title: Impact of childhood psoriasis on parents of affected children.
abstract: BACKGROUND
  Childhood diseases, such as atopic dermatitis, have a negative impact on quality of life (QoL) of parents. How pediatric psoriasis affects a parent's QoL is unknown.
  
  
  OBJECTIVE
  To explore the impact of childhood psoriasis on the lives of the parents.
  
  
  METHODS
  Semistructured interviews were conducted with 31 parents of children with psoriasis. Narrative data were analyzed and a conceptual framework of the effects of childhood psoriasis on parents was developed.
  
  
  RESULTS
  All parents reported that their child's psoriasis caused a substantial, negative impact on their own QoL. A conceptual framework showed a negative impact on health and self-care, emotional well-being, family and social function, personal well-being, and life pursuits. Emotional well-being was the most affected domain.
  
  
  CONCLUSIONS
  It was not possible to correlate psoriasis severity with parental QoL.
  
  
  CONCLUSIONS
  Childhood psoriasis alters the QoL of parents in multiple ways. Information from this study can be used to develop a QoL instrument to explore treatment and support strategies for families affected by pediatric psoriasis.
authors.affiliation: Department of Dermatology and Pediatrics, Mayo Clinic, Rochester, Minnesota. Electronic address: tollefson.megha@mayo.edu.
authors.forename: Megha M
authors.initials: MM
authors.lastname: Tollefson
authors.affiliation: Department of Health Sciences Research, Mayo Clinic, Rochester, Minnesota.
authors.forename: Dawn M
authors.initials: DM
authors.lastname: Finnie
authors.affiliation: Division of Clinical Dermatology, Mayo Clinic, Rochester, Minnesota.
authors.forename: Jennifer J
authors.initials: JJ
authors.lastname: Schoch
authors.affiliation: Department of Health Sciences Research, Mayo Clinic, Rochester, Minnesota.
authors.forename: David T
authors.initials: DT
authors.lastname: Eton
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D005192:Family Health; D005260:Female; D006801:Humans; D007223:Infant; D008297:Male; D010290:Parents / Q000523:psychology*; D011565:Psoriasis; D011788:Quality of Life
keywords: emotional well-being; family function; health and self-care; parent; personal well-being; psoriasis; quality of life; social function