title: Quality of life and functional vision in children treated for cataract-a cross-sectional study.
abstract: PurposeChildren with cataract and their families face intensive medical and surgical management, with numerous hospital attendances, topical medications, and surgical procedures, as well as uncertainty about the child's future visual ability, education, and independence. Little is known about the impact on functional visual ability, vision-, and health-related quality of life (VR-, HR-QoL).Patients and methodsSeventy two children aged 2-16 years (mean 8.45, SD 4.1) treated for developmental or secondary cataract and their parents/carers completed three validated instruments measuring functional visual ability, VR-, and HR-QoL: the Cardiff Visual Ability Questionnaire for Children (CVAQC), Impact of Vision Impairment for Children (IVI-C), and PedsQL V 4.0.ResultsAll scores are markedly reduced: median (interquartile range (IQR)) CVAQC score -1.42 (-2.28 to -0.03), mean (SD) IVI-C score 65.67 (16.91), median (IQR) PedsQL family impact score 75 (56.94-88.19), parent report 71.74 (51.98-88.5), self-report 76.09 (61.96-89.13). Psychosocial PedsQL subscores are lower than physical subscores. Parent-completed tools (PedsQL family and parent report) state greater impact on HR-QoL than tools completed by children/young people, particularly in teenagers. Older children/young people have higher functional visual ability scores than younger children.ConclusionsCataract has a marked a long-term impact on functional visual ability and quality of life of children and young people, with HR-QoL affected to degrees reported in children with severe congenital cardiac defects or liver transplants.
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: V K
authors.initials: VK
authors.lastname: Tailor
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: Y
authors.initials: Y
authors.lastname: Abou-Rayyah
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: J
authors.initials: J
authors.lastname: Brookes
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: P T
authors.initials: PT
authors.lastname: Khaw
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: M
authors.initials: M
authors.lastname: Papadopoulos
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: G G W
authors.initials: GGW
authors.lastname: Adams
authors.affiliation: Department of Primary Care &Public Health Sciences, King's College London, London, UK.|London School of Hygiene and Tropical Medicine, London, UK.
authors.forename: C
authors.initials: C
authors.lastname: Bunce
authors.affiliation: Paediatric, Glaucoma, Adnexal and Statistics Services, NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology, London, UK.
authors.forename: A
authors.identifier: http://orcid.org/0000-0002-7402-4350
authors.initials: A
authors.lastname: Dahlmann-Noor
mesh_terms: D000293:Adolescent; D002386:Cataract / Q000503:physiopathology / Q000523:psychology* / Q000628:therapy; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D019468:Disease Management; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D011788:Quality of Life; D012189:Retrospective Studies; D057566:Self Report; D011795:Surveys and Questionnaires; D014792:Visual Acuity