title: Lessons Learned from Participatory Design in Dementia Care: Placing Care Partners at the Centre.
abstract: In this paper we analyze the participatory design (PD) process of a health information technology (HIT) project. This project, AToM was situated in dementia care and involved partners from academia, industry and care. The analysis specifically focuses on the role of the care partners in the PD process. We will show that the conditions to enable 'good participatory design' were not fully met and we present a set of actions to prevent this in future HIT projects. Central to our recommended approach is placing the care partners at the centre of the PD project.
authors.affiliation: Social Spaces, LUCA - School of Arts, KU Leuven, Belgium.
authors.forename: Niels
authors.initials: N
authors.lastname: Hendriks
authors.affiliation: Mintlab - imec, KU Leuven, Belgium.
authors.forename: Karin
authors.initials: K
authors.lastname: Slegers
authors.affiliation: Social Spaces, LUCA - School of Arts, KU Leuven, Belgium.
authors.forename: Andrea
authors.initials: A
authors.lastname: Wilkinson
mesh_terms: D017028:Caregivers; D055812:Community-Based Participatory Research; D003704:Dementia; D006801:Humans