastname: Solbrække
mesh_terms: D032722:Advance Care Planning; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D001293:Attitude to Death; D006801:Humans; D007407:Interviews as Topic; D009664:Norway; D009726:Nurses / Q000523:psychology; D009735:Nursing Homes; D010820:Physicians / Q000523:psychology; D013997:Time Factors