title: Stigma Management Trajectories in Youth with Perinatally Acquired HIV and Their Families: A Qualitative Perspective.
abstract: This study explores how family, secrecy and silence contribute to the adoption of stigma management strategies among youth with perinatally acquired HIV (PAHIV). A qualitative method was used. Eighteen youths with PAHIV aged 13-22 years old took part in a semi-structured interview. An exploratory content analysis was performed. Analyses of interviews allowed identification of two HIV stigma management trajectories, both sensitive to the family context: [1] a consolidation of family ties, which contributes to solidarity in stigma management; and [2] a weakening or dissolution of family ties, which contributes to solitary stigma management strategy. Family conditions that support the children in their efforts to develop active stigma management strategies are described. Children likely to experience weakening or dissolution family ties must build strong bonds in the clinical environment and maintain these into adulthood so as to afford them the support they need.
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.
authors.forename: Karène
authors.initials: K
authors.lastname: Proulx-Boucher
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada. fernet.mylene@uqam.ca.
authors.forename: Mylène
authors.initials: M
authors.lastname: Fernet
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.
authors.forename: Martin
authors.initials: M
authors.lastname: Blais
authors.affiliation: Centre maternel et infantile sur le SIDA, Centre hospitalier universitaire Sainte-Justine, Montreal, Canada.
authors.forename: Normand
authors.initials: N
authors.lastname: Lapointe
authors.affiliation: Centre maternel et infantile sur le SIDA, Centre hospitalier universitaire Sainte-Justine, Montreal, Canada.
authors.forename: Johanne
authors.initials: J
authors.lastname: Samson
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.
authors.forename: Joseph J
authors.initials: JJ
authors.lastname: Lévy
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.
authors.forename: Joanne
authors.initials: J
authors.lastname: Otis
authors.affiliation: Centre maternel et infantile sur le SIDA, Centre hospitalier universitaire Sainte-Justine, Montreal, Canada.
authors.forename: Guylaine
authors.initials: G
authors.lastname: Morin
authors.affiliation: Département de sexologie, Université du Québec à Montréal, CP. 8888, Succursale Centre-Ville, Montreal, QC, H3C 3P8, Canada.
authors.forename: Jocelyne
authors.initials: J
authors.lastname: Thériault
authors.affiliation: École de service social, Université Laval, Quebec, Canada.
authors.forename: Germain
authors.initials: G
authors.lastname: Trottier
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D003219:Confidentiality / Q000523:psychology*; D003430:Cross-Sectional Studies; D030881:Disclosure; D005190:Family / Q000523:psychology*; D005260:Female; D015658:HIV Infections / Q000151:congenital* / Q000208:ethnology / Q000523:psychology*; D006801:Humans; D018445:Infectious Disease Transmission, Vertical; D008297:Male; D010287:Parent-Child Relations; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology*; D057545:Social Stigma; D012944:Social Support; D013315:Stress, Psychological
keywords: Adolescents; HIV; Parent/child relations; Perinatally acquired HIV; Qualitative; Stigma