title: Ten Years of the International Pompe Survey: Patient-Reported Outcomes as a Reliable Tool for Studying Treated and Untreated Children and Adults with Non-Classic Pompe Disease.
authors.affiliation: Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
authors.forename: J C
authors.initials: JC
authors.lastname: van der Meijden
authors.affiliation: Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
authors.forename: D
authors.initials: D
authors.lastname: Güngör
authors.affiliation: Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
authors.forename: M E
authors.initials: ME
authors.lastname: Kruijshaar
authors.affiliation: International Pompe Association, Association for Glycogen Storage Disease UK, UK.
authors.forename: A D J
authors.initials: AD
authors.lastname: Muir
authors.affiliation: International Pompe Association, Vereniging Spierziekten Nederland, Netherlands.
authors.forename: H A
authors.initials: HA
authors.lastname: Broekgaarden
authors.affiliation: Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
authors.forename: A T
authors.initials: AT
authors.lastname: van der Ploeg