title: The patient-worker: A model for human research subjects and gestational surrogates.
abstract: We propose the 'patient-worker' as a theoretical construct that responds to moral problems that arise with the globalization of healthcare and medical research. The patient-worker model recognizes that some participants in global medical industries are workers and are owed worker's rights. Further, these participants are patient-like insofar as they are beneficiaries of fiduciary relationships with healthcare professionals. We apply the patient-worker model to human subjects research and commercial gestational surrogacy. In human subjects research, subjects are usually characterized as either patients or as workers. Through questioning this dichotomy, we argue that some subject populations fit into both categories. With respect to commercial surrogacy, we enrich feminist discussions of embodied labor by describing how surrogates are beneficiaries of fiduciary obligations. They are not just workers, but patient-workers. Through these applications, the patient-worker model offers a helpful normative framework for exploring what globalized medical industries owe to the individuals who bear the bodily burdens of medical innovation.
authors.forename: Emma
authors.initials: E
authors.lastname: Ryman
authors.forename: Katy
authors.initials: K
authors.lastname: Fulfer
mesh_terms: D032984:Ethics, Research; D006801:Humans; D007258:Informed Consent; D000072577:Moral Status; D060926:Remuneration; D012106:Research; D035842:Research Subjects; D013533:Gestational Carriers; D035862:Vulnerable Populations
keywords: commercial surrogacy; fiduciary relationships; medical research ethics