title: Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice).
abstract: The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.
authors.affiliation: Division of Nursing, Midwifery and Social Work, University of Manchester, UK.
authors.forename: Caroline M
authors.initials: CM
authors.lastname: Swarbrick
authors.affiliation: Greater Manchester West Mental Health NHS Foundation Trust, UK.
authors.forename: Open
authors.initials: O
authors.lastname: Doors
authors.affiliation: Alzheimer Scotland, UK.
authors.affiliation: Pennine Care NHS Foundation Trust, UK.
authors.lastname: Educate
authors.affiliation: Division of Nursing, Midwifery and Social Work, University of Manchester, UK.
authors.forename: Katie
authors.initials: K
authors.lastname: Davis
authors.affiliation: Division of Nursing, Midwifery and Social Work, University of Manchester, UK; Greater Manchester West Mental Health NHS Foundation Trust, UK.
authors.forename: John
authors.initials: J
authors.lastname: Keady
mesh_terms: D055812:Community-Based Participatory Research; D003299:Cooperative Behavior; D003704:Dementia / Q000523:psychology; D006801:Humans; D033181:Information Dissemination; D009936:Organizational Innovation; D010358:Patient Participation; D012107:Research Design; D006113:United Kingdom; D014495:Universities
keywords: co-production; co-research; dementia; engagement; involvement