Examining the Efficacy of a Family Peer Advocate Model for Black and Hispanic Caregivers of Children with Autism Spectrum Disorder.
Autism spectrum disorder (ASD) affects individuals across all racial and ethnic groups, yet rates of diagnosis are disproportionately higher for Black and Hispanic children. Caregivers of children with ASD experience significant stressors, which have been associated with parental strain, inadequate utilization of mental health services and lower quality of life. The family peer advocate (FPA) model has been utilized across service delivery systems to provide family-to-family support, facilitate engagement, and increase access to care. This study used a randomized controlled design to examine the efficacy of FPAs in a racially and ethnically diverse sample. Results demonstrate significantly increased knowledge of ASD and reduced levels of stress for caregivers who received the FPA intervention as compared to treatment as usual.
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.
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JM
Jamison
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.
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Fourie
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.|Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
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PM
Siper
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.|Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
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MP
Trelles
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.
Julia
J
George-Jones
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.
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A
Buxbaum Grice
Private Practice, New York, NY, USA.
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Krata
Saint Paul College, 235 Marshall Avenue, St. Paul, MN, 55102, USA.
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Holl
NYC Human Resources Administration, 150 Greenwich St., New York, NY, 10007, USA.
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J
Shaoul
Young Adult Institute (YAI) Autism Center, 460 W. 34th St., New York, NY, 10001, USA.
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B
Hernandez
Young Adult Institute (YAI) Autism Center, 460 W. 34th St., New York, NY, 10001, USA.
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L
Mitchell
McSilver Institute for Poverty Policy and Research, New York University Silver School of Social Work, 1 Washington Square North, G03, New York, NY, 10003, USA.
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McKay
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA.|Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA.|Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York, NY, USA.|Department of Neuroscience, Icahn School of Medicine at Mount Sinai, New York, NY, USA.|Friedman Brain Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA.|Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
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Buxbaum
Seaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1230, New York, NY, 10029, USA. alexander.kolevzon@mssm.edu.|Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA. alexander.kolevzon@mssm.edu.|Friedman Brain Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA. alexander.kolevzon@mssm.edu.|Department of Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA. alexander.kolevzon@mssm.edu.|Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA. alexander.kolevzon@mssm.edu.
Alexander
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Kolevzon
D000328:Adult; D001741:Black or African American / Q000523:psychology*; D000067877:Autism Spectrum Disorder / Q000451:nursing*; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D005196:Family Therapy; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006630:Hispanic or Latino / Q000523:psychology*; D006801:Humans; D008297:Male; D008605:Mental Health Services; D010290:Parents / Q000523:psychology*; D010342:Patient Acceptance of Health Care / Q000523:psychology; D010379:Peer Group; D011788:Quality of Life; D016037:Single-Blind Method; D013315:Stress, Psychological / Q000628:therapy*
Autism spectrum disorder; Caregiver stress; Family peer advocate; Minority