title: End-of-life decisions for fragile neonates: navigating between opinion and evidence-based medicine.
authors.affiliation: Division of Neonatology et Centre de recherche, CHU Sainte-Justine, Montréal, Québec, Canada.|Unité de recherche en éthique clinique et partenariat patient, Clinical Ethics Unit and Palliative Care Unit, CHU Sainte-Justine, Montréal, Québec, Canada.|Bureau de l'éthique Clinique (BEC), Université de Montréal, Montréal, Québec, Canada.
authors.forename: Annie
authors.initials: A
authors.lastname: Janvier
authors.affiliation: Parent and Patient Representative, The DeVeber Institute for Bioethics and Social Research, Canada and Patients for Patient Safety Canada, Toronto, Ontario, Canada.
authors.forename: Barbara
authors.initials: B
authors.lastname: Farlow
authors.affiliation: Departement of Pediatrics, University Medical Center Gröningen, University of Gröningen, Gröningen, Holland.
authors.forename: Eduard
authors.initials: E
authors.lastname: Verhagen
authors.affiliation: Division of Neonatology et Centre de recherche, CHU Sainte-Justine, Montréal, Québec, Canada.
authors.forename: Keith
authors.initials: K
authors.lastname: Barrington
mesh_terms: D003657:Decision Making; D019317:Evidence-Based Medicine; D006801:Humans; D007231:Infant, Newborn; D009359:Neonatology / Q000379:methods*; D011368:Professional-Family Relations; D013727:Terminal Care
keywords: Ethics; Mortality; Neonatology; Palliative Care; Patient perspective