title: Social media as a space for support: Young adults' perspectives on producing and consuming user-generated content about diabetes and mental health.
abstract: Social media offer opportunities to both produce and consume content related to health experiences. However, people's social media practices are likely to be influenced by a range of individual, social and environmental factors. The aim of this qualitative study was to explore how engagement with user-generated content can support people with long-term health conditions, and what limits users' adoption of these technologies in the everyday experience of their health condition. Forty semi-structured interviews were conducted with young adults, aged between 18 and 30 years, with experience of diabetes or a common mental health disorder (CMHD). We found that the online activities of these young adults were diverse; they ranged from regular production and consumption ('prosumption') of health-related user-generated content to no engagement with such content. Our analysis suggested three main types of users: 'prosumers'; 'tacit consumers' and 'non-engagers'. A key determinant of participants' engagement with resources related to diabetes and CMHDs in the online environment was their offline experiences of support. Barriers to young adults' participation in online interaction, and sharing of content related to their health experiences, included concerns about compromising their presentation of identity and adherence to conventions about what content is most appropriate for specific social media spaces. Based on our analysis, we suggest that social media do not provide an unproblematic environment for engagement with health content and the generation of supportive networks. Rather, producing and consuming user-generated content is an activity embedded within individuals' specific health experiences and is impacted by offline contexts, as well as their daily engagement with, and expectations, of different social media platforms.
authors.affiliation: MRC/CSO Social and Public Health Sciences Unit, University of Glasgow, 200 Renfield Street, Glasgow G2 3QB, UK. Electronic address: gillian.fergie@glasgow.ac.uk.
authors.forename: Gillian
authors.initials: G
authors.lastname: Fergie
authors.affiliation: MRC/CSO Social and Public Health Sciences Unit, University of Glasgow, 200 Renfield Street, Glasgow G2 3QB, UK. Electronic address: kate.hunt@glasgow.ac.uk.
authors.forename: Kate
authors.initials: K
authors.lastname: Hunt
authors.affiliation: MRC/CSO Social and Public Health Sciences Unit, University of Glasgow, 200 Renfield Street, Glasgow G2 3QB, UK. Electronic address: shona.hilton@glasgow.ac.uk.
authors.forename: Shona
authors.initials: S
authors.lastname: Hilton
mesh_terms: D000293:Adolescent; D000328:Adult; D003920:Diabetes Mellitus / Q000523:psychology; D005260:Female; D006801:Humans; D008297:Male; D001523:Mental Disorders / Q000523:psychology; D010379:Peer Group; D010465:Perception; D036301:Qualitative Research; D061108:Social Media / Q000639:trends*; D012944:Social Support
keywords: Diabetes; E-health; Health experiences; Mental health; Social media; Social support; UK