Sibling Caregivers of People With Intellectual and Developmental Disabilities: Sociodemographic Characteristics and Material Hardship Prevalence.
In growing numbers, people with intellectual and developmental disabilities are outliving their parents, or at least their parents' ability to care for them. Consequently, adult siblings without intellectual and developmental disabilities are increasingly taking on primary caregiving responsibilities. However, adult siblings have received little study generally, and sibling caregivers have received even less. We used nationally representative data from the Survey of Income and Program Participation (SIPP) to describe the social characteristics and material hardship levels of sibling caregivers, in comparison to the general working age adult population. This study finds moderate material hardship to be pervasive among sibling caregivers, though extreme levels of hardship are possibly being abated somewhat through public benefit programs. Implications for greater service needs are discussed.
Rajan A. Sonik, Susan L. Parish, and Eliana S. Rosenthal, Lurie Institute for Disability Policy, The Heller School for Social Policy and Management, Brandeis University.
Rajan A
RA
Sonik
Rajan A. Sonik, Susan L. Parish, and Eliana S. Rosenthal, Lurie Institute for Disability Policy, The Heller School for Social Policy and Management, Brandeis University.
Susan L
SL
Parish
Rajan A. Sonik, Susan L. Parish, and Eliana S. Rosenthal, Lurie Institute for Disability Policy, The Heller School for Social Policy and Management, Brandeis University.
Eliana S
ES
Rosenthal
D000328:Adult; D017028:Caregivers / Q000191:economics* / Q000706:statistics & numerical data*; D003710:Demography; D002658:Developmental Disabilities / Q000191:economics*; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000191:economics*; D008297:Male; D008875:Middle Aged; D012801:Sibling Relations; D035781:Siblings; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires
adult siblings; caregivers; intellectual and developmental disabilities; material hardship