Parental involvement in neonatal critical care decision-making.
The article analyses the decision-making process between doctors and parents of babies in neonatal intensive care. In particular, it focuses on cases in which the decision concerns the redirection of care from full intensive care to palliative care at the end of life. Thirty one families were recruited from a neonatal intensive care unit in England and their formal interactions with the doctor recorded. The conversations were transcribed and analysed using conversation analysis. Analysis focused on sequences in which decisions about the redirection of care were initiated and progressed. Two distinct communicative approaches to decision-making were used by doctors: 'making recommendations' and 'providing options'. Different trajectories for parental involvement in decision-making were afforded by each design, as well as differences in terms of the alignments, or conflicts, between doctors and parents. 'Making recommendations' led to misalignment and reduced opportunities for questions and collaboration; 'providing options' led to an aligned approach with opportunities for questions and fuller participation in the decision-making process. The findings are discussed in the context of clinical uncertainty, moral responsibility and the implications for medical communication training and guidance. A Virtual Abstract of this paper can be accessed at: https://www.youtube.com/watch?v=MyuymxDNupk&feature=youtu.be.
Department of Neonatology, University College London, UK. chloe.shaw@ucl.ac.uk.
Chloe
C
Shaw
Department of Social Sciences, Loughborough University, UK.
Elizabeth
E
Stokoe
Department of Neonatology, University College London, UK.
Katie
K
Gallagher
Department of Neonatology, Homerton University Hospital, London, UK.|Centre for Paediatrics, Barts and the London School of Medicine and Dentistry, QMUL.
Narendra
N
Aladangady
Department of Neonatology, University College London, UK.
Neil
N
Marlow
D003142:Communication; D003657:Decision Making; D004739:England; D006801:Humans; D007231:Infant, Newborn; D007363:Intensive Care Units, Neonatal; D010166:Palliative Care / Q000523:psychology; D010290:Parents / Q000523:psychology*; D011368:Professional-Family Relations; D013727:Terminal Care / Q000523:psychology
conversation analysis; decision-making; end-of-life; ethics; neonatal; parental involvement