title: The Longitudinal Effects of Parenting on Adaptive Behavior in Children with Fragile X Syndrome.
abstract: Several studies have reported declines in adaptive behavior amongst children with fragile X syndrome (FXS) starting in middle childhood. We examined the effects of maternal responsivity on adaptive behavior in 55 children with FXS visited 5-6 times in their homes from early through middle childhood. Our analyses indicated that sustained maternal responsivity had a significant positive impact on the trajectories of communication and to a lesser extent other adaptive behavior domains through middle childhood with many effects remaining significant after controlling for autism symptoms and developmental level. For children who showed declines in adaptive behavior during middle childhood, sustained high levels of maternal responsivity minimized the amount of decline observed in the communication, socialization, and daily living domains.
authors.affiliation: Dole Human Development Center, Department of Speech-Language-Hearing: Sciences and Disorders, The Schiefelbusch Institute for Life Span Studies, The University of Kansas, 1000 Sunnyside Avenue, #3045, Lawrence, KS, 66045-7555, USA. sfwarren@ku.edu.
authors.forename: Steven F
authors.identifier: 0000-0001-9404-8483
authors.initials: SF
authors.lastname: Warren
authors.affiliation: Department of Speech-Language-Hearing: Sciences and Disorders, The Schiefelbusch Institute for Life Span Studies, The University of Kansas, 1000 Sunnyside Avenue, Lawrence, KS, 66045-7555, USA.
authors.forename: Nancy
authors.initials: N
authors.lastname: Brady
authors.affiliation: Schiefelbusch Institute for Life Spans Studies, The University of Kansas, 1000 Sunnyside Avenue, Lawrence, KS, 66045-7555, USA.
authors.forename: Kandace K
authors.initials: KK
authors.lastname: Fleming
authors.affiliation: Schiefelbusch Institute for Life Spans Studies, The University of Kansas, 1000 Sunnyside Avenue, Lawrence, KS, 66045-7555, USA.|Department of Speech and Hearing Science, University of Illinois, 901S. Sixth St., Champaign, IL, 61820, USA.
authors.forename: Laura J
authors.initials: LJ
authors.lastname: Hahn
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001321:Autistic Disorder / Q000150:complications / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D003142:Communication; D005260:Female; D005600:Fragile X Syndrome / Q000150:complications / Q000523:psychology*; D006801:Humans; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D009034:Mother-Child Relations / Q000523:psychology*; D016487:Parenting; D012951:Socialization
keywords: Adaptive behavior; Fragile X syndrome; Maternal responsivity