title: Developing a patient-led electronic feedback system for quality and safety within Renal PatientView.
abstract: BACKGROUND
  It is increasingly acknowledged that patients can provide direct feedback about the quality and safety of their care through patient reporting systems. The aim of this study was to explore the feasibility of patients, healthcare professionals and researchers working in partnership to develop a patient-led quality and safety feedback system within an existing electronic health record (EHR), known as Renal PatientView (RPV).
  
  
  METHODS
  Phase 1 (inception) involved focus groups (n = 9) and phase 2 (requirements) involved cognitive walkthroughs (n = 34) and 1:1 qualitative interviews (n = 34) with patients and healthcare professionals. A Joint Services Expert Panel (JSP) was convened to review the findings from phase 1 and agree the core principles and components of the system prototype. Phase 1 data were analysed using a thematic approach. Data from phase 1 were used to inform the design of the initial system prototype. Phase 2 data were analysed using the components of heuristic evaluation, resulting in a list of core principles and components for the final system prototype.
  
  
  RESULTS
  Phase 1 identified four main barriers and facilitators to patients feeding back on quality and safety concerns. In phase 2, the JSP agreed that the system should be based on seven core principles and components.
  
  
  CONCLUSIONS
  Stakeholders were able to work together to identify core principles and components for an electronic patient quality and safety feedback system in renal services. Tensions arose due to competing priorities, particularly around anonymity and feedback. Careful consideration should be given to the feasibility of integrating a novel element with differing priorities into an established system with existing functions and objectives.
authors.affiliation: NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre, Institute of Population Health, University of Manchester, Manchester, UK.
authors.forename: Sally J
authors.initials: SJ
authors.lastname: Giles
authors.affiliation: Bradford Institute for Health Research, Bradford, UK.
authors.forename: Caroline
authors.initials: C
authors.lastname: Reynolds
authors.affiliation: Bradford Institute for Health Research, Bradford, UK.
authors.forename: Jane
authors.initials: J
authors.lastname: Heyhoe
authors.affiliation: University of Bradford, Bradford, UK.
authors.forename: Gerry
authors.initials: G
authors.lastname: Armitage
mesh_terms: D005246:Feedback; D017144:Focus Groups; D006801:Humans; D061214:Patient Safety / Q000592:standards*; D017060:Patient Satisfaction; D018802:Patient-Centered Care / Q000379:methods / Q000592:standards; D010361:Patients / Q000523:psychology*; D036301:Qualitative Research; D058996:Quality Improvement; D006113:United Kingdom; D014584:User-Computer Interface
keywords: Patient involvement; Patient reporting; Patient safety; Renal; Renal PatientView