title: Development of the Head and Neck Cancer Caregiving Task Inventory.
abstract: OBJECTIVE
  Family caregivers provide vital support for patients with head and neck cancer (HNC), yet few studies have focused on HNC caregiving. Our objective was to develop and conduct initial validation of the HNC Caregiving Task Inventory, an instrument to characterize caregiving task burden in the HNC population.
  
  
  METHODS
  This 5-phase instrument development project involved the conceptualization of caregiving task burden (Phase 1), initial instrument development (Phase 2), assessment of content validity through expert panel review (Phase 3), assessment of face validity through family caregiver review (Phase 4), and preliminary validation in a sample of 106 family caregivers (Phase 5).
  
  
  RESULTS
  We identified 11 domains of the HNC caregiving role and caregiving tasks for each domain. In Phase 3, the experts deemed all tasks relevant to HNC family caregiving. No tasks were eliminated and 19 were added. In Phase 4, family caregiver feedback indicated that the tasks were comprehensive and relevant. Wording and formatting changes were made and one task was added. In Phase 5, we evaluated discrimination of responses to derive a final version comprised of 58 tasks in 11 domains. Kuder-Richardson values for domains with ≥3 items ranged from 0.65 to 0.94. Associations were generally high with the Caregiving Burden Scale, moderate with the Caregiver Reaction Assessment and Profile of Mood States-Short Form, and low or non-existent with the Preparedness Scale.
  
  
  CONCLUSIONS
  Convergent and divergent validity were supported. The HNC Caregiving Task Inventory can be used to evaluate caregiving task burden across the treatment trajectory and identify targets for intervention.
authors.affiliation: Boston College William F. Connell School of Nursing, 378C Maloney Hall, 140 Commonwealth Avenue, Chestnut Hill, MA 02467, USA; Yvonne L. Munn Center for Nursing Research, Massachusetts General Hospital, 55 Fruit Street, Boston, MA 02114, USA. Electronic address: stewart.bond@bc.edu.
authors.forename: Stewart M
authors.initials: SM
authors.lastname: Bond
authors.affiliation: College of Nursing, 985330 Nebraska Medical Center, 4111 Dewey Avenue, Omaha, NE 68190-5330, USA. Electronic address: kschumacher@unmc.edu.
authors.forename: Karen
authors.initials: K
authors.lastname: Schumacher
authors.affiliation: 2215 Garland Avenue (Light Hall), Nashville, TN 37232, USA. Electronic address: sherroam@gmail.com.
authors.forename: Amanda
authors.initials: A
authors.lastname: Sherrod
authors.affiliation: 410 Godchaux Hall, 461 21st Avenue South, Nashville, TN 37240, USA. Electronic address: mary.dietrich@vanderbilt.edu.
authors.forename: Mary S
authors.initials: MS
authors.lastname: Dietrich
authors.affiliation: S-2411 Medical Center North, 1161 21st Avenue South, Nashville, TN 37232-2424, USA. Electronic address: nancy.wells@vanderbilt.edu.
authors.forename: Nancy
authors.initials: N
authors.lastname: Wells
authors.affiliation: Department of Otolaryngology - Head and Neck Surgery, 981225 Nebraska Medical Center, Omaha, NE 68198-1225, USA. Electronic address: Robert.lindauIII@nmhs.org.
authors.forename: Robert H
authors.initials: RH
authors.lastname: Lindau
authors.affiliation: 777 Preston Research Building, 2220 Pierce Avenue, Nashville, TN 37232, USA. Electronic address: barbara.murphy@vanderbilt.edu.
authors.forename: Barbara A
authors.initials: BA
authors.lastname: Murphy
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers / Q000193:education*; D005260:Female; D006258:Head and Neck Neoplasms / Q000451:nursing*; D006699:Home Care Services / Q000592:standards*; D006801:Humans; D008297:Male; D008875:Middle Aged; D009859:Oncology Nursing / Q000592:standards*; D017410:Practice Guidelines as Topic; D015203:Reproducibility of Results
keywords: Caregiving burden; Caregiving tasks; Family caregiving; Head and neck cancer; Instrument development; Measurement