title: The Experiences of Fathers Who Have Offspring with Autism Spectrum Disorder.
abstract: Research exploring parents' experiences of having offspring with autism spectrum disorder (ASD) currently underrepresents fathers. This study aimed to develop an understanding of the experience of fathers, with a view to facilitating improved support. Eight fathers participated in semi-structured interviews exploring their experiences of fathering children with ASD. Fathers described their experiences as a path towards acceptance, with independence and integration for their offspring being key goals. Fathers saw themselves as advocates fighting obstructive services to access appropriate care. The value placed on formal and informal support varied, although the need for personalised support was emphasised. Enabling fathers to see their experiences as a journey, whilst engaging them on the important topics of independence and integration, may improve their experience.
authors.affiliation: College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK.
authors.forename: Alexander
authors.initials: A
authors.lastname: Burrell
authors.affiliation: School of Social and Community Medicine, University of Bristol, Room G.4a, Canynge Hall, 39 Whatley Road, Bristol, BS8 2PS, UK. ji15505@bristol.ac.uk.
authors.forename: Jonathan
authors.initials: J
authors.lastname: Ives
authors.affiliation: School of Psychology, University of Birmingham, Birmingham, UK.
authors.forename: Gemma
authors.initials: G
authors.lastname: Unwin
mesh_terms: D000293:Adolescent; D000374:Aggression / Q000523:psychology; D000067877:Autism Spectrum Disorder / Q000453:epidemiology* / Q000523:psychology*; D002648:Child; D005219:Father-Child Relations; D005220:Fathers / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: Acceptance; Autism spectrum disorder; Experiences; Fathers; Qualitative