title: Sociocultural aspects of disorders of sex development.
abstract: Disorders of sex development (DSD) is a congenital condition in which the development of chromosomes, gonads, hormones, and reproductive structures are atypical. DSD brings with it a psychological impact on the affected individual and their families. The consensus statement on management of DSD strongly advised an integrated and multidisciplinary approach in providing care to the affected individuals. Studies have been conducted focusing on medical intervention, and more recently, there is increasing attention paid to psychological aspects of DSD. However, studies reporting cultural aspects of DSD are lacking. This review provides an overview on how culture impacts the affected individuals in coping with DSD and making decisions with regard to gender assignment or reassignment, help-seeking behavior for medical treatments, attitudes toward medical treatment, religious beliefs, and values concerning marriage and fertility. The involvement of social scientists is needed to study sociocultural aspects of DSD from more diverse cultures, to help affected individuals and their families in gaining better social acceptance. Birth Defects Research (Part C) 108:380-383, 2016. © 2016 Wiley Periodicals, Inc.
authors.affiliation: Faculty of Psychology, Diponegoro University, Semarang, Indonesia.|Center for Biomedical Research (CEBIOR), Faculty of Medicine, Diponegoro University, Semarang, Indonesia.
authors.forename: Annastasia
authors.initials: A
authors.lastname: Ediati
authors.affiliation: Center for Biomedical Research (CEBIOR), Faculty of Medicine, Diponegoro University, Semarang, Indonesia.|Department of Pharmacology and Therapy, Faculty of Medicine, Diponegoro University, Semarang, Indonesia.
authors.forename: Nani
authors.initials: N
authors.lastname: Maharani
authors.affiliation: Department of Pharmacology and Therapy, Faculty of Medicine, Diponegoro University, Semarang, Indonesia.|Division of Endocrinology, Department of Pediatrics, Faculty of Medicine, Diponegoro University, Semarang, Indonesia.
authors.forename: Agustini
authors.initials: A
authors.lastname: Utari
mesh_terms: D003469:Culture; D003657:Decision Making; D012734:Disorders of Sex Development / Q000523:psychology*; D005260:Female; D005783:Gender Identity; D006801:Humans; D008297:Male; D012733:Sex Differentiation / Q000502:physiology; D046468:Sexual Development / Q000502:physiology
keywords: culture; disorders of sex development; genital anomalies; socio-cultural; stigma