title: Practical Steps to Integrate Family Voice in Organization, Policy, Planning, and Decision-Making for Socio-Emotional Trauma-Informed Integrated Pediatric Care.
abstract: This article explores barriers and strategies to achieving family-driven integrated child health care. Family involvement in health system design and reform has become a guiding principle in national and local efforts to improve children's mental health services. In practice, primary care clinicians, staff, and families continue to describe common barriers to integrating family voice. Drawing from the collective knowledge of the Pediatric Integrated Care Collaborative (PICC) and the National Alliance on Mental Illness (NAMI), we present strategies to overcome these barriers to successfully recruit, sustain, and expand family influence on health systems. Family advocates and clinical leaders from two clinic sites in Albuquerque, New Mexico and Santa Rosa, California share challenges and strategies for building family involvement in system design.
authors.affiliation: Department of Health Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
authors.forename: Lauren
authors.initials: L
authors.lastname: Dayton
authors.affiliation: Department of Health Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
authors.forename: Amelia
authors.initials: A
authors.lastname: Buttress
authors.affiliation: Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
authors.forename: Jen
authors.initials: J
authors.lastname: Agosti
authors.affiliation: University of New Mexico Young Children's Health Center, Albuquerque, NM.
authors.forename: Javier
authors.initials: J
authors.lastname: Aceves
authors.affiliation: Roseland Children's Health Center, Santa Rosa, CA.
authors.forename: Meredith
authors.initials: M
authors.lastname: Kieschnick
authors.affiliation: University of New Mexico Young Children's Health Center, Albuquerque, NM.
authors.forename: Agatha
authors.initials: A
authors.lastname: Popejoy
authors.affiliation: Roseland Children's Health Center, Santa Rosa, CA.
authors.forename: Robyn
authors.initials: R
authors.lastname: Robbins
authors.affiliation: National Alliance on Mental Illness (NAMI) Maryland, Baltimore, MD.
authors.forename: Kate
authors.initials: K
authors.lastname: Farinholt
mesh_terms: D002140:California; D002648:Child; D002662:Child Health Services / Q000458:organization & administration*; D003657:Decision Making; D019033:Delivery of Health Care, Integrated / Q000458:organization & administration; D006285:Health Planning; D006291:Health Policy; D006801:Humans; D008605:Mental Health Services / Q000458:organization & administration*; D009516:New Mexico; D011368:Professional-Family Relations; D040921:Stress Disorders, Traumatic / Q000628:therapy*