Partnering with consumers to develop and evaluate a Vietnamese Dementia Talking-Book to support low health literacy: a qualitative study incorporating codesign and participatory action research.
OBJECTIVE
The aim of the Vietnamese Dementia talking-book was to address low health literacy in older people of Vietnamese background living with dementia through the provision of an online resource to help individuals, their families and carers better understand and manage this condition and provide information about available dementia services.


METHODS
This qualitative study used codesign and participatory action research to develop and refine the talking-book in consultation with expert stakeholders, a consumer advocacy group and the Vietnamese community to assess its utility and ensure cultural and linguistic appropriateness and relevance.


METHODS
59 members of the Vietnamese community, 11 stakeholders from community health services and ethnic agencies, consumer advocacy groups and the research team participated in the codesign and refinement of the talking-book. 22 members of the Vietnamese community appraised the final product.


METHODS
Vietnamese community planned activity groups in the Western, Northern and Southern suburbs of Melbourne, Australia.


RESULTS
Our codesign study outlines the process required to develop a Vietnamese Dementia Talking-Book resource partnering with consumers and expert stakeholders to identify consumer need, selection of the content and appropriate language level, construction of the book, measuring acceptability of the talking-book, modification based on feedback and production and dissemination. Feedback on the final version of the talking-book revealed widespread consensus that the book enhanced the knowledge of members of the Vietnamese community in regard to understanding dementia and navigation and accessing of available services.


CONCLUSIONS
This free internationally available online Vietnamese Dementia Talking-Book facilitates improved dementia-related health literacy in the Vietnamese community. The book also serves as a tool to facilitate the provision of care to Vietnamese people living with memory loss by assisting health professional staff to develop relationships with Vietnamese clients, their families and carers in a culturally appropriate manner.
RDNS Institute, Royal District Nursing Service Ltd, StKilda, Victoria, Australia.
Dianne
D
Goeman
RDNS Institute, Royal District Nursing Service Ltd, StKilda, Victoria, Australia.
J
J
Michael
RDNS Institute, Royal District Nursing Service Ltd, StKilda, Victoria, Australia.
J
J
King
Australian Vietnamese Women's Association, Richmond, Victoria, Australia.
Huy
H
Luu
Alzheimer's Australia Victoria, Parkville, Victoria, Australia.
Claire
C
Emmanuel
RDNS Institute, Royal District Nursing Service Ltd, StKilda, Victoria, Australia.
S
S
Koch
CALD; Community nursing; health literacy; partnering with consumers
Soc Sci Med. 1995 Dec;41(12 ):1667-76
8746866
BMC Health Serv Res. 2013 Oct 22;13:427
24148155
BMJ. 2000 Jan 8;320(7227):114-6
10625273
J Health Commun. 2012;17 Suppl 3:160-75
23030568
Australas J Ageing. 2016 Sep;35(3):210-5
26970298
J Gen Intern Med. 2004 Dec;19(12):1228-39
15610334
Patient Educ Couns. 2011 Dec;85(3):499-504
21251788
Contemp Nurse. 2012 Feb;40(2):160-8
22554210
Qual Prim Care. 2010;18(1):27-32
20359410
BMJ. 2010 Nov 16;341:c5814
21081595
J Cross Cult Gerontol. 2008 Sep;23(3):283-99
18665444
Aust Health Rev. 2013 Sep;37(4):547-51
24018059