title: Realities of environmental toxicity and their ramifications for community engagement.
abstract: Research on community responses to environmental toxicity has richly described the struggles of citizens to identify unrecognized toxins, collect their own environmental health facts, and use them to lobby authorities for recognition and remediation. Much of this literature is based on an empiricist premise: it is concerned with exploring differences in how laypeople and experts perceive what is presumed to be a singular toxic reality that preexists these varying perspectives. Here, we seek to reexamine this topic by shifting the focus from facts to facticity-that is, by exploring the many types of knowledge that communities develop about toxicity and how these knowledges articulate with the ideas of scientific and governmental authorities about what kinds of information are valid bases for policymaking. In making this shift, we are influenced by work in semiotic anthropology and science and technology studies (STS), which emphasizes that lived experience generates distinct realities rather than different perceptions of the same underlying state. Using this framework, we present an analysis of oral history interviews conducted in 2013-14 in the small American town of Ambler, Pennsylvania. Part of Ambler's legacy as a nineteenth- and twentieth-century center of asbestos manufacture is that it is home to two massive asbestos-containing waste sites, one of which was being remediated by the Environmental Protection Agency (EPA) at the time of this study. Our interviews demonstrate that even asbestos, a toxin with a well-established public narrative, is a fundamentally different object for different members of the Ambler community. For many of these individuals, the epistemology and practices of the EPA are incongruent with or tangential to their toxicity-related experiences and their consequent concerns for the future. As such, our findings suggest caution in framing the community engagement efforts of environmental health agencies primarily as facilitations of citizen science; this approach does not acknowledge the multiplicity of toxic realities.
authors: Department of Anesthesiology and Critical Care, Perelman School of Medicine, University of Pennsylvania, 3400 Spruce St., Philadelphia, PA 19104, USA. Electronic address: Justin.Clapp@uphs.upenn.edu.
authors: Justin T
authors: JT
authors: Clapp
authors: Chemical Heritage Foundation, Institute for Research, 315 Chestnut St., Philadelphia, PA 19106, USA.
authors: Jody A
authors: JA
authors: Roberts
authors: Chemical Heritage Foundation, Center for Applied History, 315 Chestnut St., Philadelphia, PA 19106, USA.
authors: Britt
authors: B
authors: Dahlberg
authors: Chemical Heritage Foundation, Center for Oral History, 315 Chestnut St., Philadelphia, PA 19106, USA.
authors: Lee Sullivan
authors: LS
authors: Berry
authors: Department of Family Medicine and Community Health, Perelman School of Medicine, University of Pennsylvania, 3400 Spruce St., Philadelphia, PA 19104, USA.
authors: Lisa M
authors: LM
authors: Jacobs
authors: Department of Environmental and Occupational Medicine, Perelman School of Medicine, University of Pennsylvania, 3400 Spruce St., Philadelphia, PA 19104, USA.
authors: Edward A
authors: EA
authors: Emmett
authors: Department of Family Medicine and Community Health, Perelman School of Medicine, University of Pennsylvania, 3400 Spruce St., Philadelphia, PA 19104, USA.
authors: Frances K
authors: FK
authors: Barg
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D003256:Community Participation / Q000523:psychology* / Q000706:statistics & numerical data; D004785:Environmental Pollutants / Q000009:adverse effects / Q000633:toxicity*; D005260:Female; D015386:Hazardous Substances / Q000009:adverse effects / Q000633:toxicity; D006801:Humans; D008297:Male; D008875:Middle Aged; D010414:Pennsylvania; D011634:Public Health / Q000592:standards / Q000706:statistics & numerical data; D018570:Risk Assessment / Q000592:standards
chemical_list: D004785:Environmental Pollutants; D015386:Hazardous Substances
keywords: Asbestos; Citizen science; Community engagement; Environmental toxicity; Ontological turn; Risk; Semiotic anthropology; USA