title: [Transition experience of patients with neuromuscular disease].
abstract: Neuromuscular diseases are mostly genetic disorders, with chronic and progressive course. Affected people are at high risk of developing physical and emotional disabilities. In the last decades, the advance in technology and science has increased chronic pediatric patients survival rate, thus requiring an ongoing assistance in adult hospitals, making the transition a necessity and a challenge. This article reports the clinical practice designed between Hospital Garrahan and Hospital Ramos Mejía for the transition of 27 adolescents during 2015, setting achievements, findings and challenges resulting from this experience.
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: Valeria
authors.initials: V
authors.lastname: Greif
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.|Universidad de Buenos Aires, Ciudad Autónoma de Buenos Aires, Argentina. florencia_ugo@yahoo. com.ar.
authors.forename: Florencia
authors.initials: F
authors.lastname: Ugo
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: M Fernanda
authors.initials: MF
authors.lastname: de Castro Pérez
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: Julieta
authors.initials: J
authors.lastname: Mozzoni
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: Verónica
authors.initials: V
authors.lastname: Aguerre
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: Milagros
authors.initials: M
authors.lastname: Saldías
authors.affiliation: Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.
authors.forename: M Soledad
authors.initials: MS
authors.lastname: Monges
mesh_terms: D000293:Adolescent; D005260:Female; D006801:Humans; D008297:Male; D009468:Neuromuscular Diseases / Q000628:therapy; D060305:Transition to Adult Care; D055815:Young Adult
keywords: adolescence; chronic disease; health transition; neuromuscular diseases