title: Pesg PNH diagnosis, follow-up and treatment guidelines.
abstract: PNH Education and Study Group (PESG) have been established in December 2013 as a non-profit, independent, medical organization www.pesg.org. Paroxysmal Nocturnal Hemoglobinuria (PNH) is a multi-systemic disease that should be treated with a multidisciplinary approach. Patients may apply to the clinics other than the hematology due to variability and diversity of clinical findings which lower the rate of diagnosis due to low awareness about PNH. PNH might be overlooked and diagnosis might be delayed. Regarding these, PESG was established with the collaboration of Immunology, Cardiology, Thorax Diseases (Pulmonology), Neurology, Gastroenterology, General Surgery and Urology specialists in addition to hematologists dealing with PNH. The PESG study group aims to increase the awareness about PNH, including training activities about PNH, strengthening the relations between clinics and planning of clinical studies as a goal. It is the first professional organization focusing on PNH, in Turkey.In this guideline, we want to facilitate the diagnosis attributes of physicians from all specializations that deal with PNH and its systemic complications. One can perceive this as a tailor made guideline of international guidelines but not a compilation.
authors: Department of Hematology, Ege University Izmir, Turkey.
authors: Fahri
authors: F
authors: Sahin
authors: Department of Hematology, Koc University Istanbul, Turkey.
authors: Olga Meltem
authors: OM
authors: Akay
authors: Department of Hematology, Haseki Training and Research Hospital Istanbul, Turkey.
authors: Mesut
authors: M
authors: Ayer
authors: Department of Hematology, Dr. Abdurrahman Yurtaslan Ankara Oncology Training and Research Hospital Ankara, Turkey.
authors: Mehmet Sinan
authors: MS
authors: Dal
authors: Department of Hematology, Bulent Ecevit University Zonguldak, Turkey.
authors: Sehmus
authors: S
authors: Ertop
authors: Department of Hematology, Ankara University Ankara, Turkey.
authors: Osman
authors: O
authors: Ilhan
authors: Department of Hematology, Mugla Sıtkı Kocman University Mugla, Turkey.
authors: Volkan
authors: V
authors: Karakus
authors: Department of Hematology, Dokuz Eylul University Izmir, Turkey.
authors: Mehmet Ali
authors: MA
authors: Ozcan
authors: Department of Hematology, Uludag University Bursa, Turkey.
authors: Vildan
authors: V
authors: Ozkocaman
authors: Department of Hematology, Dokuz Eylul University Izmir, Turkey.
authors: Hayri
authors: H
authors: Ozsan
authors: Department of Hematology, Akdeniz University Antalya, Turkey.
authors: Ozan
authors: O
authors: Salim
authors: Department of Hematology, Ege University Izmir, Turkey.
authors: Mahmut
authors: M
authors: Tobu
authors: Department of Hematology, Mersin University Mersin, Turkey.
authors: Anil
authors: A
authors: Tombak
authors: Department of Hematology, Marmara University Izmir, Turkey.
authors: Tulin Firatli
authors: TF
authors: Tuglular
authors: Department of Hematology, Gaziantep University Gaziantep, Turkey.
authors: Mehmet
authors: M
authors: Yilmaz
authors: Department of Hematology, Erciyes University Kayseri, Turkey.
authors: Ali
authors: A
authors: Unal
authors: Department of Hematology, Marmara University Izmir, Turkey.
authors: Mustafa Nuri
authors: MN
authors: Yenerel
authors: Department of Hematology, Ege UniversityIzmir, Turkey; On behalf of PNH Education and Study Group (PESG).
authors: Guray
authors: G
authors: Saydam
keywords: PNH; diagnosis; guideline; treatment