title: The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany.
abstract: The first Team Haemophilia Education (THE) Meeting was held on 7-8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19-20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.
authors.affiliation: Skåne University Hospital, Lund University, Malmö, Sweden.
authors.forename: Erik
authors.initials: E
authors.lastname: Berntorp
authors.affiliation: Clinical Haemostasis Unit, Lyon Hospital, University of Lyon, Lyon, France.
authors.forename: Yesim
authors.initials: Y
authors.lastname: Dargaud
authors.affiliation: Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, UK.
authors.forename: Daniel
authors.initials: D
authors.lastname: Hart
authors.affiliation: Service d'hématologie, Cliniques Universitaires Saint-Luc, Brussels, Belgium.
authors.forename: Sébastien
authors.initials: S
authors.lastname: Lobet
authors.affiliation: Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico, Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre, Milan, Italy.
authors.forename: Maria Elisa
authors.initials: ME
authors.lastname: Mancuso
authors.affiliation: Centre for Haemophilia and Rare Congenital Bleeding Disorders, University Hospitals Paris-Sud, AP-HP Bicêtre Hospital, Le Kremlin-Bicêtre, France.
authors.forename: Roseline
authors.initials: R
authors.lastname: d'Oiron
authors.affiliation: Addenbrooke's Hospital, University of Cambridge, Cambridge, UK.
authors.forename: David
authors.initials: D
authors.lastname: Perry
authors.affiliation: Katharine Dormandy Haemophilia & Thrombosis Centre, Royal Free Hospital, London, UK.
authors.forename: Debra
authors.initials: D
authors.lastname: Pollard
authors.affiliation: Department of Health and Epidemiology, University of Utrecht, Utrecht, The Netherlands.
authors.forename: Marijke
authors.initials: M
authors.lastname: van den Berg
authors.affiliation: Department of Paediatric Haematology, Children's University Hospital and Masaryk University, Brno, Czech Republic.
authors.forename: Jan
authors.initials: J
authors.lastname: Blatný
authors.affiliation: Department of Paediatrics, La Timone Children Hospital, APHM and Aix-Marseille University, Marseille, France.
authors.forename: Hervé
authors.initials: H
authors.lastname: Chambost
authors.affiliation: Department of Diagnostic Imaging, The Hospital for Sick Children, Toronto, ON, Canada.|Department of Medical Imaging, University of Toronto, Toronto, ON, Canada.
authors.forename: Andrea S
authors.initials: AS
authors.lastname: Doria
authors.affiliation: Department of Haematology and Institute of Clinical Medicine, Oslo University and Oslo University Hospital, Rikshospitalet, Norway.
authors.forename: Pål André
authors.initials: PA
authors.lastname: Holme
authors.affiliation: Hirszfeld Institute of Immunology and Experimental Therapy, Wroclaw, Poland.
authors.forename: Radoslaw
authors.initials: R
authors.lastname: Kaczmarek
authors.affiliation: Public Health, CESP-Center of Public Health Research, University of Milano-Bicocca, Milan, Italy.
authors.forename: Lorenzo
authors.initials: L
authors.lastname: Mantovani
authors.affiliation: Department of Physiotherapy, Katharine Dormandy Haemophilia Centre, Royal Free Hospital, London, UK.
authors.forename: Paul
authors.initials: P
authors.lastname: McLaughlin
authors.affiliation: Department of Restorative Dentistry, Barts Health NHS Trust, London, UK.
authors.forename: Lochana
authors.initials: L
authors.lastname: Nanayakkara
authors.affiliation: Department of Paediatrics, Karolinska University Hospital, Stockholm, Sweden.
authors.forename: Pia
authors.initials: P
authors.lastname: Petrini
authors.affiliation: Association Française des Hémophilies (AFH), Paris, France.
authors.forename: Thomas
authors.initials: T
authors.lastname: Sannié
authors.affiliation: North Estonia Medical Centre, Tallinn, Estonia.
authors.forename: Edward
authors.initials: E
authors.lastname: Laane
authors.affiliation: Paediatric Haematology Unit, Dona Estefânia Hospital, Lisbon, Portugal.
authors.forename: Raquel
authors.initials: R
authors.lastname: Maia
authors.affiliation: Haemophilia Centre and Haemostasis Unit, 'Aghia Sophia' Children's Hospital, Athens, Greece.
authors.forename: Athina
authors.initials: A
authors.lastname: Dettoraki
authors.affiliation: Bristol Royal Hospital for Children, Bristol, UK.
authors.forename: Anna
authors.initials: A
authors.lastname: Farrell
authors.affiliation: Gerinnungszentrum Rhein-Ruhr (GZRR), Duisburg, Germany.
authors.forename: Susan
authors.initials: S
authors.lastname: Halimeh
authors.affiliation: Oxford University Hospitals NHS Foundation Trust, Oxford, UK.
authors.forename: Sayma
authors.initials: S
authors.lastname: Raza
authors.affiliation: Oxford Haemophilia and Thrombosis Centre, Oxford University Hospitals Foundation Trust, Oxford, UK.
authors.forename: Stephanie
authors.initials: S
authors.lastname: Taylor
mesh_terms: D003695:Delivery of Health Care; D019468:Disease Management; D005060:Europe; D005858:Germany; D006268:Health Facilities; D006467:Hemophilia A / Q000628:therapy*; D002836:Hemophilia B / Q000628:therapy*; D006801:Humans; D010348:Patient Care Team
keywords: clotting factor concentrates; genetics; haemophilia; laboratory assays; multidisciplinary; real-life data