title: Managing sickle cell carrier results generated through newborn screening in Ontario: a precedent-setting policy story.
authors.affiliation: Child Health Evaluative Sciences Program, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada.|Institute of Health Policy Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
authors.forename: Robin Z
authors.initials: RZ
authors.lastname: Hayeems
authors.affiliation: Division of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Charlotte
authors.identifier: 0000-0001-9059-3652
authors.initials: C
authors.lastname: Moore Hepburn
authors.affiliation: Newborn Screening Ontario, Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.|Department of Pediatrics, Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
authors.forename: Pranesh
authors.initials: P
authors.lastname: Chakraborty
authors.affiliation: Division of Hematology, The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Isaac
authors.initials: I
authors.lastname: Odame
authors.affiliation: Division of Pediatric Medicine, The Hospital for Sick Children, Toronto, Ontario, Canada.
authors.forename: Joe
authors.initials: J
authors.lastname: Clarke
authors.affiliation: Institute of Health Policy Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
authors.forename: Fiona A
authors.identifier: 0000-0003-4953-6255
authors.initials: FA
authors.lastname: Miller
authors.affiliation: Institute of Health Policy Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
authors.forename: Adalsteinn D
authors.initials: AD
authors.lastname: Brown
mesh_terms: D000755:Anemia, Sickle Cell / Q000175:diagnosis / Q000235:genetics; D005820:Genetic Testing / Q000941:ethics* / Q000331:legislation & jurisprudence / Q000379:methods; D006291:Health Policy; D006801:Humans; D033162:Incidental Findings; D007231:Infant, Newborn; D015997:Neonatal Screening / Q000941:ethics / Q000379:methods*; D009864:Ontario