title: Types of support to families of children with disabilities and their influence on family quality of life.
abstract: Different types of supports to families are among the aspects that contribute to family quality of life. This study aims to identify the types of supports that families of children with disabilities, users of early intervention services, consider relevant and how public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Sixteen mothers and four fathers were interviewed and their contributions were analyzed using discourse analysis. The importance of family support and networks of parents of children with disabilities were highlighted. The role of the supports by health professionals is also crucial and, therefore, cuts in public health and social services have exacerbated the inequity in health. In practice this is highlighted in relation to those who can and the ones who cannot afford additional services. Other approaches in the support to families are suggested.
authors: Programa de doctorado en Investigación e Innovación en Educación, Departamento de Didácticas Específicas y Psicología de la Educación, Universidad de las Islas Baleares. Cra. de Valldemossa km 7.5. Palma Illes Balears Espanha. bpaz@uib.es.
authors: Clarissa Altina Cunha de
authors: CA
authors: Araújo
authors: Programa de doctorado en Investigación e Innovación en Educación, Departamento de Didácticas Específicas y Psicología de la Educación, Universidad de las Islas Baleares. Cra. de Valldemossa km 7.5. Palma Illes Balears Espanha. bpaz@uib.es.
authors: Berta
authors: B
authors: Paz-Lourido
authors: Departamento de Didácticas Específicas y Psicología de la Educación, Universidad de las Islas Baleares. Palma Illes Balears Espanha.
authors: Sebastià Verger
authors: SV
authors: Gelabert
mesh_terms: D002648:Child; D019988:Children with Disabilities; D005190:Family; D005260:Female; D006801:Humans; D008297:Male; D011788:Quality of Life; D012944:Social Support