title: Data Sharing as the New Norm: What About the People Part?
authors.affiliation: Genetic Alliance , Washington, District of Columbia.
authors.forename: Katherine F
authors.initials: KF
authors.lastname: Lambertson
authors.affiliation: Genetic Alliance , Washington, District of Columbia.
authors.forename: Sharon F
authors.initials: SF
authors.lastname: Terry
mesh_terms: D030561:Databases, Nucleic Acid; D030661:Genetic Privacy / Q000941:ethics* / Q000458:organization & administration; D005820:Genetic Testing / Q000941:ethics / Q000379:methods; D006801:Humans; D033181:Information Dissemination / Q000941:ethics* / Q000379:methods