title: Diverse Families' Experiences with HPV Vaccine Information Sources: A Community-Based Participatory Approach.
abstract: Current sources of publicly available human papillomavirus (HPV) information may not adequately meet the needs of diverse families. This study sought to describe associations between sociodemographic and acculturation factors, and sources of HPV information among diverse parents and caregivers. Community organizations purposively recruited participants from African American, African refugee, Hispanic/Latino, American Indian, and Native Hawaiian and Pacific Islander communities for a 21-item survey (N = 228). Ninenty-three of these participants also participated in ten focus groups conducted in three languages. Descriptive statistics and Fishers' Exact Test for Count Data were produced and triangulated with focus group data to provide additional context. Overall, HPV vaccine awareness and knowledge in the five communities was low. This study found that a greater proportion of lower-acculturated participants had heard of HPV through personal networks (foreign-born = 50 % vs US-born = 30 %, p < 0.05; medium acculturation = 60 % vs high acculturation = 26 %, p = 0.01), while greater proportions of US-born participants reported media sources (49 % vs foreign-born = 29 %, p < 0.05). Across communities, healthcare system sources were described as important and preferred sources of HPV information. Hearing about the HPV vaccine from healthcare settings was significantly associated with increased accuracy in HPV vaccine knowledge (p < 0.05). Communities described a need for more in-depth information about the HPV vaccine, and culturally and linguistically appropriate educational materials. Culturally-competent delivery of HPV information through the healthcare system sources may be important in improving knowledge and acceptability of the HPV vaccine among diverse families.
authors.affiliation: Cancer Control and Population Sciences, Huntsman Cancer Institute, 2000 Circle of Hope, Room 4127, Salt Lake City, UT, 84112, USA. djin.lai@hci.utah.edu.|College of Nursing, University of Utah, Salt Lake City, UT, USA. djin.lai@hci.utah.edu.
authors.forename: Djin
authors.identifier: http://orcid.org/0000-0001-5247-0010
authors.initials: D
authors.lastname: Lai
authors.affiliation: Cancer Control and Population Sciences, Huntsman Cancer Institute, 2000 Circle of Hope, Room 4127, Salt Lake City, UT, 84112, USA.
authors.forename: Julia
authors.initials: J
authors.lastname: Bodson
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|Calvary Baptist Church, Salt Lake City, UT, USA.
authors.forename: France A
authors.initials: FA
authors.lastname: Davis
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|Calvary Baptist Church, Salt Lake City, UT, USA.
authors.forename: Doriena
authors.initials: D
authors.lastname: Lee
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|National Tongan American Society, Salt Lake City, UT, USA.
authors.forename: Fahina
authors.initials: F
authors.lastname: Tavake-Pasi
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|Urban Indian Center, Salt Lake City, UT, USA.
authors.forename: Edwin
authors.initials: E
authors.lastname: Napia
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|Hispanic Healthcare Task Force, Salt Lake City, UT, USA.
authors.forename: Jeannette
authors.initials: J
authors.lastname: Villalta
authors.affiliation: Community Faces of Utah, Salt Lake City, UT, USA.|Best of Africa, West Valley, UT, USA.
authors.forename: Valentine
authors.initials: V
authors.lastname: Mukundente
authors.affiliation: Cancer Control and Population Sciences, Huntsman Cancer Institute, 2000 Circle of Hope, Room 4127, Salt Lake City, UT, 84112, USA.
authors.forename: Ryan
authors.initials: R
authors.lastname: Mooney
authors.affiliation: Community Outreach and Collaboration Core, Center for Clinical and Translational Science, School of Medicine, University of Utah, Salt Lake City, UT, USA.
authors.forename: Heather
authors.initials: H
authors.lastname: Coulter
authors.affiliation: Community Outreach and Collaboration Core, Center for Clinical and Translational Science, School of Medicine, University of Utah, Salt Lake City, UT, USA.|Department of Human Genetics, School of Medicine, University of Utah, Salt Lake City, UT, USA.
authors.forename: Louisa A
authors.initials: LA
authors.lastname: Stark
authors.affiliation: College of Nursing, University of Utah, Salt Lake City, UT, USA.|Community Faces of Utah, Salt Lake City, UT, USA.|Hispanic Healthcare Task Force, Salt Lake City, UT, USA.
authors.forename: Ana C
authors.initials: AC
authors.lastname: Sanchez-Birkhead
authors.affiliation: Cancer Control and Population Sciences, Huntsman Cancer Institute, 2000 Circle of Hope, Room 4127, Salt Lake City, UT, 84112, USA.|College of Nursing, University of Utah, Salt Lake City, UT, USA.
authors.forename: Deanna
authors.initials: D
authors.lastname: Kepka
mesh_terms: D000293:Adolescent; D000328:Adult; D000349:Africa / Q000208:ethnology; D001741:Black or African American / Q000523:psychology; D000368:Aged; D055812:Community-Based Participatory Research; D005260:Female; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice / Q000208:ethnology; D006630:Hispanic or Latino / Q000523:psychology; D006801:Humans; D007198:Indians, North American / Q000523:psychology; D008297:Male; D008875:Middle Aged; D044468:Native Hawaiian or Pacific Islander / Q000523:psychology; D053918:Papillomavirus Vaccines / Q000627:therapeutic use*; D010353:Patient Education as Topic; D012036:Refugees / Q000523:psychology; D002583:Uterine Cervical Neoplasms / Q000517:prevention & control / Q000523:psychology; D055815:Young Adult
chemical_list: D053918:Papillomavirus Vaccines
keywords: Adolescent health; Community-based participatory research; Consumer health information; Culturally competent care; Papillomavirus vaccines