title: The use of EORTC measures in daily clinical practice-A synopsis of a newly developed manual.
abstract: Cancer has increasingly become a chronic condition and the routine collection of patient-reported outcomes (PROs) like quality of life is widely recommended for clinical practice. Nonetheless, the successful implementation of PROs is still a major challenge, although common barriers to and facilitators of their beneficial use are well known. To support health care professionals and other stakeholders in the implementation of the EORTC PRO measures, the EORTC Quality of Life Group provides guidance on issues considered important for their use in daily clinical practice. Herein, we present an outline of the newly developed "'Manual for the use of EORTC measures in daily clinical practice", covering the following issues: * a rationale for using EORTC measures in routine care *selection of EORTC measures, timing of assessments, scoring and presentation of results * aspects of a strategic implementation * electronic data assessment and telemonitoring, and * further use of EORTC measures and ethical considerations. Next to an extensive overview of currently available literature, the manual specifically focuses on knowledge about EORTC measures to give evidence-based recommendations whenever possible and to encourage readers and end-users of EORTC measures to contribute to further needed high-quality research. The manual will be accessible on the EORTC Quality of Life Group website's homepage and will be periodically updated to take into account any new knowledge due to medical, technical, regulatory and scientific advances.
authors.affiliation: Department of Psychiatry, Psychotherapy and Psychosomatics, Medical University of Innsbruck, Anichstr. 35, 6020, Innsbruck, Austria. Electronic address: lisa.wintner@tirol-kliniken.at.
authors.forename: Lisa M
authors.initials: LM
authors.lastname: Wintner
authors.affiliation: Department of Psychiatry, Psychotherapy and Psychosomatics, Medical University of Innsbruck, Anichstr. 35, 6020, Innsbruck, Austria. Electronic address: monika.sztankay@tirol-kliniken.at.
authors.forename: Monika
authors.initials: M
authors.lastname: Sztankay
authors.affiliation: Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Plesmanlaan 121, 1066, CX, Amsterdam, The Netherlands. Electronic address: n.aaronson@nki.nl.
authors.forename: Neil
authors.initials: N
authors.lastname: Aaronson
authors.affiliation: Quality of Life Department, EORTC Headquarters, Avenue E. Mounier 83, 1200, Brussels, Belgium. Electronic address: andrew.bottomley@eortc.be.
authors.forename: Andrew
authors.initials: A
authors.lastname: Bottomley
authors.affiliation: Department of Psychiatry, Psychotherapy and Psychosomatics, Medical University of Innsbruck, Anichstr. 35, 6020, Innsbruck, Austria. Electronic address: Johannes.giesinger@i-med.ac.at.
authors.forename: Johannes M
authors.initials: JM
authors.lastname: Giesinger
authors.affiliation: The Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, University of Copenhagen, Bispebjerg Bakke 23, 2400, Copenhagen, Denmark. Electronic address: Mogens.Groenvold@regionh.dk.
authors.forename: Mogens
authors.initials: M
authors.lastname: Groenvold
authors.affiliation: The Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, University of Copenhagen, Bispebjerg Bakke 23, 2400, Copenhagen, Denmark. Electronic address: Morten.Aagaard.Petersen@regionh.dk.
authors.forename: Morten Aa
authors.initials: MA
authors.lastname: Petersen
authors.affiliation: Netherlands Comprehensive Cancer Organisation, Gebouw Janssoenborch, Godebaldkwartier 419, 3511, DT, Utrecht, The Netherlands. Electronic address: l.vandepoll@iknl.nl.
authors.forename: Lonneke
authors.initials: L
authors.lastname: van de Poll-Franse
authors.affiliation: Leeds Institute of Cancer and Pathology, University of Leeds, LS2 9JT, Leeds, UK. Electronic address: g.velikova@leeds.ac.uk.
authors.forename: Galina
authors.initials: G
authors.lastname: Velikova
authors.affiliation: Clinical Psychology, VU University Medical Center, De Boelelaan 1118, 1081, HZ, Amsterdam, The Netherlands. Electronic address: IM.Verdonck@vumc.nl.
authors.forename: Irma
authors.initials: I
authors.lastname: Verdonck-de Leeuw
authors.affiliation: Department of Psychiatry, Psychotherapy and Psychosomatics, Medical University of Innsbruck, Anichstr. 35, 6020, Innsbruck, Austria. Electronic address: bernhard.holzner@tirol-kliniken.at.
authors.forename: Bernhard
authors.initials: B
authors.lastname: Holzner
mesh_terms: D005060:Europe; D006801:Humans; D009369:Neoplasms; D000071066:Patient Reported Outcome Measures; D017410:Practice Guidelines as Topic; D011788:Quality of Life
keywords: Daily clinical routine; EORTC Quality of Life Group; Guideline; Implementation; Manual; Neoplasms; Patient-reported outcomes; Quality of life