title: Interprofessional spanning and building boundaries when supporting potential embryo donors to stem cell research.
abstract: When patients undergo fertility treatment, it is likely that a surplus of embryos will be created. The existence of these surplus embryos creates responsibilities for the clinics where they are stored and for the people who own them. Since 2001, the owners of the surplus embryos in the UK have the option to donate them to be used in stem cell research (SCR). This development has generated a new population-potential embryo donors to SCR-who have unique support needs as they are neither fertility patients nor donors. However, little is known how lay and professional stakeholders associated with fertility treatment and SCR have conceptualised the support needs of potential embryo donors to SCR or have responded to the additional task once the option became available. In this article, we draw on Gieryn's concept of boundary-work to explore how the emergence of donating embryos to SCR has provided opportunities for embryologists, counsellors, and scientists to shift, adapt, or confirm their roles, knowledge base, and areas of expertise. We present a thematic analysis of 21 in-depth, semi-structured interviews conducted with UK lay and professional stakeholders associated with fertility treatment and SCR. We conclude with reflections on the implications this boundary-work has for those contemplating donating embryos to SCR and the care they receive when making their decision. Such insights are pertinent given the current policy and practice discussions led by the National Donation Strategy Group to improve the care of donors in the UK.
authors.affiliation: a Lancaster Medical School , Lancaster University , Lancaster , UK.
authors.forename: Laura L
authors.initials: LL
authors.lastname: Machin
authors.affiliation: b Lancaster Management School , Lancaster University , Lancaster , UK.
authors.forename: R A
authors.initials: RA
authors.lastname: Williams
mesh_terms: D003376:Counseling / Q000458:organization & administration; D019924:Embryo Disposition / Q000523:psychology*; D006282:Health Personnel; D006801:Humans; D007400:Interprofessional Relations; D007407:Interviews as Topic; D059232:Laboratory Personnel; D057766:Policy; D024382:Professional Role; D027724:Reproductive Techniques, Assisted / Q000523:psychology; D057905:Stem Cell Research; D006113:United Kingdom
keywords: Embryo donation; interprofessional relations; power; professional boundaries; qualitative method; stem cell research