title: BMT Roadmap: A User-Centered Design Health Information Technology Tool to Promote Patient-Centered Care in Pediatric Hematopoietic Cell Transplantation.
abstract: Health information technology (HIT) has great potential for increasing patient engagement. Pediatric hematopoietic cell transplantation (HCT) is a setting ripe for using HIT but in which little research exists. "BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains: laboratory results, medications, clinical trial details, photos of the healthcare team, trajectory of transplant process, and discharge checklist. BMT Roadmap was provided to 10 caregivers of patients undergoing first-time HCT. Research assistants performed weekly qualitative interviews throughout the patient's hospitalization and at discharge and day 100 to assess the impact of BMT Roadmap. Rigorous thematic analysis revealed 5 recurrent themes: emotional impact of the HCT process itself; critical importance of communication among patients, caregivers, and healthcare providers; ways in which BMT Roadmap was helpful during inpatient setting; suggestions for improving BMT Roadmap; and other strategies for organization and management of complex healthcare needs that could be incorporated into BMT Roadmap. Caregivers found the tool useful and easy to use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care. Although this initial study is limited by the small sample size and single-institution experience, these initial findings are encouraging and support further investigation.
authors.affiliation: Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Lyndsey
authors.initials: L
authors.lastname: Runaas
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan; Comprehensive Cancer Center, Bioinformatics Core, University of Michigan, Ann Arbor, Michigan.
authors.forename: David
authors.initials: D
authors.lastname: Hanauer
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Molly
authors.initials: M
authors.lastname: Maher
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Evan
authors.initials: E
authors.lastname: Bischoff
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan; Center for Healthcare Engineering and Safety, University of Michigan College of Engineering, Ann Arbor, Michigan.
authors.forename: Alex
authors.initials: A
authors.lastname: Fauer
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Tiffany
authors.initials: T
authors.lastname: Hoang
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan; Center for Healthcare Engineering and Safety, University of Michigan College of Engineering, Ann Arbor, Michigan.
authors.forename: Anna
authors.initials: A
authors.lastname: Munaco
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan; Center for Healthcare Engineering and Safety, University of Michigan College of Engineering, Ann Arbor, Michigan.
authors.forename: Roshun
authors.initials: R
authors.lastname: Sankaran
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Rahael
authors.initials: R
authors.lastname: Gupta
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Sajjad
authors.initials: S
authors.lastname: Seyedsalehi
authors.affiliation: Center for Healthcare Engineering and Safety, University of Michigan College of Engineering, Ann Arbor, Michigan; Department of Industrial and Operations Engineering, University of Michigan College of Engineering, Ann Arbor, Michigan.
authors.forename: Amy
authors.initials: A
authors.lastname: Cohn
authors.affiliation: Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, Michigan; Center for Health Communications Research, Ann Arbor, Michigan.
authors.forename: Larry
authors.initials: L
authors.lastname: An
authors.affiliation: Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, Michigan; Department of Biomedical Engineering, University of Michigan College of Engineering, Ann Arbor, Michigan; Biointerfaces Institute, University of Michigan, Ann Arbor, Michigan; Department of Computational Medicine and Bioinformatics, University of Michigan Medical School, Ann Arbor, Michigan.
authors.forename: Muneesh
authors.initials: M
authors.lastname: Tewari
authors.affiliation: Department of Pediatrics, University of Michigan Medical School, Ann Arbor, Michigan. Electronic address: sungchoi@med.umich.edu.
authors.forename: Sung Won
authors.initials: SW
authors.lastname: Choi
mesh_terms: D000293:Adolescent; D000328:Adult; D017028:Caregivers / Q000193:education* / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D004644:Emotions; D005260:Female; D058015:Health Communication; D063025:Health Information Management; D018380:Hematopoietic Stem Cell Transplantation / Q000523:psychology*; D006760:Hospitalization; D006801:Humans; D008297:Male; D008490:Medical Informatics / Q000379:methods* / Q000592:standards; D008875:Middle Aged; D010358:Patient Participation / Q000379:methods; D000072638:Patient Portals; D018802:Patient-Centered Care / Q000379:methods*; D055815:Young Adult
keywords: Caregivers; HCT; Health information technology; Patient-centered care; Pediatric; User-centered design