title: Family Members, Transplantation Candidates, and Patients Who Underwent Liver Transplantation Had Insufficient Information About the Procedure.
abstract: BACKGROUND
  Adherence to treatment is essential for a successful liver transplantation (LT) because LT requires information, abilities, and competencies of patients and family members.
  
  
  OBJECTIVE
  This study sought to identify whether the information received about the LT process was enough for either patients or family members who attended a liver transplant center in a school hospital.
  
  
  METHODS
  This was a transversal study using questionnaires to verify received information on LT. It included 50 patients on the waiting list for LT, 50 transplanted patients, and 50 family members.
  
  
  RESULTS
  There was a prevalence of men (82%) among patients, age range from 19 to 67 years (average: 46.87 ± 10.99), and of women (74%) among family members, age range from 18 to 80 years (average: 43.5 ± 11.77). The majority of subjects (88%) had a low education level. The most frequent etiology of hepatic cirrhosis was viral hepatitis associated with alcohol. A significant number of the listed and transplanted patients as well as all family members reported insufficient information about the process of the transplantation. The kind of insufficient information varied according to the period of treatment. The best way to obtain information, as reported by patients and family members, was a combination of oral and written information.
  
  
  CONCLUSIONS
  Our data show the need for improvement in the means of delivering information to patients and family members, and an explanatory manual was created from this study.
authors.affiliation: Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil. Electronic address: Helen.felicio@gmail.com.
authors.forename: H C C
authors.initials: HC
authors.lastname: de Felício
authors.affiliation: Surgery and Liver, Pancreas and Intestine Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: R C A M
authors.initials: RC
authors.lastname: da Silva
authors.affiliation: Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: A M
authors.initials: AM
authors.lastname: da Costa
authors.affiliation: Surgery and Liver, Pancreas and Intestine Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: P C
authors.initials: PC
authors.lastname: Arroyo
authors.affiliation: Surgery and Liver, Pancreas and Intestine Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: W J
authors.initials: WJ
authors.lastname: Duca
authors.affiliation: Surgery and Liver, Pancreas and Intestine Transplant Unit of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: R F
authors.initials: RF
authors.lastname: da Silva
authors.affiliation: Psychology Service of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: R
authors.initials: R
authors.lastname: Dos Santos
authors.affiliation: Liver Transplant Team of Hospital de Base, Funfarme/Faculty of Medicine of São José do Rio Preto, São José do Rio Preto, São Paulo, Brazil.
authors.forename: E T
authors.initials: ET
authors.lastname: Miyazaki
authors.affiliation: Psychiatry and Psychology Department and Pschology and Health Laboratory of the Medical School of São José do Rio Preto, Faculty of Medicine of São José do Rio Preto, São Paulo, Brazil.
authors.forename: N M
authors.initials: NM
authors.lastname: Domingos
authors.affiliation: Psychiatry and Psychology Department and Pschology and Health Laboratory of the Medical School of São José do Rio Preto, Faculty of Medicine of São José do Rio Preto, São Paulo, Brazil.
authors.forename: M C O S
authors.initials: MC
authors.lastname: Miyazaki
mesh_terms: D022126:Access to Information; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D004522:Educational Status; D005190:Family; D005260:Female; D006525:Hepatitis, Viral, Human / Q000150:complications; D006801:Humans; D008103:Liver Cirrhosis / Q000209:etiology / Q000601:surgery*; D008104:Liver Cirrhosis, Alcoholic / Q000601:surgery; D016031:Liver Transplantation; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D011795:Surveys and Questionnaires; D066027:Transplant Recipients; D014850:Waiting Lists; D055815:Young Adult