title: Cancer Patients? Willingness to Routinely Complete the EQ-5D Instrument at Clinic Visits.
abstract: Health utility (HU) scores play an essential role in pharmacoeconomic analyses. Routine clinical administration of the EuroQol-5 Dimensions (EQ-5D) can allow for HU and health related quality of life (HRQOL) assessments in the real-world setting.
  
  
  
  The primary goals of this study were to evaluate whether patients were willing to complete the EQ-5D instrument on a routine basis and which clinical or demographic factors influence this willingness.
  
  
  
  618 adult cancer survivors across multiple cancer disease sites at the Princess Margaret Cancer Centre completed an acceptability survey after completing the EQ-5D instrument.
  
  
  
  The mean (SD) EQ-5D score was 0.81 (0.15). Among those surveyed, 88% reported that the EQ-5D was easy to complete. 91% took under 5 minutes and 88% were satisfied with its length. 85% were satisfied with the types of questions asked on the EQ-5D. Importantly, 92% reported that they would complete the EQ-5D, even if it were used solely for research purposes; 73% agreed with the notion of completing it regularly at their clinic visits. Patients with lower EQ-5D scores (p=0.0006), and non-Caucasians (p=0.0024; 60% willing) were less willing to complete the instrument on a regular basis. Curability of tumour, disease site, age, and gender did not influence willingness.
  
  
  
  The majority of cancer patients across disease sites are willing to complete the EQ-5D instrument regularly, even if it were solely for research purposes, but up to 39% declined participation in the first place.
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Hiten
authors: H
authors: Naik
authors: Biostatistics, Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Xin
authors: X
authors: Qiu
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: M Catherine
authors: MC
authors: Brown
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Mary
authors: M
authors: Mahler
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Henrique
authors: H
authors: Hon
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Kyoko
authors: K
authors: Tiessen
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Henry
authors: H
authors: Thai
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Valerie
authors: V
authors: Ho
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Christina
authors: C
authors: Gonos
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Rebecca
authors: R
authors: Charow
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Vivien
authors: V
authors: Pat
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Margaret
authors: M
authors: Irwin
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Lindsay
authors: L
authors: Herzog
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Anthea
authors: A
authors: Ho
authors: Biostatistics, Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Wei
authors: W
authors: Xu
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Doris
authors: D
authors: Howell
authors: Health Outcomes and PharmacoEconomic (HOPE) Research Centre, Sunnybrook Research Institute, Toronto, ON.
authors: Soo Jin
authors: SJ
authors: Seung
authors: Ontario Cancer Institute, Princess Margaret Cancer Centre, Toronto, Ontario, Canada.
authors: Geoffrey
authors: G
authors: Liu
authors: Health Outcomes and PharmacoEconomic (HOPE) Research Centre, Sunnybrook Research Institute, Toronto, ON.|University of Toronto, Toronto, ON.|Cancer Care Ontario, Toronto, ON.
authors: Nicole
authors: N
authors: Mittmann
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D003430:Cross-Sectional Studies; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D011788:Quality of Life; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: EQ-5D; cancer; ethnicity; health utilities; policy; quality of life