title: [Disability, inability and vulnerability: on ableism or the pre-eminence of ableist and biomedical approaches of the Human Subjects Ethics Committee of UFSC].
abstract: Anthropology has increasingly questioned the hegemony of biomedical knowledge in ethical review processes of social research projects prevailing in Brazil, which was governed until 2012 by the Human Research Ethics Committee of each institution under the auspices of the National Research Ethics Commission (CONEP). This was mandated through Resolution No. 196/1996 prevailing in 2012 when this field research was conducted. The scope of this study is to recount and reflect upon the barriers to obtaining approval in 2012 for my master's research project from the Human Research Ethics Committee of the Federal University of Santa Catarina (CEP/UFSC) in Florianopolis. In this ethnographic experience, in the light of Crip theory, I observed how the "disability," "vulnerability" and "inability" categories are articulated to reveal the ableism and the primacy of the biomedical model in the case of an ethics review at UFSC regarding the participation and legal capacity of persons with disabilities as subjects of research.
authors: Núcleo de Identidades de Gênero e Subjetividades, Programa de Pós-Graduação em Antropologia Social, Universidade Federal de Santa Catarina. Campus Universitário, Pantanal. 88040-900 Florianópolis SC Brasil. anahigm75@gmail.com.
authors: Anahi Guedes de
authors: AG
authors: Mello
mesh_terms: D026688:Bioethical Issues; D001938:Brazil; D006233:Persons with Disabilities; D028744:Ethics Committees, Research; D032984:Ethics, Research; D006801:Humans; D011287:Prejudice; D014495:Universities; D035862:Vulnerable Populations