title: Client and family engagement in rehabilitation research: a framework for health care organizations.
abstract: OBJECTIVE
  To describe the development and implementation of an organizational framework for client and family-centered research.
  
  
  METHODS
  Case report.
  
  
  RESULTS
  While patient-centered care is now well established, patient-centered research remains underdeveloped. This is particularly true at the organizational level (e.g., hospital based research institutes). In this paper we describe the development of an organizational framework for client and family centered research at Holland Bloorview Kids Rehabilitation Hospital in Toronto, Canada.
  
  
  CONCLUSIONS
  It is our hope that, by sharing our framework other research institutions can learn from our experience and develop their own research patient/client/family engagement programs. Implications for rehabilitation Family engagement in rehabilitation research •Rehabilitation research is crucial to the development and improvement of rehabilitative care. •The relevance, appropriateness, and accountability of research to patients, clients and families could be improved. •Engaging clients and families as partners in all aspects of the research process is one way to address this problem. •In this paper, we describe a framework for engaging clients and families in research at the organizational level.
authors.affiliation: a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: James
authors.initials: J
authors.lastname: Anderson
authors.affiliation: a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Laura
authors.initials: L
authors.lastname: Williams
authors.affiliation: a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Amir
authors.initials: A
authors.lastname: Karmali
authors.affiliation: a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Lori
authors.initials: L
authors.lastname: Beesley
authors.affiliation: b Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Nadia
authors.initials: N
authors.lastname: Tanel
authors.affiliation: b Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Krissy
authors.initials: K
authors.lastname: Doyle-Thomas
authors.affiliation: a Department of Client and Family Integrated Care , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Gideon
authors.initials: G
authors.lastname: Sheps
authors.affiliation: b Bloorview Research Institute , Holland Bloorview Kids Rehabilitation Hospital , Toronto , Canada.
authors.forename: Tom
authors.initials: T
authors.lastname: Chau
mesh_terms: D000046:Academic Medical Centers; D002170:Canada; D005190:Family; D006801:Humans; D010358:Patient Participation; D018802:Patient-Centered Care; D012047:Rehabilitation Centers; D000066768:Rehabilitation Research / Q000458:organization & administration*
keywords: Patient engagement; knowledge translation; participatory research; patient involvement