title: The experience of adult children of mothers with intellectual disability: A qualitative retrospective study from Poland.
abstract: BACKGROUND
  Little is known about the experience of growing up with a mother with intellectual disability. The aim of this study was to explore this experience from the perspective of adult children.
  
  
  METHODS
  In-depth interviews with 23 adult children brought up by mothers with moderate-to-severe intellectual disability. The interview data were analysed using grounded theory methods.
  
  
  RESULTS
  The childhood experiences of the interviewees and the role their mothers played in their upbringing varied, depending in part on the involvement of extended family. It was the stigma of maternal intellectual disability, rather than their mother's functional limitations, that posed the greatest challenge.
  
  
  CONCLUSIONS
  Interviewees characterized their mothers and childhoods as different, yet ordinary. Understanding the social context, including but not limited to the availability of informal support, is critical to understanding the experience of children growing up with mothers with intellectual disability.
authors.affiliation: Department of Special Education, The Maria Grzegorzewska University, Warsaw, Poland.
authors.forename: Agnieszka
authors.initials: A
authors.lastname: Wołowicz-Ruszkowska
authors.affiliation: Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.
authors.forename: David
authors.initials: D
authors.lastname: McConnell
mesh_terms: D000328:Adult; D032721:Adult Children / Q000523:psychology*; D016241:Child of Impaired Parents / Q000523:psychology*; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008297:Male; D009035:Mothers / Q000523:psychology*; D011044:Poland; D036301:Qualitative Research; D055815:Young Adult
keywords: adult children; mothers with intellectual disability; non-institutional support; qualitative research