title: Are Data Sharing and Privacy Protection Mutually Exclusive?
abstract: We review emerging strategies to protect the privacy of research participants in international epigenome research: open consent, genome donation, registered access, automated procedures, and privacy-enhancing technologies.
authors.affiliation: Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada. Electronic address: yann.joly@mcgill.ca.
authors.forename: Yann
authors.initials: Y
authors.lastname: Joly
authors.affiliation: Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.
authors.forename: Stephanie O M
authors.initials: SOM
authors.lastname: Dyke
authors.affiliation: Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.
authors.forename: Bartha M
authors.initials: BM
authors.lastname: Knoppers
authors.affiliation: Department of Human Genetics, McGill University, Montreal, QC H3A 1B1, Canada.
authors.forename: Tomi
authors.initials: T
authors.lastname: Pastinen
mesh_terms: D023281:Genomics / Q000941:ethics* / Q000331:legislation & jurisprudence*; D059014:High-Throughput Nucleotide Sequencing; D016045:Human Genome Project / Q000941:ethics / Q000331:legislation & jurisprudence; D006801:Humans; D033181:Information Dissemination; D018907:Privacy; D017422:Sequence Analysis, DNA