title: Research needs and priorities for transition and employment in autism: Considerations reflected in a "Special Interest Group" at the International Meeting for Autism Research.
abstract: Research related to supports for adults with autism spectrum disorder (ASD) is under-developed. As an example, system and service development to support successful transition to adulthood and meaningful vocation for adults has received relatively little research scrutiny until recently, with practitioners and program developers lacking evidenceinformed approaches guiding service delivery. A Special Interest Group (SIG) was convened at the International Meeting for Autism Research in May 2014 and May 2015, with a focus on transitional and vocational issues in ASD. The SIG consisted of 120 international delegates, including self-advocates, family members, researchers, program and policy developers, practitioners, and interdisciplinary ASD trainees. Following a summary of the literature, subgroups of attendees were convened in smaller groups to identify research needs and priorities. International researchers facilitated these discussions with notes taken in each subgroup. Using a qualitative analytic approach, key themes across groups were identified. These key themes, outlined in this paper, address the identified need to (a) advance research capacity; (b) build employer capacity relative to employing persons with ASD; and (c) enhance support resources for adults with ASD and their families. Heightened research activity guiding practice and policy, community/employer engagement, and person and family-centered services were recommended. Implications for advancement and implementation are offered. Autism Res 2017, 10: 15-24. © 2016 International Society for Autism Research, Wiley Periodicals, Inc.
authors.affiliation: Faculty of Social Work, University of Calgary, Calgary, Alberta, Canada.
authors.forename: David B
authors.initials: DB
authors.lastname: Nicholas
authors.affiliation: Department of Occupational Therapy, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Sandra
authors.initials: S
authors.lastname: Hodgetts
authors.affiliation: Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Lonnie
authors.initials: L
authors.lastname: Zwaigenbaum
authors.affiliation: Waisman Center, University of Wisconsin-Madison, Madison, Wisconsin.
authors.forename: Leann E
authors.initials: LE
authors.lastname: Smith
authors.affiliation: Dornsife School of Public Health, Drexel University, Philadelphia, Pennsylvania.
authors.forename: Paul
authors.initials: P
authors.lastname: Shattuck
authors.affiliation: Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, UK.
authors.forename: Jeremy R
authors.initials: JR
authors.lastname: Parr
authors.affiliation: Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Olivia
authors.initials: O
authors.lastname: Conlon
authors.affiliation: Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Tamara
authors.initials: T
authors.lastname: Germani
authors.affiliation: The Ability Hub, Calgary, Alberta, Canada.
authors.forename: Wendy
authors.initials: W
authors.lastname: Mitchell
authors.affiliation: Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Lori
authors.initials: L
authors.lastname: Sacrey
authors.affiliation: Graduate Program in Health and Rehabilitation Sciences, Western University, London, Ontario, Canada.
authors.forename: Margot E
authors.initials: ME
authors.lastname: Stothers
mesh_terms: D000328:Adult; D001321:Autistic Disorder / Q000534:rehabilitation*; D004651:Employment; D006801:Humans; D038622:Internationality; D012106:Research
keywords: adolescents; adults; autism spectrum disorder; multistakeholder perspective; qualitative research; transitional issues; vocational/labor force participation