title: Electronic multidimensional health assessment questionnaire (eMDHAQ): past, present and future of a proposed single data management system for clinical care, research, quality improvement, and monitoring of long-term outcomes.
abstract: An MDHAQ/RAPID3 (multidimensional health assessment questionnaire/routine assessment of patient index data) was developed from the HAQ over 25 years, based on observations made from completion by every patient (with all diagnoses) at every routine rheumatology visit since 1980. Modification of the HAQ was viewed as similar to improving a laboratory test, with a primary focus on clinical value for diagnosis, prognosis, and/or management, as well as feasibility for minimal effect on clinical workflow. Rigorous attention, was also directed to validity, reliability, other methodologic and technological considerations, but after clinical value and feasibility were established. A longer "intake" MDHAQ was introduced for new patients to record a complete past medical history - illnesses, hospitalisations, surgeries, allergies, family history, social history and medications. MDHAQ scales not found on the HAQ record complex activities, sleep quality, anxiety, depression, self-report joint count, fatigue, symptom checklist, morning stiffness, exercise status, recent medical history, social history and demographic data within 2 pages on one sheet of paper. An electronic eMDHAQ/RAPID3 provides a similar platform to pool data from multiple sites. A patient may be offered a patient-administered, password-protected, secure, web site, to store the medical history completed on the eMDHAQ. This eMDHAQ would allow a patient to complete a single general medical history questionnaire rather than different intake questionnaires in different medical settings. The eMDHAQ would be available for updates and correction by the patient for future visits, regardless of electronic medical record (EMR). The eMDHAQ is designed to interface with an EMR using HL7 (health level seven) and SMART (Substitutable Medical Apps, Reusable Technology) on FHIR (Fast Healthcare Interoperability Resources), although implementation requires collaboration with the EMR vendor. Advanced features include reports for the physician formatted as a medical record note of past medical history for entry into any EMR without typing or dictation, and a periodic "tickler" function to monitor long-term outcomes with minimal effort of the physician and staff. Nonetheless, clinical use of an eMDHAQ should be guided primarily not by the latest technology, but by value and feasibility in clinical care, the same principles that guided development of the pencil-and-paper MDHAQ/RAPID3.
authors.affiliation: Department of Internal Medicine, Division of Rheumatology, Rush University Medical Center, Chicago, IL, USA. tedpincus@gmail.com.
authors.forename: Theodore
authors.initials: T
authors.lastname: Pincus
mesh_terms: D001172:Arthritis, Rheumatoid / Q000175:diagnosis* / Q000503:physiopathology / Q000523:psychology / Q000628:therapy; D057189:Checklist; D003695:Delivery of Health Care / Q000639:trends; D004059:Diffusion of Innovation; D004185:Disability Evaluation; D057286:Electronic Health Records / Q000266:history / Q000639:trends*; D005544:Forecasting; D006302:Health Services Research / Q000639:trends; D006304:Health Status; D006305:Health Status Indicators; D049673:History, 20th Century; D049674:History, 21st Century; D006801:Humans; D000071066:Patient Reported Outcome Measures; D011237:Predictive Value of Tests; D011379:Prognosis; D058996:Quality Improvement / Q000266:history / Q000639:trends*; D019984:Quality Indicators, Health Care / Q000266:history / Q000639:trends*; D015203:Reproducibility of Results; D012219:Rheumatology / Q000266:history / Q000639:trends*; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D017216:Telemedicine / Q000266:history / Q000639:trends*; D013997:Time Factors