title: Health Care Transition Planning Among Adolescents with Autism Spectrum Disorder.
abstract: Improving the health care transition process for youth with autism spectrum disorder (ASD) is critically important. This study was designed to examine the overall national transition core outcome among youth with ASD and each of the component measures of health care transition planning. Fewer than 10% of youth with ASD meet the national transition core outcome. Among youth with ASD, there is greater disparity in health care transition planning for non-Hispanic black youth, youth with family income <400% of the federal poverty line, and youth with more severe activity limitation. Continued advocacy, research, and training efforts are needed to reduce disparities in receipt of health care transition planning services for youth with ASD.
authors.affiliation: School of Social Work, The Institute for Collaborative Health Research and Practice, The University of Texas at Austin, Austin, TX, USA. walsh.casey@utexas.edu.
authors.forename: Casey
authors.identifier: 0000-0003-4926-5301
authors.initials: C
authors.lastname: Walsh
authors.affiliation: School of Social Work, The Institute for Collaborative Health Research and Practice, The University of Texas at Austin, Austin, TX, USA.
authors.forename: Barbara
authors.initials: B
authors.lastname: Jones
authors.affiliation: Boston Children's Hospital & Harvard Medical School, 300 Longwood Ave, Boston, MA, USA.
authors.forename: Alison
authors.initials: A
authors.lastname: Schonwald
mesh_terms: D000293:Adolescent; D001741:Black or African American / Q000523:psychology / Q000706:statistics & numerical data; D000067877:Autism Spectrum Disorder / Q000628:therapy*; D005260:Female; D054625:Healthcare Disparities / Q000706:statistics & numerical data*; D006801:Humans; D008297:Male; D010347:Patient Care Planning / Q000706:statistics & numerical data*; D011203:Poverty / Q000523:psychology / Q000706:statistics & numerical data; D060305:Transition to Adult Care / Q000706:statistics & numerical data*; D055815:Young Adult
keywords: Adolescents; Autism spectrum disorder; Family-centered care; Health care transition planning; Medical home