Danish Registry of Childhood and Adolescent Diabetes.
OBJECTIVE
The aims of the Danish Registry of Childhood and Adolescent Diabetes (DanDiabKids) are to monitor and improve the quality of care for children and adolescents with diabetes in Denmark and to follow the incidence and prevalence of diabetes.


METHODS
The study population consists of all children diagnosed with diabetes before the age of 15 years since 1996. Since 2015, every child followed up at a pediatric center (<18 years of age) will be included.


METHODS
The variables in the registry are the quality indicators, demographic variables, associated conditions, diabetes classification, family history of diabetes, growth parameters, self-care, and treatment variables. The quality indicators are selected based on international consensus of measures of good clinical practice. The indicators are metabolic control as assessed by HbA1c, blood pressure, albuminuria, retinopathy, neuropathy, number of severe hypoglycemic events, and hospitalization with ketoacidosis.
The number of children diagnosed with diabetes is increasing with ∼3% per year mainly for type 1 diabetes (ie, 296 new patients <15 years of age were diagnosed in 2014). The disease management has changed dramatically with more children treated intensively with multiple daily injections, insulin pumps, and increased number of self-monitored blood glucose values per day. These initiatives have resulted in a significant improvement in HbA1c over the years and a decrease in the number of children experiencing severe hypoglycemia, diabetic nephropathy, and retinopathy.


CONCLUSIONS
The systematic collection of data in DanDiabKids documents improved quality of care over the last 12 years, despite a substantial increase in the number of patients cared for by pediatric departments in Denmark, fulfilling the purpose of the registry.
Pediatric and Adolescent Department, Copenhagen University Hospital, Herlev and Gentofte, Herlev.
Jannet
J
Svensson
Registry Support Centre (East) - Epidemiology and Biostatistics, Research Centre for Prevention and Health, Capital Region of Denmark, Glostrup.
Charlotte
C
Cerqueira
Pediatric Department, County Hospital Herning, Herning.
Per
P
Kjærsgaard
Pediatric and Adolescent Department, Nordsjællands Hospital, Hillerød.
Lene
L
Lyngsøe
HC Andersen Childrens Hospital, Odense University Hospital, Odense.
Niels Thomas
NT
Hertel
Pediatric Department, Aalborg University Hospital, Aalborg, Denmark.
Mette
M
Madsen
Pediatric and Adolescent Department, Copenhagen University Hospital, Herlev and Gentofte, Herlev.
Henrik B
HB
Mortensen
Pediatric and Adolescent Department, Copenhagen University Hospital, Herlev and Gentofte, Herlev.
Jesper
J
Johannesen
DanDiabkids; HbA1c; quality of care; severe hypoglycemia; treatment modalities