title: Comparison of Self-Efficacy for Managing Chronic Disease between patients with systemic sclerosis and other chronic conditions: a systematic review.
abstract: The complexity and burden of systemic sclerosis (SSc) pose challenges to developing and sustaining disease management self-efficacy. The objective of this systematic review was to compare scores on a commonly used self-efficacy measure, the Self-Efficacy for Managing Chronic Disease (SEMCD) Scale, between SSc and other diseases. Data sources included the CINAHL, EMBASE, MEDLINE, and Scopus databases, searched through January 25, 2016, and reference lists of included articles and relevant reviews. Studies in any language that reported total SEMCD scores or individual item scores in adult non-psychiatric medical patients were eligible. We identified one eligible non-intervention study of SSc patients (n = 553), 13 other non-intervention studies, and 21 studies with pre-intervention data for patients enrolled in a self-management program or a trial of a program. Of 13 non-intervention studies with published total score means in cancer, cardiovascular disease, Parkinson's disease, spinal cord injuries, organ transplant candidates and recipients, dialysis, and lupus, SEMCD scores were statistically significantly lower (poorer self-efficacy) in SSc than 6 other disease samples, not significantly different from 6, and significantly higher than lupus patients. Compared to 18 studies of patients in self-management programs or trials with published total score means, SSc patients were similar or lower than 9 samples and significantly higher than 9 samples. Compared to patients with other diseases not enrolled in programs to improve self-efficacy, SSc patients report lower self-efficacy scores than most patient groups. Rigorously tested self-care interventions designed to meet the unique needs of patients with SSc are needed.
authors.affiliation: Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada. brett.thombs@mcgill.ca.|Department of Psychiatry, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.|Department of Epidemiology, Biostatistics and Occupational Health, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.|Department of Medicine, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.|Department of Psychology, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.|Department of Educational and Counselling Psychology, McGill University, Montreal, QC, Canada. brett.thombs@mcgill.ca.
authors.forename: Brett D
authors.initials: BD
authors.lastname: Thombs
authors.affiliation: Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada.|Department of Psychiatry, McGill University, Montreal, QC, Canada.|Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, The Netherlands.
authors.forename: Linda
authors.initials: L
authors.lastname: Kwakkenbos
authors.affiliation: Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada.
authors.forename: Kira E
authors.initials: KE
authors.lastname: Riehm
authors.affiliation: Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada.
authors.forename: Nazanin
authors.initials: N
authors.lastname: Saadat
authors.affiliation: Lady Davis Institute for Medical Research, Jewish General Hospital, 4333 Cote Ste Catherine Road, Montreal, QC, H3T 1E4, Canada.
authors.forename: Claire
authors.initials: C
authors.lastname: Fedoruk
mesh_terms: D002908:Chronic Disease / Q000523:psychology / Q000628:therapy*; D019468:Disease Management; D006801:Humans; D012595:Scleroderma, Systemic / Q000523:psychology / Q000628:therapy*; D012648:Self Care / Q000523:psychology*; D020377:Self Efficacy
keywords: Chronic disease; Scleroderma; Self-efficacy; Self-management programs