title: All together now: findings from a PCORI workshop to align patient-reported outcomes in the electronic health record.
abstract: In recent years, patient-reported outcomes have become increasingly collected and integrated into electronic health records. However, there are few cross-cutting recommendations and limited guidance available in this rapidly developing research area. Our goal is to report key findings from a 2013 Patient-Centered Outcomes Research Institute workshop on this topic and a summary of actions that followed from the workshop, and present resulting recommendations that address patient, clinical and research/quality improvement barriers to regular use. These findings provide actionable guidance across research and practice settings to promote and sustain widespread adoption of patient-reported outcomes across patient populations, healthcare settings and electronic health record systems.
authors: Department of Oncology, Georgetown University, Washington DC, USA.|Lombardi Comprehensive Cancer Center, Georgetown University Medical Center, Washington, DC, USA.
authors: Roxanne E
authors: RE
authors: Jensen
authors: Division of General Internal Medicine, Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA.|Department of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.|Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins, Baltimore, MD, USA.
authors: Claire F
authors: CF
authors: Snyder
authors: Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC, USA.|Patient-Centered Outcomes Research Institute, Washington, DC, USA.
authors: Ethan
authors: E
authors: Basch
authors: Patient-Centered Outcomes Research Institute, Washington, DC, USA.
authors: Lori
authors: L
authors: Frank
authors: Division of General Internal Medicine, Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD, USA.|Department of Health Policy & Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
authors: Albert W
authors: AW
authors: Wu
mesh_terms: D003695:Delivery of Health Care; D057286:Electronic Health Records; D006801:Humans; D063868:Patient Outcome Assessment; D000071066:Patient Reported Outcome Measures
keywords: electronic health records; patient-reported outcomes; quality of care