title: Underserved Patients Seeking Care for Ventral Hernias at a Safety Net Hospital: Impact on Quality of Life and Expectations of Treatment.
abstract: The purpose of this study was to identify issues important to patients in their decision-making, expectations, and satisfaction when seeking treatment for a ventral hernia.
  
  
  
  An exploratory qualitative study was conducted of adult patients with ventral hernias seeking care at a safety-net hospital. Two semi-structured interviews were conducted with each patient: before and 6 months after surgical consultation. Interviews were audiotaped, transcribed, and coded using latent content analysis until data saturation was achieved.
  
  
  
  Of patients completing an initial interview (n = 30), 27 (90%) completed follow-up interviews. Half of the patients were Spanish-speaking, one-third had a previous ventral hernia repair, and two-thirds underwent initial nonoperative management after surgical consultation. Patient-described factors guiding management decisions included impact on quality of life, primarily pain and limited function; overwhelming challenges to meeting surgical criteria, primarily obesity; and assuming responsibility to avoid recurrence. Patients were uninformed regarding potential poor outcomes and contributing factors, even among patients with a previous ventral hernia repair, with most attributing recurrence to inadequate self-management.
  
  
  
  Understanding patients' perspective is crucial to engaging them as stakeholders in their care, addressing their concerns, and improving clinical and patient-centered outcomes. Patient reports suggest how care can be improved through developing more effective strategies for addressing patients' concerns during nonoperative management, preoperative risk reduction strategies that are sensitive to their sociodemographic characteristics, treatment plans that harness patients' willingness for self-management, and patient education and decision-making tools.
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX. Electronic address: Zeinab.alawadi@uth.tmc.edu.
authors.forename: Zeinab M
authors.initials: ZM
authors.lastname: Alawadi
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Isabel M
authors.initials: IM
authors.lastname: Leal
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Juan R
authors.initials: JR
authors.lastname: Flores
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Julie L
authors.initials: JL
authors.lastname: Holihan
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Blake E
authors.initials: BE
authors.lastname: Henchcliffe
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Thomas O
authors.initials: TO
authors.lastname: Mitchell
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Tien C
authors.initials: TC
authors.lastname: Ko
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Mike K
authors.initials: MK
authors.lastname: Liang
authors.affiliation: Department of Surgery, University of Texas Health Sciences Center, Houston, TX.
authors.forename: Lillian S
authors.initials: LS
authors.lastname: Kao
mesh_terms: D000368:Aged; D003657:Decision Making; D005260:Female; D005500:Follow-Up Studies; D006555:Hernia, Ventral / Q000523:psychology / Q000601:surgery*; D059685:Herniorrhaphy; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010342:Patient Acceptance of Health Care / Q000523:psychology*; D010358:Patient Participation; D017060:Patient Satisfaction; D036301:Qualitative Research; D011788:Quality of Life; D064876:Safety-net Providers; D013781:Texas; D035862:Vulnerable Populations / Q000523:psychology*