title: The study is open: Participants are now recruiting investigators.
abstract: Two U.S. national initiatives have stated emphatically that people will be, not patients, but partners in clinical research.
authors.affiliation: Sharon F. Terry, President and CEO of Genetic Alliance, Washington, DC 20008, USA, and serves as a member of the PCORnet leadership and the Cohort Advisory Panel of the U.S. Precision Medicine Initiative. sterry@geneticalliance.org.
authors.forename: Sharon F
authors.initials: SF
authors.lastname: Terry
mesh_terms: D035843:Biomedical Research; D006801:Humans; D009316:National Institutes of Health (U.S.); D010344:Patient Advocacy; D010358:Patient Participation; D018579:Patient Selection; D018802:Patient-Centered Care; D012107:Research Design; D012108:Research Personnel; D057170:Translational Research, Biomedical / Q000458:organization & administration; D014481:United States