title: Fertility preservation in pediatric and adolescent cancer patients in Switzerland: A qualitative cross-sectional survey.
abstract: Fertility preservation (FP) is an important topic of discussion in the field of oncology, particularly in pediatric oncology. Despite the awareness of severe impact of infertility on quality of life and different guidelines available in this area, the options in FP are not routinely discussed with the pediatric cancer patients and their parents. To the best of our knowledge, this is the first survey report concerned to FP counseling and procedures in pediatric and adolescent cancer patients in Switzerland. This survey was conducted from June 2014 to October 2014 on the counseling and procedures performed between 2009 and 2013; the questionnaire was completed by one of the professional from hematology/oncology centers in Switzerland. Currently, only four out of nine centers have a program for FP. In 2013, 45/301 (15%) patients received FP counseling and 36/301 (12%) underwent an FP procedure. The most commonly performed procedures from 2009 to 2013 were administration of gonadotropin releasing hormone agonist (3%) and cryopreservation of ovarian tissue in females (3%) and cryopreservation of sperms in males (6%); the most frequently cited reason for the absence of FP counseling was lack of time (55%). Therefore, this survey should help to develop and harmonize practices with respect to FP counseling and procedures in Switzerland, and to establish FP as a standard of care during cancer treatment.
authors: University Children's Hospital Basel, Division of Pediatric Oncology/Hematology, Basel, Switzerland. Electronic address: Tamara.Diesch@ukbb.ch.
authors: Tamara
authors: T
authors: Diesch
authors: University Children's Hospital Basel, Division of Pediatric Oncology/Hematology, Basel, Switzerland.
authors: Nicolas Xavier
authors: NX
authors: von der Weid
authors: University Children's Hospital Basel, Department of Pediatric Endocrinology, Basel, Switzerland.
authors: Gabor
authors: G
authors: Szinnai
authors: University Hospital Basel, Clinical Trial Unit, Basel, Switzerland.
authors: Sabine
authors: S
authors: Schaedelin
authors: University Hospital Basel, Clinic of Gynecological Endocrinology and Reproductive Medicine, Basel, Switzerland.
authors: Christian
authors: C
authors: De Geyter
authors: University Hospital Bern, Department of Hematology, Bern, Switzerland.
authors: Alicia
authors: A
authors: Rovó
mesh_terms: D000293:Adolescent; D002648:Child; D003376:Counseling; D003430:Cross-Sectional Studies; D003657:Decision Making; D005260:Female; D059247:Fertility Preservation / Q000379:methods / Q000523:psychology*; D058015:Health Communication / Q000592:standards*; D006801:Humans; D007246:Infertility / Q000517:prevention & control*; D008297:Male; D009369:Neoplasms / Q000503:physiopathology* / Q000523:psychology; D036301:Qualitative Research; D011788:Quality of Life; D011795:Surveys and Questionnaires; D013557:Switzerland
keywords: Cancer; Counseling; Fertility preservation; Pediatric