title: Citizens' Access to Their Digital Health Data in Eleven Countries - A Comparative Study.
abstract: Governments around the world are actively promoting citizens electronic access to their health data as one of a number of ways to respond to the challenges of health care delivery in the 21st century. While numerous approaches have been utilized it is evident from cross-country comparisons that there are different conceptualizations of: both the expected and desired roles for citizens in the management of their own health; the benefits that will be delivered by citizen access and how these benefits should be measured and benchmarked over-time. This paper presents comparative analyses of the methods by which citizens are provided with access to their own health data across 11 countries. The paper aims to stimulate debate on electronic citizen access to health data and the challenges of measuring benefit as well as reflection on capacity of different citizens to engage with e-health.
authors: Dept. of Development and Planning, Aalborg University, Denmark.
authors: Christian
authors: C
authors: Nohr
authors: School of Engineering & ICT, University of Tasmania, Australia.
authors: Ming Chao
authors: MC
authors: Wong
authors: School of Engineering & ICT, University of Tasmania, Australia.
authors: Paul
authors: P
authors: Turner
authors: School of Engineering & ICT, University of Tasmania, Australia.
authors: Helen
authors: H
authors: Almond
authors: e-Medicine Laboratory, Tallinn University of Technology, Estonia.
authors: Liisa
authors: L
authors: Parv
authors: The Norwegian University of Science and Technology, Trondheim, Norway.
authors: Heidi
authors: H
authors: Gilstad
authors: Dept. of Learning, Informatics, Management and Ethics, Stockholm, Sweden.
authors: Sabine
authors: S
authors: Koch
authors: Dept. of Health Information Management, Directorate of Health, Reykjavik, Iceland.
authors: Guðrún Auður
authors: GA
authors: Harðardóttir
authors: Dept. of Information, National Institute for Health and Welfare, Helsinki, Finland.
authors: Hannele
authors: H
authors: Hyppönen
authors: INSERM CIC-IT 1403, Univ. Lille Nord de France, CHU Lille, UDSL EA 2694.
authors: Romaric
authors: R
authors: Marcilly
authors: Centre of Medical Informatics, University of Edinburgh, UK.
authors: Aziz
authors: A
authors: Sheik
authors: School of Population Health, The University of Auckland, New Zealand.
authors: Karen
authors: K
authors: Day
authors: School of Health Information Science, University of Victoria, Victoria, BC, Canada.
authors: Andre
authors: A
authors: Kushniruk
mesh_terms: D022126:Access to Information; D003695:Delivery of Health Care; D057286:Electronic Health Records; D006801:Humans; D017216:Telemedicine