title: Rural residents' perspectives on the rural 'good death': a scoping review.
abstract: The 'good death' is one objective of palliative care, with many 'good death' viewpoints and research findings reflecting the urban voice. Rural areas are distinct and need special consideration. This scoping review identified and charted current research knowledge on the 'good' rural death through the perspectives of rural residents, including rural patients with a life-limiting illness, to identify evidence and gaps in the literature for future studies. A comprehensive literature search of English language articles (no date filter applied) was conducted in 2016 (2 January to 14 February) using five library databases. Reference lists of included articles, recent issues of eight relevant journals and three grey literature databases were also hand-searched. Twenty articles (for 17 studies and one systematic review) were identified after a two-phase screening process by two reviewers, using pre-determined inclusion criteria. Data from each study were extracted and charted, analysed using a thematic analysis of the included articles' content, and with a quantitative analysis of the scoping review. These papers revealed data collected from rural patients with a life-limiting illness and family caregivers, rural healthcare providers, the wider rural community, rural community leaders and rural health administrators and policy makers. Rural locations were heterogeneous. Residents from developed and developing countries believe a 'good death' is one that is peaceful, free of pain and without suffering; however, this is subjective and priorities are based on personal, cultural, social and religious perspectives. Currently, there is insufficient data to generalise rural residents' perspectives and what it means for them to die well. Given the extreme importance of a 'good death', there is a need for further studies to elicit rural patient and family caregiver perspectives.
authors.affiliation: Medical School, Australian National University, Canberra, Australian Capital Territory, Australia.
authors.forename: Suzanne
authors.identifier: 0000-0002-1496-9651
authors.initials: S
authors.lastname: Rainsford
authors.affiliation: HammondCare, Sydney, New South Wales, Australia.|Palliative Medicine, University of Sydney, Sydney, New South Wales, Australia.
authors.forename: Roderick D
authors.initials: RD
authors.lastname: MacLeod
authors.affiliation: Medical School, Australian National University, Canberra, Australian Capital Territory, Australia.
authors.forename: Nicholas J
authors.initials: NJ
authors.lastname: Glasgow
authors.affiliation: Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Donna M
authors.initials: DM
authors.lastname: Wilson
authors.affiliation: Medical School, Australian National University, Canberra, Australian Capital Territory, Australia.
authors.forename: Christine B
authors.initials: CB
authors.lastname: Phillips
authors.affiliation: Rural Clinical School, Australian National University, Cooma, New South Wales, Australia.
authors.forename: Robert B
authors.initials: RB
authors.lastname: Wiles
mesh_terms: D001293:Attitude to Death; D017028:Caregivers / Q000523:psychology; D006282:Health Personnel / Q000523:psychology; D006801:Humans; D059408:Pain Management; D010166:Palliative Care / Q000458:organization & administration*; D012424:Rural Population; D013727:Terminal Care / Q000458:organization & administration*
keywords: dying well; end-of-life; good death; palliative care; rural; scoping review