title: Family-oriented services in pediatric rehabilitation: a scoping review and framework to promote parent and family wellness.
abstract: Family-oriented services are not as common as one would expect, given the widespread endorsement of family-centred care, the role of parents in supporting optimal child outcomes, and legislation and literature indicating that parent outcomes are important in their own right. There are no published service delivery frameworks describing the scope of services that could be delivered to promote parent and family wellness. A scoping review was conducted to identify types of family-oriented services for parents of children with physical disabilities and/or intellectual impairments. This information was then synthesized into a conceptual framework of services to inform service selection and design. A scoping review of the recent literature was performed to capture descriptions of services targeting parents/families of children with physical disabilities and/or intellectual impairments, published in a six-year period (2009 to 2014). Six databases were searched and 557 retrieved articles were screened using inclusion and exclusion criteria. Thirty six relevant articles were identified. Based on descriptions of services in these articles, along with seminal articles describing the nature of desirable services, we propose a needs-based and capacity-enhancing framework outlining a continuum of family-oriented services for parents of children with disabilities. The framework includes six types of services to meet parent/family needs, organized as a continuum from fundamental information/education services, to those supporting parents to deliver services to meet their child's needs, to a variety of services addressing parents' own needs (support groups, psychosocial services and service coordination). The framework provides pediatric rehabilitation service organizations with a way to consider different possible family-oriented services. Implications include the particular importance of providing information resources, support groups and psychosocial services to meet parents' needs, enhance capacity and promote family wellness. There is also an opportunity to provide composite parent-child services to address the needs of both parents and children.
authors.affiliation: Senior Scientist, Bloorview Research Institute and Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada.
authors.forename: G
authors.initials: G
authors.lastname: King
authors.affiliation: Director, Client and Family Integrated Care, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
authors.forename: L
authors.initials: L
authors.lastname: Williams
authors.affiliation: Bloorview Research Institute and OpenLab, University Health Network, Toronto, Canada.
authors.forename: S
authors.initials: S
authors.lastname: Hahn Goldberg
mesh_terms: D000223:Adaptation, Psychological; D002648:Child; D002908:Chronic Disease / Q000523:psychology / Q000534:rehabilitation*; D019988:Children with Disabilities / Q000523:psychology / Q000534:rehabilitation*; D005192:Family Health; D006801:Humans; D020380:Needs Assessment; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D018802:Patient-Centered Care / Q000458:organization & administration / Q000592:standards; D012944:Social Support; D012959:Socioeconomic Factors; D013315:Stress, Psychological
keywords: caregiver needs; disability; engagement; family; outcomes; parent; service delivery; service design