title: Experience-based design, co-design and experience-based co-design in palliative and end-of-life care.
abstract: Experience-based design, co-design, and experience-based co-design can be used within healthcare to design services that improve the patient, carer and staff experience of the services. As palliative and end-of-life care centrally value person-centred care, we believe that service designers, commissioners and those tasked with making quality improvements will be interested in this growing field. This paper outlines these approaches-with a particular emphasis on experience-based co-design-and describes how they are and can be used within palliative and end-of-life care. Based on a rapid review and several case studies, this article highlights the key lessons learnt from previous projects using these approaches and discusses areas for improvement in current reporting of service design projects.
authors.affiliation: School of Health, Wellbeing and Social Care, Open University, Milton Keynes, UK.
authors.forename: Erica
authors.identifier: http://orcid.org/0000-0002-1009-2928
authors.initials: E
authors.lastname: Borgstrom
authors.affiliation: Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
authors.forename: Stephen
authors.initials: S
authors.lastname: Barclay
mesh_terms: D003695:Delivery of Health Care / Q000592:standards*; D006801:Humans; D010166:Palliative Care / Q000379:methods* / Q000592:standards; D018802:Patient-Centered Care / Q000379:methods* / Q000592:standards; D058996:Quality Improvement; D013727:Terminal Care / Q000379:methods* / Q000592:standards
keywords: co-design; experience; palliative care; quality improvement