title: The Burn Model Systems outcome measures: a content analysis using the International Classification of Functioning, Disability, and Health.
abstract: BACKGROUND
  The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) Burn Injury Model Systems (BMS) is a nationwide database that uses patient-reported outcome measures to collect data. Though the outcome measures demonstrate good psychometric properties, the question remains whether or not these measures collect data that encompass the entire experience of burn patients over time.
  
  
  METHODS
  Each meaningful concept included in the BMS assessments was linked to the International Classification of Functioning, Disability and Health (ICF) in order to classify and describe the content of each measure. The linking was completed by two experienced coders. The perspective of each assessment was also determined.
  
  
  RESULTS
  The body function component was most frequently addressed overall followed by the activities and participation component. The component body structures and environmental factors are not extensively covered in the BMS assessments. ICF chapter and category distribution varied greatly between assessments. The assessments were of the health status perspective.
  
  
  CONCLUSIONS
  This study suggests a need to revisit the item composition of the BMS assessments to more evenly distribute ICF topics and subtopics that are pertinent to burn injury which will ensure a broader but more precise understanding of burn injury recovery. Implications for Rehabilitation A better understanding of the data collected through the Burn Model Systems (BMS) project may contribute to improve data collection tools and ultimately lead to clinical practice innovations and improvements. Clinicians interested in using BMS data for research purposes can better understand what topics are included and excluded in the collection and what perspectives are addressed. This study highlights the need for burn clinicians around the world to lend their expertise to the WHO for the development of a much needed burn injury International Classification of Functioning, Disability and Health Core Set.
authors.affiliation: a Department of Physical Medicine and Rehabilitation , University of Texas Southwestern Medical Center , Dallas , TX , USA.|b Division of Rehabilitation Sciences , University of Texas Medical Branch , Galveston , TX , USA.
authors.forename: Candice L
authors.initials: CL
authors.lastname: Osborne
authors.affiliation: c CHILD (Children, Health, Intervention, Learning and Development) Research Group , Jonkoping University , Jonkoping , Sweden.|d School of Health Sciences , Research School of Health and Welfare at Jonkoping University , Jonkoping , Sweden.
authors.forename: Christina
authors.initials: C
authors.lastname: Petersson
authors.affiliation: b Division of Rehabilitation Sciences , University of Texas Medical Branch , Galveston , TX , USA.
authors.forename: James E
authors.initials: JE
authors.lastname: Graham
authors.affiliation: e Shriners Hospital for Children, Shriners Burn Hospital , Galveston , TX , USA.|f Department of Surgery , University of Texas Medical Branch , Galveston , TX , USA.|g Department of Psychiatry and Behavioral Science , University of Texas Medical Branch , Galveston , TX , USA.
authors.forename: Walter J
authors.initials: WJ
authors.lastname: Meyer
authors.affiliation: h School of Education & FPG Child Development Institute , University of North Carolina , Chapel Hill , NC , USA.
authors.forename: Rune J
authors.initials: RJ
authors.lastname: Simeonsson
authors.affiliation: e Shriners Hospital for Children, Shriners Burn Hospital , Galveston , TX , USA.|f Department of Surgery , University of Texas Medical Branch , Galveston , TX , USA.
authors.forename: Oscar E
authors.initials: OE
authors.lastname: Suman
authors.affiliation: b Division of Rehabilitation Sciences , University of Texas Medical Branch , Galveston , TX , USA.
authors.forename: Kenneth J
authors.initials: KJ
authors.lastname: Ottenbacher
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D002056:Burns / Q000534:rehabilitation*; D003625:Data Collection / Q000379:methods; D016208:Databases, Factual; D004185:Disability Evaluation; D006233:Persons with Disabilities / Q000534:rehabilitation; D005260:Female; D006304:Health Status; D006801:Humans; D057187:Independent Living; D064702:International Classification of Functioning, Disability and Health / Q000706:statistics & numerical data; D008297:Male; D017063:Outcome Assessment, Health Care / Q000379:methods*; D011594:Psychometrics / Q000379:methods; D000066768:Rehabilitation Research
keywords: ICF linking technique; burn assessments; burn injury; burn rehabilitation