title: Person-centred care in chronic kidney disease: a cross-sectional study of patients' desires for self-management support.
abstract: BACKGROUND
  People with chronic kidney disease (CKD) must self-manage their illness to assist with slowing disease-progression, but this is a complex task requiring support from healthcare professionals. Despite the established importance of person-centred care, people with CKD are rarely consulted regarding their desires for self-management support (SMS).
  
  
  METHODS
  A cross-sectional survey was conducted face-to-face in a Queensland primary care clinic and distributed Australia-wide via an online interface promoted by Kidney Health Australia during 2015. Participants were ≥18 years old and had a self-reported doctor's diagnosis of CKD (any stage; N = 97). The survey was based upon existent literature which identified 10 areas that those with CKD believe require additional support. Descriptive data were generated and Mann-Whitney U tests were performed to compare the desires of different groups of participants.
  
  
  RESULTS
  Of the 97 participants, 36 completed a hardcopy survey in clinic, and 61 completed the online version. Just over half (60.8%) were female, age ranged from 16-89 (M = 56.44), and time since diagnosis ranged from just diagnosed to 60 years (Mdn = 8.08 years). Strong interest in receiving additional support across all 10 areas was reported (Mdns = 8.00-10.00), with "keeping a positive attitude and taking care of mental and physical health" receiving the highest rating. Those who were: younger (p < .001); more highly educated (p < .001); working (p < .001); diagnosed longer ago (p = .015); and women (p = .050) expressed stronger overall desire for additional support.
  
  
  CONCLUSIONS
  In addition to information about CKD and medications, everyday strategies ought to be prioritised in patient education. Varying levels of engagement and eagerness to learn more about self-management highlight the need for a person-centred approach to SMS.
authors.affiliation: School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia. kathryn.havas@qut.edu.au.|Chronic Kidney Disease Centre for Research Excellence, University of Queensland, Brisbane, Australia. kathryn.havas@qut.edu.au.
authors.forename: Kathryn
authors.identifier: http://orcid.org/0000-0002-6497-5830
authors.initials: K
authors.lastname: Havas
authors.affiliation: School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia.
authors.forename: Clint
authors.initials: C
authors.lastname: Douglas
authors.affiliation: School of Nursing, Queensland University of Technology, Victoria Park Rd, 4059, Kelvin Grove, Brisbane, QLD, Australia.|Chronic Kidney Disease Centre for Research Excellence, University of Queensland, Brisbane, Australia.|Visiting Research Fellow, Kidney Health Service, Metro North Hospital and Health Service, Brisbane, Australia.
authors.forename: Ann
authors.initials: A
authors.lastname: Bonner
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001315:Australia / Q000453:epidemiology; D003430:Cross-Sectional Studies; D005260:Female; D019538:Health Care Surveys; D006801:Humans; D008297:Male; D008875:Middle Aged; D010358:Patient Participation / Q000523:psychology / Q000706:statistics & numerical data*; D057240:Patient Preference / Q000523:psychology / Q000706:statistics & numerical data*; D018802:Patient-Centered Care / Q000706:statistics & numerical data*; D015995:Prevalence; D051436:Renal Insufficiency, Chronic / Q000453:epidemiology* / Q000523:psychology / Q000628:therapy*; D012648:Self Care / Q000523:psychology / Q000706:statistics & numerical data*; D055815:Young Adult
keywords: Chronic kidney disease; Patient education; Patient preferences; Patient-centred care; Self-management