title: Does newborn screening influence the young cystic fibrosis cohort included in national registries?
authors.affiliation: Dept of Pediatrics, University of Leuven, Leuven, Belgium Christiane.deboeck@uzleuven.be.
authors.forename: Kris
authors.initials: K
authors.lastname: De Boeck
authors.affiliation: Association Française Dépistage Prévention Handicap Enfant, Paris, France.|CF centre, Assistance-publique Hôpitaux de Paris, Université Paris, Hôpital Robert Debré, Paris, France.
authors.forename: Anne
authors.initials: A
authors.lastname: Munck
authors.affiliation: Swedish Cystic Fibrosis Registry, Karolinska Institutet, Stockholm, Sweden.
authors.forename: Isabelle
authors.initials: I
authors.lastname: de Monestrol
authors.affiliation: Dutch CF Foundation (NCFS), Baarn, The Netherlands.
authors.forename: Vincent
authors.initials: V
authors.lastname: Gulmans
authors.affiliation: French CF registry, Vaincre la mucoviscidose, Paris, France.
authors.forename: Lydie
authors.initials: L
authors.lastname: Lemonnier
authors.affiliation: Australian CF registry, Sydney, Australia.
authors.forename: Peter G
authors.initials: PG
authors.lastname: Middleton
authors.affiliation: Belgian Cystic Fibrosis Registry, Scientific Institute of Public Health (WIV-ISP), Brussels, Belgium.
authors.forename: Simeon
authors.initials: S
authors.lastname: Wanyama
authors.affiliation: Belgian Cystic Fibrosis Registry, Scientific Institute of Public Health (WIV-ISP), Brussels, Belgium.
authors.forename: Muriel
authors.initials: M
authors.lastname: Thomas
mesh_terms: D000367:Age Factors; D001315:Australia; D001530:Belgium; D015992:Body Mass Index; D002648:Child; D002675:Child, Preschool; D015331:Cohort Studies; D003550:Cystic Fibrosis / Q000175:diagnosis* / Q000453:epidemiology*; D019005:Cystic Fibrosis Transmembrane Conductance Regulator / Q000235:genetics; D003625:Data Collection / Q000592:standards*; D005541:Forced Expiratory Volume; D005602:France; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007391:International Cooperation; D009154:Mutation; D015997:Neonatal Screening / Q000379:methods*; D009426:Netherlands; D010865:Pilot Projects; D012042:Registries; D012189:Retrospective Studies; D013542:Sweat; D013548:Sweden
chemical_list: C505032:CFTR protein, human; D019005:Cystic Fibrosis Transmembrane Conductance Regulator