title: Striving for balance between caring and restraint: young adults' experiences with parental multiple sclerosis.
abstract: OBJECTIVE
  To explore and describe how young adults between 18-25 years of age experienced growing up with a parent with multiple sclerosis and how these experiences continue to influence their daily lives.
  
  
  BACKGROUND
  Chronic parental illness is occurring in about 10% of families worldwide, but little is known about how the children experience growing up with a parent with multiple sclerosis during their childhood and into young adulthood.
  
  
  METHODS
  We chose a qualitative design using a phenomenological approach based on Giorgi.
  
  
  METHODS
  Exploratory and open-ended interviews with 14 young adults were conducted.
  
  
  RESULTS
  The essence of the phenomenon of having a parent with multiple sclerosis was synthesized into 'Striving for balance between caring and restraint' from two themes 'caring' and 'restraint' and eight subthemes. Participants' experiences of caring for parents with multiple sclerosis continued influencing their other close relationships, in which they tended to assume responsibility while concealing some of their feelings and desires. Most participants showed restraint among parents with and without multiple sclerosis, friends and partners.
  
  
  CONCLUSIONS
  It seems that one of the greatest challenges of having a parent with multiple sclerosis is achieving a balance between caring for others and asserting one's own desires.
  
  
  CONCLUSIONS
  Healthcare professionals can support the family by encouraging family members to participate in consultations and to assist the parents in providing information about multiple sclerosis and its symptoms to the children. Parents might need assistance in applying for help with domestic chores or referrals to support groups for their children or other family members.
authors.affiliation: Danish Multiple Sclerosis Center, Department of Neurology, Rigshospitalet, Copenhagen, Denmark.|University of Copenhagen, Copenhagen, Denmark.
authors.forename: Julie Y
authors.identifier: http://orcid.org/0000-0003-1024-1273
authors.initials: JY
authors.lastname: Moberg
authors.affiliation: The Danish Multiple Sclerosis Society, Copenhagen, Denmark.
authors.forename: Dorte
authors.initials: D
authors.lastname: Larsen
authors.affiliation: Hvidovre Hospital, Hvidovre, Denmark.|University of Aarhus, Aarhus C, Denmark.
authors.forename: Anne
authors.initials: A
authors.lastname: Brødsgaard
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000328:Adult; D017028:Caregivers / Q000523:psychology*; D016241:Child of Impaired Parents / Q000523:psychology*; D004644:Emotions; D004645:Empathy; D005260:Female; D006801:Humans; D008297:Male; D009103:Multiple Sclerosis / Q000523:psychology*; D010287:Parent-Child Relations; D012649:Self Concept; D055815:Young Adult
keywords: adaptation; caregivers/caregiving; chronic parental illness; interviews; lived experience; multiple sclerosis (MS); phenomenology; qualitative analysis; young adults