title: Integrating Patient Concerns into Parkinson's Disease Management.
abstract: Parkinson's disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.
authors.affiliation: Division of Neurology, University of Malaya, Kuala Lumpur, Malaysia. limshenyang@ymail.com.|Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, University of Malaya, Kuala Lumpur, Malaysia. limshenyang@ymail.com.
authors.forename: Shen-Yang
authors.initials: SY
authors.lastname: Lim
authors.affiliation: Division of Neurology, University of Malaya, Kuala Lumpur, Malaysia.|Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Ai Huey
authors.initials: AH
authors.lastname: Tan
authors.affiliation: Movement Disorder Clinic, University of Toronto, Toronto Western Hospital, Toronto, ON, Canada.
authors.forename: Susan H
authors.initials: SH
authors.lastname: Fox
authors.affiliation: Department of Neurology, Royal Melbourne Hospital, Parkville, VIC, Australia.
authors.forename: Andrew H
authors.initials: AH
authors.lastname: Evans
authors.affiliation: Division of Neurology, University of Malaya, Kuala Lumpur, Malaysia.
authors.forename: Soon Chai
authors.initials: SC
authors.lastname: Low
mesh_terms: D017028:Caregivers; D006801:Humans; D010300:Parkinson Disease / Q000628:therapy*; D017060:Patient Satisfaction; D057285:Precision Medicine; D011788:Quality of Life
keywords: Caregiver burden; Economic burden; Knowledge and awareness; Mobile health technology; Natural history; Non-motor symptoms; Parkinson’s disease; Patient perspective; Patient satisfaction; Patient-centred care; Personalized medicine; Quality of life; Sensors; Specialty care; Telehealth; Telemedicine; Work