title: Formation and psychometric evaluation of a health-related quality of life instrument for children living with HIV in India.
abstract: In-depth interviews and focus group discussions were conducted to inform the development of an instrument to measure the health-related quality of life of children living with HIV. The QOL-CHAI instrument consists of four generic core scales of the "Pediatric Quality of Life Inventory" and two HIV-targeted scales-"symptoms" and "discrimination." A piloting exercise involving groups of children living with HIV and HIV-negative children born to HIV-infected parents provided evidence for the acceptable psychometric properties and usability of the instrument. It is expected that the QOL-CHAI can serve well as a brief, standardized, and culturally appropriate instrument for assessing health-related quality of life of Indian children living with HIV.
authors.affiliation: 1 Fielding School of Public Health, University of California, Los Angeles, USA.
authors.forename: Aritra
authors.initials: A
authors.lastname: Das
authors.affiliation: 1 Fielding School of Public Health, University of California, Los Angeles, USA.
authors.forename: Roger
authors.initials: R
authors.lastname: Detels
authors.affiliation: 1 Fielding School of Public Health, University of California, Los Angeles, USA.
authors.forename: Abdelmonem A
authors.initials: AA
authors.lastname: Afifi
authors.affiliation: 1 Fielding School of Public Health, University of California, Los Angeles, USA.
authors.forename: Marjan
authors.initials: M
authors.lastname: Javanbakht
authors.affiliation: 1 Fielding School of Public Health, University of California, Los Angeles, USA.
authors.forename: Frank
authors.initials: F
authors.lastname: Sorvillo
authors.affiliation: 2 National Institute of Cholera and Enteric Diseases, India.
authors.forename: Samiran
authors.initials: S
authors.lastname: Panda
mesh_terms: D000293:Adolescent; D002648:Child; D065246:Culturally Competent Care; D005260:Female; D017144:Focus Groups; D015658:HIV Infections / Q000523:psychology; D006305:Health Status Indicators; D006801:Humans; D007194:India; D007407:Interviews as Topic; D008297:Male; D010865:Pilot Projects; D011594:Psychometrics; D036301:Qualitative Research; D011788:Quality of Life; D015203:Reproducibility of Results
keywords: HIV; children; quality of life; reliability; validation study