title: Caregiver burden and the medical ethos.
abstract: Are physicians sometimes morally required to ease caregiver burden? In our paper we defend an affirmative answer to this question. First, we examine the well-established principle that medical care should be centered on the patient. We argue that although this principle seems to give physicians some leeway to lessen caregivers' suffering, it is very restrictive when spelled out precisely. Based on a critical analysis of existing cases for transcending patient-centeredness we then go on to argue that the medical ethos should indeed contain a rule requiring physicians to alleviate caregiver burden under certain circumstances. Finally, we apply our findings to deep brain stimulation (DBS) for Parkinson's disease. We present empirical data from a recent study of DBS indicating that spousal caregivers of Parkinson patients treated with DBS are sometimes deeply troubled by the effects of the therapy and discuss what moral obligations the treating physicians may have in such cases.
authors.affiliation: Institut für Philosophie, Universität Duisburg-Essen, Universitätsstr. 12, 45141, Essen, Germany. karsten.witt@uni-due.de.
authors.forename: Karsten
authors.identifier: http://orcid.org/0000-0002-4123-5223
authors.initials: K
authors.lastname: Witt
authors.affiliation: Forschungsstelle Ethik, Uniklinik Köln, Universitätsstr. 91, 50931, Köln, Germany.
authors.forename: Johanne
authors.initials: J
authors.lastname: Stümpel
authors.affiliation: Forschungsstelle Ethik, Uniklinik Köln, Universitätsstr. 91, 50931, Köln, Germany.
authors.forename: Christiane
authors.initials: C
authors.lastname: Woopen
mesh_terms: D017028:Caregivers / Q000523:psychology*; D046690:Deep Brain Stimulation / Q000009:adverse effects / Q000941:ethics*; D006801:Humans; D028681:Moral Obligations; D010300:Parkinson Disease / Q000628:therapy; D010686:Philosophy, Medical; D010819:Physician's Role / Q000523:psychology*
keywords: Caregiver burden; Deep brain stimulation; Keywords; Medical ethos; Patient-centeredness