[Evaluation of the decision aid "Entscheidungshilfe Prostatakrebs" from the patients' view : Results from the first three months].
BACKGROUND
The decision aid "Entscheidungshilfe Prostatakrebs" is available online free of charge since June 2016. It is designed to support patients with their treatment decision-making and to lighten the burden on their treating urologists. This study evaluates usage data from the first 3 months.


METHODS
The ICHOM standard set was applied to allow a personalised presentation and to collect relevant data for subsequent counselling. Additionally, personal preferences and psychological burden were assessed amongst others. We collected anonymous data. A multivariate model evaluated predictors for high user satisfaction.


RESULTS
From June through August 2016 a total of 319 patients used the decision aid, showing a continuous monthly increase in the number of users. There were n = 219 (68.7%) complete questionnaires. Median age was 66.1 ± 8.0 years. The oncological risk was low in 30.3%, intermediate in 43.6% and high in 26.1%. A majority of 57.5% used the decision aid together with their partner, 35.1% alone and 5.5% with their children. In all, 54.8% were "very satisfied" and 32.0% were "satisfied" with the decision aid for a total satisfaction rate of about 87%. The only predictors of total satisfaction were the usage mode and reported distress level.


CONCLUSIONS
As shown by the continuously increasing number of users this decision aid is becoming well established in German urology. Patients' overall ratings are very positive. The majority of patients use the decision aid with their partner. This represents a significant advantage of a multimedia approach compared to print media.
Klinik und Poliklinik für Urologie, Medizinische Fakultät Carl Gustav Carus, Universitätsklinikum Carl Gustav Carus an der Technischen Universität Dresden, Fetscherstraße 74, 01307, Dresden, Deutschland.
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Groeben
Sektion Psychoonkologie, Klinik für Allgemeine Innere Medizin und Psychosomatik, Universitätsklinikum Heidelberg, Heidelberg, Deutschland.
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Ihrig
Klinik und Poliklinik für Strahlentherapie und Radioonkologie, Medizinische Fakultät Carl Gustav Carus, TU Dresden, Dresden, Deutschland.
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Hölscher
Klinische Ethik, Universitätsspital Zürich, Zürich, Schweiz.
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Krones
Firma ASD Concepts GmbH & Co. KG, Reinheim, Deutschland.
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Kessler
Centrum für Reproduktionsmedizin und Andrologie, Abteilung für Klinische Andrologie, Universitätsklinikum Münster, Münster, Deutschland.
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Kliesch
Abteilung für Urologie, Asklepios Klinik Altona, Hamburg, Deutschland.
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Wülfing
Institut für Medizinische Informatik und Biometrie, Medizinische Fakultät, TU-Dresden, Dresden, Deutschland.
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Koch
Klinik und Poliklinik für Urologie, Medizinische Fakultät Carl Gustav Carus, Universitätsklinikum Carl Gustav Carus an der Technischen Universität Dresden, Fetscherstraße 74, 01307, Dresden, Deutschland.
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Wirth
Klinik und Poliklinik für Urologie, Medizinische Fakultät Carl Gustav Carus, Universitätsklinikum Carl Gustav Carus an der Technischen Universität Dresden, Fetscherstraße 74, 01307, Dresden, Deutschland. johannes.huber@uniklinikum-dresden.de.
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Huber
D000368:Aged; D020000:Decision Support Systems, Clinical / Q000706:statistics & numerical data*; D005858:Germany / Q000453:epidemiology; D006801:Humans; D008297:Male; D009862:Online Systems; D010353:Patient Education as Topic / Q000706:statistics & numerical data*; D010358:Patient Participation / Q000523:psychology / Q000706:statistics & numerical data*; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D018802:Patient-Centered Care / Q000706:statistics & numerical data; D010865:Pilot Projects; D011471:Prostatic Neoplasms / Q000453:epidemiology / Q000523:psychology* / Q000628:therapy*; D014600:Utilization Review
Decision aid; Health services research; Internet; Prostate cancer; Urology