title: Disability Life Writing and the Problem of Dependency in The Autobiography of Gaby Brimmer.
abstract: Independence was a core value of the movement for disability rights. People with disabilities did not have to be dependent, advocates claimed; they were robbed of autonomy by poverty, social prejudice, and architectural barriers. Recently, critics have noted that the emphasis on independence equates personhood with autonomy, reason, and self-awareness, thereby excluding those who are incapable of self-determination. The stigma of dependency is communicated to caregivers whose work is devalued and undercompensated. These values are echoed in the life writing of people with disabilities, which tends to present a singular narrative voice, even when the author requires assistance in the physical or intellectual work of composition. The 1979 Mexican memoir-testimonio Gaby Brimmer, collaboratively authored by the acclaimed journalist Elena Poniatowska, Brimmer, her mother, and her paid caregiver is a notable exception. Consisting of interwoven dialogue among its three informants, Gaby Brimmer enacts dependency at the level of form, while exploring the challenges and opportunities of interdependence in societies that devalue the giving and receiving of care.
authors.affiliation: Columbia University, New York, USA. rea15@columbia.edu.
authors.forename: Rachel
authors.initials: R
authors.lastname: Adams
mesh_terms: D017028:Caregivers; D003858:Dependency, Psychological; D006233:Persons with Disabilities / Q000523:psychology*; D006801:Humans; D014956:Writing
keywords: Autonomy; Caregiving; Collaborative writing; Dependency; Disability; Disability rights movement; Elena Poniatowska; Gaby Brimmer; Memoir; Personhood; Shame; testimonio