title: A Qualitative Analysis of the Information Needs of Parents of Children with Cystic Fibrosis prior to First Admission.
abstract: OBJECTIVE
  Hospitalization can be stressful for patients and their families. Pre-hospitalization information is crucial in establishing a good basis for patient satisfaction. In order to develop better preparatory material for parents, this qualitative study explored whether parents of children with cystic fibrosis, admitted to a UK Children's Hospital, felt adequately prepared for their child's admission.
  
  
  METHODS
  Data were collected from twelve parents whose children had been admitted within the last two years for routine intravenous antibiotics. Semi-structured interviews were analyzed using thematic analysis.
  
  
  RESULTS
  Four themes emerged from the analysis: (1) preparing for admission, (2) the ward as a challenging environment, (3) changes in the parent-professional relationship and (4) the parental role in medical care.
  
  
  CONCLUSIONS
  Provision of adequate preparatory information is essential in reducing parental stress, influencing how future experiences are appraised and managed. Effective parent-professional communication and opportunities to participate in care are likely to improve parental satisfaction.
  
  
  CONCLUSIONS
  Preparatory information prior to hospital admission greatly assists parents in making informed decisions and working as joint advocates in their child's inpatient care.
authors.affiliation: Bristol and Avon Multiple Sclerosis Service (BrAMS), Brain Centre, Southmead Hospital, Southmead Road, Westbury-on-Trym, Bristol BS10 5NB, UK. Electronic address: vera.fixter@nbt.nhs.uk.
authors.forename: Vera
authors.initials: V
authors.lastname: Fixter
authors.affiliation: Department of Psychology, University of Bath, Claverton Down, Bath BA2 7AY, UK.
authors.forename: Catherine
authors.initials: C
authors.lastname: Butler
authors.affiliation: Department of Psychology, University of Bath, Claverton Down, Bath BA2 7AY, UK.
authors.forename: Jo
authors.initials: J
authors.lastname: Daniels
authors.affiliation: Psychological Health Service, Bristol Royal Hospital for Children, Upper Maudlin St, Bristol BS2 8BJ, UK.
authors.forename: Samantha
authors.initials: S
authors.lastname: Phillips
mesh_terms: D000328:Adult; D000900:Anti-Bacterial Agents / Q000627:therapeutic use; D002648:Child; D002669:Child Welfare; D002675:Child, Preschool; D003550:Cystic Fibrosis / Q000175:diagnosis / Q000188:drug therapy*; D003657:Decision Making; D005260:Female; D006760:Hospitalization; D006801:Humans; D033181:Information Dissemination; D007262:Infusions, Intravenous; D007407:Interviews as Topic; D008297:Male; D020380:Needs Assessment; D010287:Parent-Child Relations; D010290:Parents / Q000193:education*; D010343:Patient Admission; D011368:Professional-Family Relations; D036301:Qualitative Research; D013315:Stress, Psychological / Q000523:psychology*; D006113:United Kingdom
chemical_list: D000900:Anti-Bacterial Agents
keywords: Cystic fibrosis; Information needs; Intravenous antibiotics; Parents