title: People with dementia and carer preferences for home support services in early-stage dementia.
abstract: OBJECTIVE
  To examine people with dementia and carer preferences for home support attributes in early-stage dementia, building on the paucity of evidence in this area.
  
  
  METHODS
  Preferences from 44 people with dementia and 103 carers, recruited through memory clinics and an online questionnaire, were assessed with a Discrete Choice Experiment survey, with attributes informed by an evidence synthesis and lay consultation. A conditional logit model was used to estimate preference weights for the attributes within a home support 'package'.
  
  
  RESULTS
  The most preferred attributes were support with personal feelings and concerns, provided by a trained counsellor at home (coefficient 0.67, p = <0.001) and information on coping with dementia, provided by an experienced worker at home (coefficient 0.59, p = <0.001). However, for people with dementia, opportunities for social and recreational activities were considered the most important (coefficient 0.48, p = <0.001).
  
  
  CONCLUSIONS
  These preferences concur with emerging evidence on psychosocial interventions in dementia. Support with personal feelings, information and social engagement are important components. Additionally, knowledge of preferences of people with dementia and their carers can identify other attributes that may be important to effectiveness in 'living well' but for which there remains limited evidence.
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: Helen
authors.identifier: http://orcid.org/0000-0001-6587-6618
authors.initials: H
authors.lastname: Chester
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: Paul
authors.identifier: http://orcid.org/0000-0002-0778-312X
authors.initials: P
authors.lastname: Clarkson
authors.affiliation: b Centre for Health Economics, Division of Population Health, Health Services Research and Primary Care , University of Manchester , Manchester , UK.
authors.forename: Linda
authors.identifier: http://orcid.org/0000-0001-8801-3559
authors.initials: L
authors.lastname: Davies
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: Caroline
authors.identifier: http://orcid.org/0000-0002-4626-7750
authors.initials: C
authors.lastname: Sutcliffe
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: Sue
authors.identifier: http://orcid.org/0000-0002-7818-3228
authors.initials: S
authors.lastname: Davies
authors.affiliation: c North East London Foundation Trust , Goodmayes Hospital , Ilford , UK.
authors.forename: Alexandra
authors.initials: A
authors.lastname: Feast
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: Jane
authors.identifier: http://orcid.org/0000-0001-5568-9659
authors.initials: J
authors.lastname: Hughes
authors.affiliation: a Personal Social Services Research Unit , University of Manchester , Manchester , UK.
authors.forename: David
authors.identifier: http://orcid.org/0000-0002-6464-2286
authors.initials: D
authors.lastname: Challis
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000175:diagnosis / Q000523:psychology / Q000628:therapy; D005260:Female; D006699:Home Care Services; D006801:Humans; D008297:Male; D062072:Patient Acuity; D057240:Patient Preference / Q000523:psychology*; D000072858:Psychosocial Support Systems; D011788:Quality of Life; D012917:Social Adjustment
keywords: Dementia; carer preferences; home-based interventions; preferences of people with dementia