title: Reconciling Tensions: Needing Formal and Family/Friend Care but Feeling like a Burden.
abstract: Within a neoliberal policy context that shifts responsibility for health and well-being from the state to families and individuals, Canadian home care strategies tend to present family members as "partners in care". Drawing on an interpretive grounded theory study that involved 34 qualitative interviews, this article examines older people's experiences at the intersections of formal home care and family/friend care arrangements, against the backdrop of policies that emphasize partnerships with family. The core concept derived from the interviews was reconciling tensions between care needs and concerns about burdening others, in the context of available home and community care. Four processes are identified, which illustrate how access to financial and social resources may lead to opportunities and constraints in experiences of care. Findings underscore the emotional and practical challenges that older people may encounter vis-à-vis policy discourses that encourage family responsibility for care. Implications for policy and practice are discussed.
authors.affiliation: Department of Sociology,York University.
authors.forename: Rachel
authors.initials: R
authors.lastname: Barken
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D000375:Aging / Q000523:psychology; D017028:Caregivers / Q000523:psychology* / Q000706:statistics & numerical data; D005195:Family Relations / Q000523:psychology*; D005260:Female; D066296:Grounded Theory; D006699:Home Care Services / Q000331:legislation & jurisprudence / Q000458:organization & administration*; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D009864:Ontario; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology; D012944:Social Support; D013315:Stress, Psychological / Q000523:psychology
keywords: Canada; aging; home care; informal care; neoliberalism; néoliberalisme; politique sociale; social policy; soins informels; soins à domicile; vieillissement