title: Uganda experience-Using cost assessment of an established registry to project resources required to expand cancer registration.
abstract: BACKGROUND
  The objectives of this study are (1) to estimate the cost of operating the Kampala Cancer Registry (KCR) and (2) to use cost data from the KCR to project the resource needs and cost of expanding and sustaining cancer registration in Uganda, focusing on the recently established Gulu Cancer Registry (GCR) in rural Northern Uganda.
  
  
  METHODS
  We used Centers for Disease Control and Prevention's (CDC's) International Registry Costing Tool (IntRegCosting Tool) to estimate the KCR's activity-based cost for 2014. We grouped the registry activities into fixed cost, variable core cost, and variable other cost activities. After a comparison KCR and GCR characteristics, we used the cost of the KCR to project the likely ongoing costs for the new GCR.
  
  
  RESULTS
  The KCR incurred 42% of its expenditures in fixed cost activities, 40% for variable core cost activities, and the remaining 18% for variable other cost activities. The total cost per case registered was 28,201 Ugandan shillings (approximately US $10 in 2014) to collect and report cases using a combination of passive and active cancer data collection approaches. The GCR performs only active data collection, and covers a much larger area, but serves a smaller population compared to the KCR.
  
  
  CONCLUSIONS
  After identifying many differences between KCR and GCR that could potentially affect the cost of registration, our best estimate is that the GCR, though newer and in a rural area, should require fewer resources than the KCR to sustain operations as a stand-alone entity. The optimal structure of the GCR needs to be determined in the future.
authors.affiliation: Makerere University, P.O. Box 7072, Kampala, Uganda.
authors.forename: Henry
authors.initials: H
authors.lastname: Wabinga
authors.affiliation: RTI International, 3040 E. Cornwallis Road, Research Triangle Park, NC, USA. Electronic address: ssubramanian@rti.org.
authors.forename: Sujha
authors.initials: S
authors.lastname: Subramanian
authors.affiliation: Makerere University, P.O. Box 7072, Kampala, Uganda.
authors.forename: Sarah
authors.initials: S
authors.lastname: Nambooze
authors.affiliation: Makerere University, P.O. Box 7072, Kampala, Uganda.
authors.forename: Phoebe Mary
authors.initials: PM
authors.lastname: Amulen
authors.affiliation: RTI International, 3040 E. Cornwallis Road, Research Triangle Park, NC, USA.
authors.forename: Patrick
authors.initials: P
authors.lastname: Edwards
authors.affiliation: United States Centers for Disease Control and Prevention, Nairobi, Kenya.
authors.forename: Rachael
authors.initials: R
authors.lastname: Joseph
authors.affiliation: Lacor Hospital, P.O. Box 180, Gulu, Uganda.
authors.forename: Martin
authors.initials: M
authors.lastname: Ogwang
authors.affiliation: Lacor Hospital, P.O. Box 180, Gulu, Uganda.
authors.forename: Francis
authors.initials: F
authors.lastname: Okongo
authors.affiliation: Nuffield Department of Population Health, University of Oxford, Richard Doll Building, Old Road Campus, Roosevelt Drive, Oxford, OX3 7LF, United Kingdom.
authors.forename: D Maxwell
authors.initials: DM
authors.lastname: Parkin
authors.affiliation: Centers for Disease Control and Prevention, 4770 Buford Hwy, Atlanta, GA, USA.
authors.forename: Florence
authors.initials: F
authors.lastname: Tangka
mesh_terms: D003365:Costs and Cost Analysis; D003625:Data Collection; D006295:Health Resources; D006801:Humans; D015994:Incidence; D009369:Neoplasms / Q000453:epidemiology*; D012042:Registries; D014454:Uganda / Q000453:epidemiology
keywords: Activity-based cost; Economic evaluation; Gulu Cancer Registry; Kampala Cancer Registry; Uganda