title: How holistic nursing can enhance the quality of life of children with cystic fibrosis.
abstract: Cystic fibrosis (CF) is one of the most common life-limiting genetic conditions. This article presents a case study of a teenager with one of the rarer presentations of CF. This case study explores the experiences of her and her family. It also discusses the effects of CF on the patient and her family, and how it affects their quality of life and well-being.
authors.affiliation: Bournemouth University.
authors.forename: Kirsty
authors.initials: K
authors.lastname: Tointon
authors.affiliation: Children's and young people's nursing, Bournemouth University.
authors.forename: Jane
authors.initials: J
authors.lastname: Hunt
mesh_terms: D000293:Adolescent; D003550:Cystic Fibrosis / Q000451:nursing* / Q000523:psychology; D005190:Family / Q000523:psychology; D005260:Female; D018939:Holistic Nursing / Q000379:methods*; D006801:Humans; D011788:Quality of Life; D035781:Siblings / Q000523:psychology
keywords: child health; cystic fibrosis; life-limiting illness; paediatrics; respiratory system; well-being