title: Electronic assessment of disease activity and functioning in patients with axial spondyloarthritis: challenges and unmet needs.
abstract: The dynamic clinical course of rheumatic conditions indicates a need for regular collection of information on health status to monitor disease activity and functional status. Patient-reported outcomes measures (PROMs) are playing a key role in the evaluation of symptoms and functioning and health, and are crucial in the initiation of treatment in those patients. In recent years, electronic assessments of PROMs (so called ePROMs) have been introduced. This report summarises some of the rationale, opportunities, and results using ePROMs in patients with spondyloarthritis (SpA).
authors.affiliation: Rheumazentrum Ruhrgebiet, Herne, Germany. uta.kiltz@vincenzgruppe.de.
authors.forename: Uta
authors.initials: U
authors.lastname: Kiltz
authors.affiliation: Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Center, Maastricht, The Netherlands.
authors.forename: Annelies
authors.initials: A
authors.lastname: Boonen
authors.affiliation: Rheumazentrum Ruhrgebiet, Herne, Germany.
authors.forename: Juergen
authors.initials: J
authors.lastname: Braun
authors.affiliation: Policlinic for Rheumatology and Hiller Research Centre for Rheumatology, Medical Faculty, Heinrich-Heine-University, Duesseldorf, Germany.
authors.forename: Jutta G
authors.initials: JG
authors.lastname: Richter
mesh_terms: D057189:Checklist; D004059:Diffusion of Innovation; D004185:Disability Evaluation; D057286:Electronic Health Records; D006301:Health Services Needs and Demand / Q000639:trends*; D006304:Health Status; D006305:Health Status Indicators; D006801:Humans; D008490:Medical Informatics / Q000639:trends*; D020380:Needs Assessment / Q000639:trends; D000071066:Patient Reported Outcome Measures; D011237:Predictive Value of Tests; D011379:Prognosis; D015203:Reproducibility of Results; D012219:Rheumatology / Q000639:trends*; D012720:Severity of Illness Index; D025241:Spondylarthritis / Q000175:diagnosis* / Q000503:physiopathology / Q000523:psychology / Q000628:therapy; D017216:Telemedicine / Q000639:trends*