title: Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.
abstract: He Tangata Kei Tua, a relationship model for biobanks, was developed to facilitate best practice in addressing Māori ethical concerns by guiding culturally informed policy and practice for biobanks in relation to governance, operational, and community engagement activities.
  
  
  
  The model is based on key issues of relevance to Māori that were identified as part of the Health Research Council of New Zealand-funded research project, Te Mata Ira (2012-2015).
  
  
  
  This project identified Māori perspectives on biobanking and genetic research, and along with tikanga Māori it developed cultural guidelines for ethical biobanking and genetic research involving biospecimens. The model draws on a foundation of mātauranga (Indigenous knowledge) and tikanga Māori (Māori protocols and practices) and will be useful for biobanks, researchers, ethics committee members, and those who engage in consultation or advice about biobanking in local, regional, national, or international settings.
  
  
  
  This article describes the model and considers the policy and practice implications for biobanks seeking to address Māori ethical concerns. Although the model has focused on Māori aspirations in the New Zealand context, it provides a framework for considering cultural values in relation to other community or indigenous contexts.Genet Med 19 3, 345-351.
authors.affiliation: Waikato Institute of Technology, Hamilton, New Zealand.
authors.forename: Angela
authors.identifier: 0000-0002-1626-4487
authors.initials: A
authors.lastname: Beaton
authors.affiliation: University of Waikato, Hamilton, New Zealand.
authors.forename: Maui
authors.identifier: 0000-0003-3880-4015
authors.initials: M
authors.lastname: Hudson
authors.affiliation: DipTeaching, Te Moemoea Ltd, Moerewa, New Zealand.
authors.forename: Moe
authors.initials: M
authors.lastname: Milne
authors.affiliation: Independent researcher, New Zealand.
authors.forename: Ramari Viola
authors.initials: RV
authors.lastname: Port
authors.affiliation: Otago Polytechnic, Otago, New Zealand.
authors.forename: Khyla
authors.initials: K
authors.lastname: Russell
authors.affiliation: Lakes District Health Board, Rotorua, New Zealand.
authors.forename: Barry
authors.initials: B
authors.lastname: Smith
authors.affiliation: University of Waikato, Hamilton, New Zealand.
authors.forename: Valmaine
authors.identifier: 0000-0002-9440-0237
authors.initials: V
authors.lastname: Toki
authors.affiliation: University of Waikato, Hamilton, New Zealand.
authors.forename: Lynley
authors.initials: L
authors.lastname: Uerata
authors.affiliation: University of Otago, Otago, New Zealand.
authors.forename: Phillip
authors.initials: P
authors.lastname: Wilcox
authors.affiliation: Waitemata District Health Board, Westlake, New Zealand.
authors.forename: Karen
authors.identifier: 0000-0002-1517-2134
authors.initials: K
authors.lastname: Bartholomew
authors.affiliation: Waitemata District Health Board, Westlake, New Zealand.
authors.forename: Helen
authors.identifier: 0000-0001-6801-6955
authors.initials: H
authors.lastname: Wihongi
mesh_terms: D018070:Biological Specimen Banks / Q000941:ethics*; D035843:Biomedical Research / Q000941:ethics; D003256:Community Participation / Q000379:methods*; D054521:Cultural Competency / Q000941:ethics*; D005260:Female; D036281:Genetic Research / Q000941:ethics*; D023281:Genomics / Q000941:ethics; D006801:Humans; D008297:Male; D009520:New Zealand; D044382:Population Groups; D012108:Research Personnel / Q000941:ethics