Validation of the Distress Thermometer and Problem List in Patients with Recurrent Respiratory Papillomatosis.
Objective There is no specific clinical tool for physicians to detect psychosocial and physical distress or health care need in patients with recurrent respiratory papillomatosis (RRP). The main aim of this study is to validate the RRP-adapted Distress Thermometer and Problem List (DT&PL). Study Design Prospective cross-sectional questionnaire research. Setting Academic tertiary care medical centers in Groningen, Netherlands, and Helsinki, Finland. Subjects and Methods Ninety-one juvenile- and adult-onset RRP patients participated from the departments of otorhinolaryngology-head and neck surgery of the University Medical Center Groningen, Netherlands, and Helsinki University Hospital, Finland. The Hospital Anxiety and Depression Scale was used as the gold standard. Results A DT cutoff score ≥4 gave the best sensitivity and specificity. Thirty-one percent of patients had significant distress according to the DT cutoff. Significantly more patients with a score above than under the cutoff had a referral wish. The PL appeared to be reliable. Patients' opinions on the DT&PL were largely favorable. Conclusion The Dutch and Finnish versions of the DT&PL are valid, reliable screening tools for distress in RRP patients.
1 Department of Otorhinolaryngology-Head and Neck Surgery, University of Groningen, University Medical Center Groningen, Groningen, Netherlands.|2 Cancer Research Center Groningen, University of Groningen, Groningen, Netherlands.|3 Groningen Papilloma Studies, University Medical Center Groningen, Groningen, Netherlands.
Michel R M
MR
San Giorgi
4 Department of Otorhinolaryngology-Head and Neck Surgery, University of Helsinki, Helsinki University Hospital, Helsinki, Finland.
Leena-Maija
LM
Aaltonen
4 Department of Otorhinolaryngology-Head and Neck Surgery, University of Helsinki, Helsinki University Hospital, Helsinki, Finland.
Heikki
H
Rihkanen
1 Department of Otorhinolaryngology-Head and Neck Surgery, University of Groningen, University Medical Center Groningen, Groningen, Netherlands.|2 Cancer Research Center Groningen, University of Groningen, Groningen, Netherlands.|3 Groningen Papilloma Studies, University Medical Center Groningen, Groningen, Netherlands.
Robin E A
RE
Tjon Pian Gi
1 Department of Otorhinolaryngology-Head and Neck Surgery, University of Groningen, University Medical Center Groningen, Groningen, Netherlands.|2 Cancer Research Center Groningen, University of Groningen, Groningen, Netherlands.
Bernard F A M
BF
van der Laan
5 Wenckebach Institute, University of Groningen, University Medical Center Groningen, Groningen, Netherlands.
Josette E H M
JE
Hoekstra-Weebers
1 Department of Otorhinolaryngology-Head and Neck Surgery, University of Groningen, University Medical Center Groningen, Groningen, Netherlands.|2 Cancer Research Center Groningen, University of Groningen, Groningen, Netherlands.|3 Groningen Papilloma Studies, University Medical Center Groningen, Groningen, Netherlands.
Frederik G
FG
Dikkers
D000328:Adult; D003430:Cross-Sectional Studies; D005260:Female; D005387:Finland; D006801:Humans; D008297:Male; D008875:Middle Aged; D009426:Netherlands; D030361:Papillomavirus Infections / Q000523:psychology*; D011446:Prospective Studies; D011594:Psychometrics; D012141:Respiratory Tract Infections / Q000523:psychology*; D012680:Sensitivity and Specificity; D012959:Socioeconomic Factors; D013315:Stress, Psychological / Q000175:diagnosis* / Q000209:etiology*; D011795:Surveys and Questionnaires
distress; recurrent respiratory papillomatosis; screening