title: Perceived Racial Bias and Health-Related Stigma Among Youth with Sickle Cell Disease.
abstract: Little is known about the role of perceived racial bias and health-related stigma on the health of youth with sickle cell disease (SCD). The purpose of this study was to investigate the occurrence of perceived racial bias and health-related stigma among youth with SCD and its relationship with psychological and physical well-being.
  
  
  
  Twenty-eight youth with SCD, ages 13 to 21, were recruited from outpatient and inpatient settings at an urban children's medical center. Participants completed measures of perceived racial bias, perceived health-related stigma, depression, quality of life, and pain burden.
  
  
  
  Most participants endorsed occurrences of racial bias and health-related stigma. The findings indicate that greater perceived racial bias was associated with greater pain burden, and greater perceived health-related stigma was related to lower quality of life.
  
  
  
  Perceived racial bias and health-related stigma may be important to consider for future research investigating the psychological and physiological features of SCD for youth.
authors.affiliation: *Department of Psychology, University of Hartford, West Hartford, CT; †Division of Pain and Palliative Medicine, Connecticut Children's Medical Center, Hartford, CT; ‡Department of Research, Connecticut Children's Medical Center, Hartford, CT; §Department of Psychology, University of Hartford, West Hartford, CT.
authors.forename: Emily O
authors.initials: EO
authors.lastname: Wakefield
authors.forename: Jill M
authors.initials: JM
authors.lastname: Popp
authors.forename: Lourdes P
authors.initials: LP
authors.lastname: Dale
authors.forename: James P
authors.initials: JP
authors.lastname: Santanelli
authors.forename: Ashley
authors.initials: A
authors.lastname: Pantaleao
authors.forename: William T
authors.initials: WT
authors.lastname: Zempsky
mesh_terms: D000293:Adolescent; D000328:Adult; D000755:Anemia, Sickle Cell / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D010146:Pain / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D063505:Racism / Q000523:psychology*; D057545:Social Stigma; D055815:Young Adult