Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review.
BACKGROUND
Life-long specialized care is of the utmost importance to safeguard longevity as well as the quality of life in children diagnosed with a chronic condition (CC). Provision of life-long care, however, infers transfers to different settings in line with person's development status. Young people with CC (10-25 years) will transfer care from a pediatric towards an adult-oriented care setting. As a transfer of care is associated with a change of care context, healthcare team, responsibilities, expectations, and roles, patients need to be prepared for this alteration. One type of preparatory intervention is the provision of transitional care. Transition prepares adolescents for the responsibilities associated with adult care and age through support, education, skills demonstration, and guidance. The past decades, increasing attention has been paid towards the concept of transfer and transition, both in clinical practice and research. Numerous consensus papers have been established, emphasizing the need for the establishment of a transition program for young patients with CC. To date, it remains, however, unclear what the overall level of evidence is on transfer and transition in this population. This scoping review aims to analyze and determine the level of evidence of published literature on transfer and transition of young people diagnosed with CC.


METHODS
MEDLINE, CINAHL, Scopus, and Web of Science databases will be searched for relevant publications. Any publication in English, Spanish, German, or French, related to transfer and/or transition in young people with CC will be included. A three-staged approach will identify relevant papers, comprising systematic database searches, application of snowball method, and citation searching. Study selection will be performed through screening of titles/abstracts followed by a full-text assessment using a standardized selection form. Data extraction will be performed by two reviewers independently using a pilot-tested, standardized form. Descriptive statistics and content analysis will be applied to present the results. Bibliometric visualization techniques will be performed with VOS viewer®.


CONCLUSIONS
Our review will map the overall level of evidence of published literature on transfer and transition in young people with CC. It will provide guidance for future research initiatives, clinical practice, and policy makers.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.|Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium.
Mariela
M
Acuña Mora
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.|Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium.
Philip
P
Moons
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.
Carina
C
Sparud-Lundin
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, Gothenburg, SE-405 30, Sweden.|Department of Pediatric Cardiology, The Queen Silvia Children's Hospital, Gothenburg, Sweden.
Ewa-Lena
EL
Bratt
Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Kapucijnenvoer 35, box 7001, 3000, Leuven, Belgium. eva.goossens@kuleuven.be.|Research Foundation Flanders (FWO), Brussels, Belgium. eva.goossens@kuleuven.be.
Eva
E
Goossens
Care provision; Chronic condition; Pediatric; Scoping review; Transfer; Transition; Transition to adulthood
J Adolesc Health. 2010 Dec;47(6):540-6
21094430
Diabet Med. 2007 Jul;24(7):764-9
17535294
J Adolesc Health. 2003 Mar;32(3):225-33
12606116
Pediatrics. 2016 Apr;137(4):null
26940985
Annu Rev Clin Psychol. 2012;8:455-80
22224836
J Med Libr Assoc. 2005 Jan;93(1):74-80
15685278
J Adolesc Health. 1995 Jul;17(1):3-5
7578159
J Adolesc Health. 2009 Apr;44(4):316-22
19306789
Rheumatology (Oxford). 2007 Jan;46(1):161-8
16790451
Circulation. 2010 Nov 30;122(22):2264-72
21098444
J Adolesc Health. 1999 Apr;24(4):259-64
10227345
Arch Dis Child. 2011 Jun;96(6):548-53
21388969
J Adolesc Health. 2009 Dec;45(6):551-5
19931826
BMJ. 2015 Jan 02;349:g7647
25555855
Pediatrics. 2002 Dec;110(6 Pt 2):1304-6
12456949
Pediatrics. 2000 Jul;106(1 Pt 2):205-9
10888693
JAMA. 2010 Feb 17;303(7):665-6
20159877
Rheumatology (Oxford). 2016 Jan;55(1):133-42
26320142
J Pediatr Nurs. 2015 Sep-Oct;30(5):e47-62
26164412
J Adolesc Health. 2011 May;48(5):429-40
21501800
Int J Nurs Stud. 2014 Jan;51(1):123-35
23490470
J Am Coll Cardiol. 2010 Sep 28;56(14):1149-57
20863956
J Pediatr Nurs. 2015 Sep-Oct;30(5):e3-10
26199097
Child Care Health Dev. 2004 Sep;30(5):439-52
15320921
Cochrane Database Syst Rev. 2016 Apr 29;4:CD009794
27128768
Psychiatr Clin North Am. 2007 Dec;30(4):819-35
17938047
Curr Cardiol Rep. 2009 Jul;11(4):291-7
19563729
Intern Med J. 2007 Aug;37(8):555-60
17640188
PLoS Med. 2009 Jul 21;6(7):e1000097
19621072