title: Participation in Care Encounters in Heart Failure Home-Care.
abstract: The purpose of this qualitative study was to observe care encounters during home visits in Heart failure (HF) home-care to identify and describe participation in care. Seventeen patients diagnosed with HF, and 10 registered nurses participated. Data from 19 video-recorded home visits were analyzed using qualitative content analysis. Two themes were identified: (a) Participation in the care encounter is made possible by interaction, including exchanging care-related information, care-related reasoning, collaboration; and (b) participation in the care encounter is made possible by an enabling approach, including the patients expressing their own wishes, showing an active interest, while the nurse is committed and invites to having a dialogue. The HF home-care context showed good potential for patient participation. Room for discussions and collaboration facilitated for the patients to be active partners in their care, which in turn may have positive effects on outcomes.
authors.affiliation: 1 Research and Development Unit in Local Health Care and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
authors.forename: Lena
authors.initials: L
authors.lastname: Näsström
authors.affiliation: 2 School of Health and Welfare, Jönköping University, Jönköping, Sweden.
authors.forename: Jan
authors.initials: J
authors.lastname: Mårtensson
authors.affiliation: 3 Department of Care Science, Malmö University, Malmö, Sweden.
authors.forename: Ewa
authors.initials: E
authors.lastname: Idvall
authors.affiliation: 4 Department of Medical and Health Sciences, and Department of Cardiology, Linköping University, Linköping, Sweden.
authors.forename: Anna
authors.initials: A
authors.lastname: Strömberg
mesh_terms: D000368:Aged; D003299:Cooperative Behavior; D005260:Female; D006333:Heart Failure / Q000523:psychology / Q000628:therapy*; D006699:Home Care Services; D006801:Humans; D008297:Male; D024802:Nurse's Role / Q000523:psychology*; D011369:Professional-Patient Relations; D036301:Qualitative Research; D011795:Surveys and Questionnaires
keywords: heart failure; home-care; involvement; patient participation; qualitative research