Out of many, one: integrating data in the paediatric cardiovascular environment.
Large volumes of data and multiple computing platforms are now universal components of paediatric cardiovascular medicine, but are in a constant state of evolution. Often, multiple sets of related data reside in disconnected "silos", resulting in clinical, administrative, and research activities that may be duplicative, inefficient, and at times inaccurate. Comprehensive and integrated data solutions are needed to facilitate these activities across congenital heart centres. We describe methodology, key considerations, successful use cases, and lessons learnt in developing an integrated data platform across our congenital heart centre.
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
David J
DJ
Bradley
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Danny T Y
DTY
Wu
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Caren S
CS
Goldberg
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Gerald S
GS
Serwer
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Ray E
RE
Lowery
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Janet E
JE
Donohue
2Department of Cardiac Surgery,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Jennifer C
JC
Hirsch-Romano
3Department of Informatics,Donald Bren School of Information and Computer Sciences,University of California,Irvine,California,United States of America.
Kai
K
Zheng
1Department of Pediatrics and Communicable Diseases,C. S. Mott Children's Hospital,University of Michigan Medical School,Ann Arbor,Michigan,United States of America.
Sara K
SK
Pasquali
D002309:Cardiology / Q000379:methods*; D002648:Child; D016208:Databases, Factual / Q000592:standards; D015716:Electrocardiography, Ambulatory; D057286:Electronic Health Records / Q000592:standards; D006330:Heart Defects, Congenital / Q000175:diagnosis / Q000628:therapy; D006801:Humans; D008279:Magnetic Resonance Imaging; D017063:Outcome Assessment, Health Care / Q000379:methods* / Q000458:organization & administration; D012042:Registries / Q000592:standards
Paediatric cardiology; database; electronic health record; registry