title: Parent-perceived Facilitators in the Transition of Care for Young Adult Survivors of Childhood Cancer.
abstract: Most childhood cancer survivors need life-long care with specialized late-effects surveillance and screening. As these children age into adulthood, it is imperative to continue their survivor-focused care. To do so, health care systems must be prepared to care for this growing and aging population. This includes creating models of care that take into account the needs and desires of all key stakeholders: survivors, parents, pediatric providers, and adult providers. This clinical observation describes that parents desire comprehensive and highly accessible survivorship care that promotes survivor independence; yet, they also want to have a central role in their child's survivorship care.
authors.affiliation: *The Children's Hospital of Philadelphia Division of Oncology, Philadelphia, PA †Department of Oncology, Children's National Medical Center, Washington, DC ‡GW Medical Faculty Associates, Division of Internal Medicine, Department of Medicine, Washington, DC §Children's Brain Tumor Foundation, New York, NY ∥Department of Radiation Oncology, University of Maryland Medical Center, Baltimore, MD ¶University of Minnesota Masonic Children's Hospital #University of Minnesota Masonic Cancer Center, Minneapolis, MN.
authors.forename: Amanda
authors.initials: A
authors.lastname: DiNofia
authors.forename: Kate
authors.initials: K
authors.lastname: Shafer
authors.forename: Katarina
authors.initials: K
authors.lastname: Steacy
authors.forename: Karim Thomas
authors.initials: KT
authors.lastname: Sadak
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D003695:Delivery of Health Care / Q000639:trends; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D009369:Neoplasms; D010290:Parents / Q000523:psychology*; D017741:Survivors; D060305:Transition to Adult Care; D055815:Young Adult