title: Ethical Issues in Using Social Media to Deliver an HIV Prevention Intervention: Results from the HOPE Peru Study.
abstract: Social media technologies have become increasingly useful tools for research-based interventions. However, participants and social media users have expressed ethical concerns with these studies, such as risks and benefits of participation, as well as privacy, confidentiality, and informed consent issues. This study was designed to follow up with and assess experiences and perceptions of ethics-related issues among a sample of 211 men who have sex with men who participated in the Harnessing Online Peer Education (HOPE) Peru study, a randomized controlled HIV prevention intervention conducted in Peru. We found that after adjusting for age, highest educational attainment, race, sexual orientation, and prior HIV research experience, participants in the intervention group were more likely than those in the control group to have safe sex (p = 0.0051) and get tested for HIV regularly (p = 0.0051). As a result of their participation, those in the intervention group benefited more positively than participants in the control group in improving HIV care (p = 0.0077) and learning where to receive sexual health services (p = 0.0021). Participants in the intervention group expressed higher levels of comfort than those in the control group in joining and seeing other people in the Facebook group (p = 0.039), seeing other people's posts (p = 0.038) and having other group members talk to them online (p = 0.040). We discuss the implications of these results as they relate to social media-based HIV research.
authors.affiliation: LCSW, ElevateU, Los Angeles, CA, USA.
authors.forename: Renee
authors.initials: R
authors.lastname: Garett
authors.affiliation: Espacio Commun (Epicentro), Lima, Peru.
authors.forename: Luis
authors.initials: L
authors.lastname: Menacho
authors.affiliation: UCLA Center for Digital Behavior, Department of Family Medicine, University of California, Los Angeles (UCLA), 10880 Wilshire Blvd., Suite 1800, Los Angeles, CA, 90024, USA. sdyoung@mednet.ucla.edu.
authors.forename: Sean D
authors.initials: SD
authors.lastname: Young
mesh_terms: D000328:Adult; D015658:HIV Infections / Q000517:prevention & control*; D006293:Health Promotion / Q000941:ethics* / Q000379:methods*; D018451:Homosexuality, Male; D006801:Humans; D008297:Male; D008403:Mass Screening / Q000706:statistics & numerical data; D010568:Peru; D061108:Social Media / Q000941:ethics*; D055815:Young Adult
keywords: HIV/AIDS; Low- and middle-income countries; Men who have sex with men; Peru; Social media