title: Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder.
abstract: The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS®) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability.
authors.affiliation: Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O'Hara Street, Webster Hall Suite 300, Pittsburgh, PA, 15213, USA. mazefskyca@upmc.edu.
authors.forename: Carla A
authors.initials: CA
authors.lastname: Mazefsky
authors.affiliation: Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O'Hara Street, Webster Hall Suite 300, Pittsburgh, PA, 15213, USA.|Department of Psychology, Florida State University, Tallahassee, FL, USA.
authors.forename: Taylor N
authors.initials: TN
authors.lastname: Day
authors.affiliation: Department of Psychiatry, Maine Medical Center Research Institute, Scarborough, ME, USA.
authors.forename: Matthew
authors.initials: M
authors.lastname: Siegel
authors.affiliation: Department of Psychology, Virginia Tech, Blacksburg, VA, USA.
authors.forename: Susan W
authors.initials: SW
authors.lastname: White
authors.affiliation: Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O'Hara Street, Webster Hall Suite 300, Pittsburgh, PA, 15213, USA.
authors.forename: Lan
authors.initials: L
authors.lastname: Yu
authors.affiliation: Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O'Hara Street, Webster Hall Suite 300, Pittsburgh, PA, 15213, USA.
authors.forename: Paul A
authors.initials: PA
authors.lastname: Pilkonis
mesh_terms: D000328:Adult; D000067877:Autism Spectrum Disorder / Q000175:diagnosis / Q000523:psychology*; D002648:Child; D004644:Emotions; D005260:Female; D006801:Humans; D008297:Male; D011795:Surveys and Questionnaires / Q000592:standards*
keywords: Autism Inpatient Collection; Autism spectrum disorder (ASD); Emotion regulation; Patient-Reported Outcomes Measurement Information System (PROMIS®); Psychiatric inpatients; Questionnaire development