Quality Indicators and Parental Satisfaction With Perinatal Palliative Care in the Intrapartum Setting After Diagnosis of a Life-Limiting Fetal Condition.
Measurement of quality indicators (QIs) in perinatal palliative care has not been addressed. Parents who chose to continue pregnancy after a diagnosis of a life-limiting fetal condition described perceptions of quality care and their satisfaction with care. This research identified which QIs explained parental satisfaction. High QI scores are associated with parental satisfaction. Parents who were satisfied reported 2.9 times the odds that their baby was treated with dignity and respect and 3.4 times the odds their medical care was addressed. This research is a first step in developing a robust measure of QIs in perinatal palliative care.
York College of Pennsylvania (Dr Wool); University of North Carolina at Chapel Hill (Dr Black); and Messiah College, Grantham, Pennsylvania (Dr Woods).
Charlotte
C
Wool
Beth Perry
BP
Black
Anne B Nancy
AB
Woods
D000223:Adaptation, Psychological; D001293:Attitude to Death; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D010166:Palliative Care / Q000523:psychology*; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D018743:Perinatal Care; D019984:Quality Indicators, Health Care; D019452:Terminally Ill