title: Development of an Educational Program Integrating Concepts of Genetic Risk and Preventive Strategies for Children with a Family History of Melanoma.
abstract: Efforts to prevent melanoma, especially for those at elevated risk for the disease, should ideally begin during childhood. However, there are few preventive interventions targeting children who are at higher risk for melanoma due to a family history of the disease. Further, there are no educational interventions that aim to help these at-risk children understand their risk for melanoma and the ways in which preventive behaviors, such as sun protection, can mitigate their risk. The current paper describes a multidisciplinary team's process for creating a developmentally appropriate educational intervention about melanoma risk and prevention for children ages 8-17 years who have a family history of melanoma. Drawing from the fields of dermatology, health behavior change and education, genetic risk communication, science education, and graphic arts, the multimedia intervention created covers key learning points relevant to understanding melanoma, the role of DNA damage in melanoma development, inherited risk factors for melanoma, environmental factors causing DNA damage, and methods for preventing DNA damage, such as sun protective behaviors. Lessons learned during the development of the educational intervention, particularly relevant to multidisciplinary team interactions, are discussed. Implications for future testing and refinement of the novel educational content are also reviewed.
authors.affiliation: Division of Public Health, Department of Family and Preventive Medicine, University of Utah, 375 Chipeta Way, Suite A, Salt Lake City, UT, 84108, USA. Yelena.Wu@utah.edu.|Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4142, Salt Lake City, UT, 84112, USA. Yelena.Wu@utah.edu.
authors.forename: Yelena P
authors.initials: YP
authors.lastname: Wu
authors.affiliation: Department of Psychology, University of Utah, 380 South 1530 East, Room 502, Salt Lake City, UT, 84112, USA.
authors.forename: Lisa G
authors.initials: LG
authors.lastname: Aspinwall
authors.affiliation: Division of Public Health, Department of Family and Preventive Medicine, University of Utah, 375 Chipeta Way, Suite A, Salt Lake City, UT, 84108, USA.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Nagelhout
authors.affiliation: Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4142, Salt Lake City, UT, 84112, USA.
authors.forename: Wendy
authors.initials: W
authors.lastname: Kohlmann
authors.affiliation: Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4142, Salt Lake City, UT, 84112, USA.|Department of Communication, University of Utah, 255 S Central Campus Drive, Room 2400, Salt Lake City, UT, 84112, USA.
authors.forename: Kimberly A
authors.initials: KA
authors.lastname: Kaphingst
authors.affiliation: Genetic Science Learning Center, University of Utah, 515 100 S, Salt Lake City, UT, 84102, USA.
authors.forename: Sheila
authors.initials: S
authors.lastname: Homburger
authors.affiliation: Genetic Science Learning Center, University of Utah, 515 100 S, Salt Lake City, UT, 84102, USA.
authors.forename: Ryan D
authors.initials: RD
authors.lastname: Perkins
authors.affiliation: Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4142, Salt Lake City, UT, 84112, USA.|Department of Dermatology, University of Utah, 30 North 1900 East, 4A330, Salt Lake City, UT, 84132, USA.
authors.forename: Douglas
authors.initials: D
authors.lastname: Grossman
authors.affiliation: Huntsman Cancer Institute, 2000 Circle of Hope, Rm 4142, Salt Lake City, UT, 84112, USA.
authors.forename: Garrett
authors.initials: G
authors.lastname: Harding
authors.affiliation: Department of Dermatology and Knight Cancer Institute, Oregon Health & Science University, 3303 SW Bond Avenue, Portland, OR, 97239, USA.
authors.forename: Pamela
authors.initials: P
authors.lastname: Cassidy
authors.affiliation: Department of Dermatology and Knight Cancer Institute, Oregon Health & Science University, 3303 SW Bond Avenue, Portland, OR, 97239, USA.
authors.forename: Sancy A
authors.initials: SA
authors.lastname: Leachman
mesh_terms: D000293:Adolescent; D002648:Child; D005260:Female; D020022:Genetic Predisposition to Disease; D015438:Health Behavior; D006801:Humans; D008297:Male; D008545:Melanoma / Q000235:genetics / Q000517:prevention & control; D010353:Patient Education as Topic; D012307:Risk Factors; D012878:Skin Neoplasms / Q000235:genetics / Q000517:prevention & control