title: An Architecture for the Integration of Clinical Data from a PEHR in a Regional Research Platform.
abstract: Making clinical information available for research is not only relevant for healthcare institutions, but also for regional EHRs, as cross-sectorial information can be made accessible. In the INFOPAT (INFOrmation technology for PATient-oriented health care in the Rhine-Neckar metropolitan region) project we are thus implementing both, a regional personal cross-enterprise electronic health record (PEHR) and a regional research platform (RRP) based on information from the PEHR. IHE profiles are implemented to achieve interoperability between healthcare institutions electronic medical records (EMR) and PEHR on the one hand, as well as PEHR and RRP on the other hand. The use case for the RRP is cross-sectorial quality assessment and improvement for colorectal cancer based on a quality indicator (QI) approach including patients' perspectives. For semantic interoperability the responses are transferred in the form of HL7 CDA L2 documents. The resulting architecture for a RRP shows that implementing a PEHR in combination with a RRP based on international communication standards is possible. Also IHE XDS can be used for integration of patient care and biomedical research infrastructures.
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Björn
authors: B
authors: Schreiweis
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Tobias
authors: T
authors: Bronsch
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Katharina E
authors: KE
authors: Stein
authors: Department of General Practice and Health Services Research, University Hospital Heidelberg, Germany.
authors: Stefan
authors: S
authors: Nöst
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Lakshmi S
authors: LS
authors: Aguduri
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Antje
authors: A
authors: Brandner
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Peter
authors: P
authors: Pensold
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Nicolas
authors: N
authors: Weiss
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Nilay
authors: N
authors: Yüksekogul
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Björn
authors: B
authors: Bergh
authors: Center for Information Technology and Medical Engineering, University Hospital Heidelberg, Germany.
authors: Oliver
authors: O
authors: Heinze
mesh_terms: D015179:Colorectal Neoplasms / Q000628:therapy; D057286:Electronic Health Records / Q000458:organization & administration; D066275:Health Information Exchange; D006302:Health Services Research / Q000379:methods / Q000458:organization & administration; D006801:Humans; D011785:Quality Assurance, Health Care / Q000379:methods*; D058996:Quality Improvement