title: Quality of Care for Systemic Lupus Erythematosus: Mind the Knowledge Gap.
abstract: Systemic lupus erythematosus (SLE) is a prototypical chronic multiorgan autoimmune disorder that can lead to significant burden of disease and loss of life expectancy. The disease burden is the result of a complex interplay between genetic, biologic, socioeconomic, and health system variables affecting the individual. Recent advances in biological understanding of SLE are yet to translate to transformative therapies, and genetic and socioeconomic variables are not readily amenable to intervention. In contrast, healthcare quality, a variable readily amenable to change, has been inadequately addressed in SLE, despite evidence in other chronic diseases that quality of care is strongly associated with patient outcomes. This article will analyze the available literature on the quality of care relevant to SLE, identify knowledge gaps, and suggest ways to address this in future research.
authors.affiliation: From the Monash University School of Clinical Sciences, Monash Medical Centre, Melbourne, Australia. vera.golder@monash.edu.|V. Golder, MBBS, BMedSc, FRACP, Monash University School of Clinical Sciences, Monash Medical Centre; E.F. Morand, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre; A.Y. Hoi, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre. vera.golder@monash.edu.
authors.forename: Vera
authors.initials: V
authors.lastname: Golder
authors.affiliation: From the Monash University School of Clinical Sciences, Monash Medical Centre, Melbourne, Australia.|V. Golder, MBBS, BMedSc, FRACP, Monash University School of Clinical Sciences, Monash Medical Centre; E.F. Morand, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre; A.Y. Hoi, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre.
authors.forename: Eric F
authors.initials: EF
authors.lastname: Morand
authors.affiliation: From the Monash University School of Clinical Sciences, Monash Medical Centre, Melbourne, Australia.|V. Golder, MBBS, BMedSc, FRACP, Monash University School of Clinical Sciences, Monash Medical Centre; E.F. Morand, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre; A.Y. Hoi, MBBS, FRACP, PhD, Monash University School of Clinical Sciences, Monash Medical Centre.
authors.forename: Alberta Y
authors.initials: AY
authors.lastname: Hoi
mesh_terms: D006801:Humans; D008180:Lupus Erythematosus, Systemic / Q000628:therapy*; D011787:Quality of Health Care
keywords: OUTCOMES; PATIENT SATISFACTION; PHYSICIAN PRACTICE PATTERNS; PRACTICE GUIDELINES; SYSTEMIC LUPUS ERYTHEMATOSUS