title: Health care as perceived by persons with inflammatory bowel disease - a focus group study.
abstract: OBJECTIVE
  The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease.
  
  
  BACKGROUND
  The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high-quality care, greater focus must be placed on the individual's own perspective of living with the condition.
  
  
  METHODS
  A qualitative exploratory study was conducted based on focus groups.
  
  
  METHODS
  Five focus groups were conducted with adult persons living with inflammatory bowel disease, 14 men and 12 women aged 19-76 years. The interviews were performed between January-June 2014.
  
  
  RESULTS
  The perceptions of health care from the perspective of persons living with inflammatory bowel disease were summarised in two categories: 'professional attitudes of healthcare staff' and 'structure of the healthcare organisation'. Persons with inflammatory bowel disease want to be encountered with respect, experience trust and obtain information at the right time. They also expect shared decision-making, communication and to encounter competent healthcare professionals. Furthermore, the expectations on and perceptions of the structure of the healthcare organisation comprise access to care, accommodation, continuity of care, as well as the pros and cons of specialised care.
  
  
  CONCLUSIONS
  The findings show the importance of establishing a respectful and trusting relationship, facilitating healthcare staff and persons with inflammatory bowel disease to work as a team in fulfilling individual care needs - but there is room for improvement in terms of quality of care.
  
  
  CONCLUSIONS
  A person-centred approach, which places the individual and her/his family at the centre, considering them experts on their own health and enabling them to collaborate with healthcare staff, seems important to reach a high-quality healthcare organisation for patients with Inflammatory bowel disease.
authors.affiliation: Department of Gastroenterology, Linköping University, Linköping, Sweden.|Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
authors.forename: Katarina Pihl
authors.initials: KP
authors.lastname: Lesnovska
authors.affiliation: Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.|Department of Anaesthetics, Operations and Specialty Surgery Center, Linköping University, Linköping, Sweden.
authors.forename: Gunilla
authors.initials: G
authors.lastname: Hollman Frisman
authors.affiliation: Department of Gastroenterology, Linköping University, Linköping, Sweden.|Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden.
authors.forename: Henrik
authors.initials: H
authors.lastname: Hjortswang
authors.affiliation: Department of Social and Welfare Studies, Linköping University, Norrkoping, Sweden.
authors.forename: Katarina
authors.initials: K
authors.lastname: Hjelm
authors.affiliation: Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
authors.forename: Sussanne
authors.initials: S
authors.lastname: Börjeson
mesh_terms: D000328:Adult; D000368:Aged; D001291:Attitude of Health Personnel; D002908:Chronic Disease / Q000523:psychology; D003657:Decision Making; D003695:Delivery of Health Care / Q000458:organization & administration*; D005260:Female; D017144:Focus Groups; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000523:psychology* / Q000628:therapy; D008297:Male; D008875:Middle Aged; D010465:Perception; D011369:Professional-Patient Relations; D036301:Qualitative Research; D011787:Quality of Health Care / Q000458:organization & administration*
keywords: Focus group interview; inflammatory bowel disease; quality of care