The Danish National Database for Asthma: establishing clinical quality indicators.
Asthma is one of the most common chronic diseases worldwide affecting more than 300 million people. Symptoms are often non-specific and include coughing, wheezing, chest tightness, and shortness of breath. Asthma may be highly variable within the same individual over time. Although asthma results in death only in extreme cases, the disease is associated with significant morbidity, reduced quality of life, increased absenteeism, and large costs for society. Asthma can be diagnosed based on report of characteristic symptoms and/or the use of several different diagnostic tests. However, there is currently no gold standard for making a diagnosis, and some degree of misclassification and inter-observer variation can be expected. This may lead to local and regional differences in the treatment, monitoring, and follow-up of the patients. The Danish National Database for Asthma (DNDA) is slated to be established with the overall aim of collecting data on all patients treated for asthma in Denmark and systematically monitoring the treatment quality and disease management in both primary and secondary care facilities across the country. The DNDA links information from population-based disease registers in Denmark, including the National Patient Register, the National Prescription Registry, and the National Health Insurance Services register, and potentially includes all asthma patients in Denmark. The following quality indicators have been selected to monitor trends: first, conduction of annual asthma control visits, appropriate pharmacological treatment, measurement of lung function, and asthma challenge testing; second, tools used for diagnosis in new cases; and third, annual assessment of smoking status, height, and weight measurements, and the proportion of patients with acute hospital treatment. The DNDA will be launched in 2016 and will initially include patients treated in secondary care facilities in Denmark. In the nearby future, the database aims to include asthma diagnosis codes and clinical data registered by general practitioners and specialised practitioners as well.
Research Centre for Prevention and Health, Rigshospitalet Glostrup Hospital, Glostrup, Denmark.
Susanne
S
Hansen
Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.
Benjamin
B
Hoffmann-Petersen
Respiratory Research Unit, Department of Respiratory Medicine, Bispebjerg Frederiksberg University Hospital, Copenhagen, Denmark.
Asger
A
Sverrild
Research Centre for Prevention and Health, Rigshospitalet Glostrup Hospital, Glostrup, Denmark.|Department of Occupational and Environmental Medicine, Bispebjerg - Frederiksberg Hospital, Copenhagen, Denmark.
Elvira V
EV
Bräuner
Research Unit of General Practice, Institute of Public Health, University of Southern Denmark, Odense, Denmark.
Jesper
J
Lykkegaard
Department of Respiratory Medicine, Naestved Hospital, Region Zealand, Denmark.|Department of Respiratory Medicine, Zealand University Hospital Roskilde, Region Zealand, Denmark.|Institute of Regional Health Research, University of Southern Denmark, Odense, Denmark.
Uffe
U
Bodtger
Hans Christian Andersen Children's Hospital, Odense University Hospital, Odense, Denmark.
Lone
L
Agertoft
The Danish Clinical Registries, Aarhus, Denmark.
Lene
L
Korshøj
Respiratory Research Unit, Department of Respiratory Medicine, Bispebjerg Frederiksberg University Hospital, Copenhagen, Denmark; backer@dadlnet.dk.
Vibeke
V
Backer
asthma; clinical indicators; database; hospital data; prescription data; quality of care