title: Education creates comfort and challenges stigma towards children with intellectual disabilities.
abstract: Children with intellectual disabilities (IDs) are frequent users of the healthcare system, yet nurses report they receive little education regarding specialized medical, social and relational needs of this population. Therefore, parents take on a greater burden of care while their child is in hospital than do parents of typically developing children. This article reports findings from a qualitative study that used feminist poststructuralism to examine the hospital experiences of eight children with IDs, 17 mothers and 12 nurses. Nurses and mothers reported a lack of knowledge and education regarding the healthcare of children with ID and identified a need for more education. Participants noted that physical care of children with ID was prioritized as more important than communication and relationships. This unintentional prioritization was socially and institutionally constructed through stigma and stereotypes about people with IDs. Nurses and parents offered suggestions to access and increase ID education for healthcare professionals.
authors.affiliation: Glenrose Rehabilitation Hospital, Canada.
authors.forename: Lynn M
authors.initials: LM
authors.lastname: Breau
authors.affiliation: Dalhousie University, Canada.
authors.forename: Megan
authors.initials: M
authors.lastname: Aston
authors.affiliation: Dalhousie University, Canada.
authors.forename: Emily
authors.initials: E
authors.lastname: MacLeod
mesh_terms: D000328:Adult; D002648:Child; D002662:Child Health Services / Q000592:standards; D002673:Child, Hospitalized / Q000523:psychology*; D004506:Education, Nursing / Q000592:standards*; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008607:Intellectual Disability / Q000451:nursing* / Q000523:psychology*; D008297:Male; D009035:Mothers; D009726:Nurses; D036301:Qualitative Research; D057545:Social Stigma
keywords: intellectual disabilities; nursing education; paediatric healthcare; parental involvement