title: Health professionals' perceptions about the decision-making process in the care of pediatric patients.
abstract: OBJECTIVE
  To evaluate the perceptions of physicians, nurses and nursing technicians of their participation in the decision-making process surrounding life support limitation in terminally ill pediatric patients, with comparisons by professional category.
  
  
  METHODS
  A cross-sectional study was conducted in the pediatric intensive care unit of a tertiary public university hospital with the participation of physicians, nurses and nursing technicians. The MacArthur Admission Experience Survey Voice Scale was used to assess and quantify the perceptions of professionals who assisted 17 pediatric patients with life support limitation within 24 hours after the outcome of each patient was determined. All professionals working in the unit (n = 117) who were potentially eligible for the study received a free and informed consent form prior to the occurrence of the cases studied.
  
  
  RESULTS
  Study participants included 25/40 (62.5%) physicians, 10/17 (58.8%) nurses and 41/60 (68.3%) nursing technicians, representing 65% of the eligible professionals identified. The questionnaire return rate was higher for physicians than technicians (p = 0.0258). A perceived lack of voice was reported in all three professional categories at varying rates that were lower for physicians than for nurses and nursing technicians (p < 0.00001); there was no difference between the latter (p = 0.7016). In the three professional categories studied, three subscale items were reported. For two of the three statements, there were significant differences between physicians and nurses (p = 0.004) and between physicians and nursing technicians (p = 0.001). For one of the statements, there was no difference among the three professional categories.
  
  
  CONCLUSIONS
  Respondents perceived a lack of voice in the decision-making process at varying rates across the three categories of studied professionals who assisted terminally ill pediatric patients with life support limitation, with physicians expressing lowered rates of perceived coercion.
authors.affiliation: Faculdade de Medicina, Universidade Federal do Rio Grande do Sul, Porto Alegre, RS, Brazil.
authors.forename: Eliana de Andrade
authors.initials: EA
authors.lastname: Trotta
authors.affiliation: Unidade de Terapia Intensiva Pediátrica, Hospital de Clínicas de Porto Alegre, Porto Alegre, RS, Brasil.
authors.forename: Fernanda Cristina
authors.initials: FC
authors.lastname: Scarpa
authors.affiliation: Unidade de Terapia Intensiva Pediátrica, Hospital de Clínicas de Porto Alegre, Porto Alegre, RS, Brasil.
authors.forename: Michel George El
authors.initials: MG
authors.lastname: Halal
authors.affiliation: Serviço de Bioética, Hospital de Clínicas de Porto Alegre, Porto Alegre, RS, Brasil.
authors.forename: José Roberto
authors.initials: JR
authors.lastname: Goldim
authors.affiliation: Unidade de Terapia Intensiva Pediátrica, Hospital de Clínicas de Porto Alegre, Porto Alegre, RS, Brasil.
authors.forename: Paulo Roberto Antonacci
authors.initials: PR
authors.lastname: Carvalho
mesh_terms: D001291:Attitude of Health Personnel; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D003657:Decision Making; D005260:Female; D006801:Humans; D007223:Infant; D015278:Intensive Care Units, Pediatric / Q000458:organization & administration; D008297:Male; D008505:Medical Staff, Hospital / Q000523:psychology* / Q000706:statistics & numerical data; D009728:Nursing Assistants / Q000523:psychology* / Q000706:statistics & numerical data; D009741:Nursing Staff, Hospital / Q000523:psychology* / Q000706:statistics & numerical data; D010465:Perception; D013727:Terminal Care / Q000379:methods; D019452:Terminally Ill