title: Developing the Senses Framework to support relationship-centred care for people with advanced dementia until the end of life in care homes.
abstract: People with advanced dementia living in care homes can experience social death before their physical death. Social death occurs when a person is no longer recognised as being an active agent within their relationships. A shift is required in how we perceive people with advanced dementia so that the ways they continue to be active in their relationships are noticed. Paying attention to embodied and interembodied selfhood broadens the scope and opportunities for relationships with people with advanced dementia, acting as a counter to social death. This has the potential to improve the quality of care, including end of life care, of people with advanced dementia in care homes. This study examined the role of embodied and interembodied selfhood within care-giving/care-receiving relationships in a specialist dementia care home. Empirical findings and their implications for the development of relationship-centred care and the Senses Framework in care homes are discussed.
authors.affiliation: School of Health in Social Sciences (Nursing Studies), Edinburgh Centre for Research on the Experience of Dementia, University of Edinburgh, Edinburgh, UK.
authors.forename: Julie
authors.initials: J
authors.lastname: Watson
mesh_terms: D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000523:psychology*; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D009735:Nursing Homes; D012649:Self Concept; D012944:Social Support; D013727:Terminal Care / Q000523:psychology
keywords: advanced dementia; care homes; embodied selfhood; relationship-centred care; social death