title: Community-based participatory research: an innovative approach for improving perioperative care of underserved children.
abstract: Pediatric disparities disproportionately affect Latino youth undergoing surgery and their families. As such, there is a critical need for culturally relevant frameworks that can advance perioperative intervention approaches in this population and reduce these disparities. In the following article, we first describe the methodological process of community-based participatory research (CBPR) and next report the results of the CBPR process that was conducted in this population. An interdisciplinary group of investigators, Latina mothers, and various other stakeholders met for a series of CBPR-based structured meetings. Qualitative data collection and analyses of the CBPR process were guided by principles of grounded theory that employs inductive techniques and constant comparison analyses until reaching saturation of data. Barriers identified in the process can be grouped within the following domains: child-related factors, family-related factors, health care provider factors, and hospital system factors. Family system factors category (coded references = 136) had the highest number of coded references; this category was found to be best described by the value of familismo or familism, including a duty to help family members when in need. The health care provider category (coded references = 42) was ranked second by frequency. Within this category, two major themes surfaced: health care provider cultural competence and overestimating health literacy. All barriers identified will be next incorporated in an innovative behavioral intervention that is currently being developed. We conclude that the model of CBPR can be used within the context of perioperative care of children and their families.
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.|Department of Pediatric Psychology, Children's Hospital of Orange County, Orange, CA, USA.
authors.forename: Alvina
authors.initials: A
authors.lastname: Rosales
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.|Department of Pediatric Psychology, Children's Hospital of Orange County, Orange, CA, USA.
authors.forename: Michelle A
authors.initials: MA
authors.lastname: Fortier
authors.affiliation: Department of Chicano/Latino Studies, University of California Irvine, Irvine, CA, USA.
authors.forename: Belinda
authors.initials: B
authors.lastname: Campos
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.
authors.forename: Marla
authors.initials: M
authors.lastname: Vivero
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.
authors.forename: Ariana
authors.initials: A
authors.lastname: Martinez
authors.affiliation: Madres en Acción Community Task Force, UCI Center on Stress & Health, Orange, CA, USA.
authors.forename: Nancy
authors.initials: N
authors.lastname: Huerta
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.
authors.forename: Sheeva
authors.initials: S
authors.lastname: Zolghadr
authors.affiliation: Department of Education & Professional Development, Children's Hospital of Orange County, Orange, CA, USA.
authors.forename: Kathleen
authors.initials: K
authors.lastname: Adlard
authors.affiliation: Department of Anesthesiology & Perioperative Care, University of California Irvine, Irvine, CA, USA.|Department of Pediatrics, Children's Hospital of Orange County, Orange, CA, USA.|Child Study Center, Yale University School of Medicine, New Haven, CT, USA.
authors.forename: Zeev N
authors.initials: ZN
authors.lastname: Kain
mesh_terms: D000293:Adolescent; D002140:California; D002648:Child; D055812:Community-Based Participatory Research / Q000379:methods*; D005260:Female; D054625:Healthcare Disparities / Q000706:statistics & numerical data*; D006630:Hispanic or Latino; D006801:Humans; D008297:Male; D010372:Pediatrics / Q000379:methods*; D019990:Perioperative Care / Q000379:methods*
keywords: Latino; community-based participatory research; pain; pediatric