title: Developing an Easy Read Version of the Adult Social Care Outcomes Toolkit (ASCOT).
abstract: BACKGROUND
  This study reports the experiences of developing and pre-testing an Easy Read version of the Adult Social Care Outcomes Toolkit (ASCOT) for self-report by people with intellectual disabilities.
  
  
  METHODS
  The study has combined survey development and pre-testing methods with approaches to create accessible information for people with intellectual disabilities. A working group assisted researchers in identifying appropriate question formats, pictures and wording. Focus groups and cognitive interviews were conducted to test various iterations of the instrument.
  
  
  RESULTS
  Substantial changes were made to the questionnaire, which included changes to illustrations, the wording of question stems and response options.
  
  
  CONCLUSIONS
  The process demonstrated the benefits of involving people with intellectual disabilities in the design and testing of data collection instruments. Adequately adapted questionnaires can be useful tools to collect information from people with intellectual disabilities in survey research; however, its limitations must be recognized.
authors: Tizard Centre, University of Kent, Canterbury, UK.
authors: Agnes
authors: A
authors: Turnpenny
authors: Personal Social Services Research Unit, University of Kent, Canterbury, UK.
authors: James
authors: J
authors: Caiels
authors: Tizard Centre, University of Kent, Canterbury, UK.
authors: Beckie
authors: B
authors: Whelton
authors: Tizard Centre, University of Kent, Canterbury, UK.
authors: Lisa
authors: L
authors: Richardson
authors: Tizard Centre, University of Kent, Canterbury, UK.
authors: Julie
authors: J
authors: Beadle-Brown
authors: NatCen Social Research, London, UK.
authors: Tanya
authors: T
authors: Crowther
authors: Personal Social Services Research Unit, University of Kent, Canterbury, UK.
authors: Julien
authors: J
authors: Forder
authors: Canterbury Christ Church University, Canterbury, UK.
authors: Joanna
authors: J
authors: Apps
authors: Personal Social Services Research Unit, University of Kent, Canterbury, UK.
authors: Stacey
authors: S
authors: Rand
mesh_terms: D055812:Community-Based Participatory Research; D017144:Focus Groups; D006801:Humans; D008607:Intellectual Disability; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires
keywords: 
  ASCOT
  ; Easy Read; autism; intellectual disability; quality of life; survey