title: Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease.
abstract: This study evaluated the feasibility of a group self-management intervention, the well-established Stanford Chronic Disease Self-Management Program (CDSMP), for adolescents and young adults (AYA) with sickle cell disease (SCD).
  
  
  
  A total of 22 AYA participants with SCD, ages 16-24 years, completed self-efficacy and quality of life measures before the CDSMP, after, and 3 and 6 months later.
  
  
  
  This AYA cohort showed significant improvements in self-efficacy (primary outcome) after the intervention. Analyses of follow-up data revealed a medium effect of the CDSMP on patient activation 3 months post although this was not sustained. Participants were highly satisfied, but only 64% completed the program.
  
  
  
  This study demonstrates that the CDSMP is acceptable and has the ability to improve self-efficacy. Additional research is needed to determine feasibility and evaluate health outcomes for AYA with SCD.
authors: Division of Behavioral Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of Pediatrics, James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio. Electronic address: lori.crosby@cchmc.org.
authors: Lori E
authors: LE
authors: Crosby
authors: Division of Behavioral Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
authors: Naomi E
authors: NE
authors: Joffe
authors: Division of Behavioral Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
authors: James
authors: J
authors: Peugh
authors: Division of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
authors: Russell E
authors: RE
authors: Ware
authors: Department of Pediatrics, James M. Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Division of Adolescent Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.
authors: Maria T
authors: MT
authors: Britto
mesh_terms: D000293:Adolescent; D000328:Adult; D000755:Anemia, Sickle Cell / Q000628:therapy*; D001294:Attitude to Health; D002908:Chronic Disease; D015331:Cohort Studies; D005240:Feasibility Studies; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D008297:Male; D010865:Pilot Projects; D011788:Quality of Life / Q000523:psychology; D000073278:Self-Management / Q000379:methods* / Q000523:psychology; D055815:Young Adult
keywords: Adolescents; Chronic illness; Intervention; Pediatric hematology; Self-management; Sickle cell disease; Young adults