title: Parents' Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study.
abstract: BACKGROUND
  Early intervention for autism spectrum disorder (ASD) tends to focus on enhancing social communication skills. We report data collected via focus group discussions as part of a feasibility and acceptability pilot randomized controlled trial (RCT) about a new parent group intervention to manage restricted and repetitive behaviours (RRB) in young children with ASD.
  
  
  METHODS
  The focus groups were led by two independent facilitators and followed a semi-structured topic guide with the aim of considering three key topics: experiences of participating in a RCT, opinions about the intervention and the impact of the intervention on the participants, their children and the family.
  
  
  RESULTS
  Fourteen participants attended the focus groups. Most participants reported that they had little knowledge of RRB before attending the intervention and that it had had a positive impact on them, their children and their family.
  
  
  CONCLUSIONS
  The findings support the view that there is an unmet need for a parent-mediated intervention focusing on RRB.
authors.affiliation: Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, UK.
authors.forename: Anna R
authors.initials: AR
authors.lastname: Hodgson
authors.affiliation: Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
authors.forename: Victoria
authors.initials: V
authors.lastname: Grahame
authors.affiliation: Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
authors.forename: Deborah
authors.initials: D
authors.lastname: Garland
authors.affiliation: Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
authors.forename: Fiona
authors.initials: F
authors.lastname: Gaultier
authors.affiliation: Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK.
authors.forename: Jan
authors.initials: J
authors.lastname: Lecouturier
authors.affiliation: Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.|Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK.
authors.forename: Ann
authors.initials: A
authors.lastname: Le Couteur
mesh_terms: D000328:Adult; D000067877:Autism Spectrum Disorder / Q000503:physiopathology* / Q000628:therapy*; D002648:Child; D002675:Child, Preschool; D005240:Feasibility Studies; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D010290:Parents; D010865:Pilot Projects; D036301:Qualitative Research; D013239:Stereotyped Behavior / Q000502:physiology*
keywords: autism spectrum disorder; child repetitive behaviours; parent intervention