title: Enabling Adolescent Electronic Access to Personal Health Information.
abstract: In Canada, every individual has a right to their personal health information (PHI). As the use of consumer digital health solutions expands across Canada it is evident that a better understanding of the application of this right to individuals under the age of majority is needed. Research was undertaken between December 2015 and March 2016 which focused on various aspects of adolescent electronic access to PHI. The study included a privacy legal framework review; an environmental scan and literature review; a pan-Canadian survey and focus groups.
authors.affiliation: Canada Health Infoway.
authors.forename: Cassandra
authors.initials: C
authors.lastname: Frazer
authors.affiliation: Canada Health Infoway.
authors.forename: Fraser
authors.initials: F
authors.lastname: Ratchford
authors.affiliation: Canada Health Infoway.
authors.forename: Joan
authors.initials: J
authors.lastname: Roch
mesh_terms: D022126:Access to Information / Q000331:legislation & jurisprudence*; D000293:Adolescent; D000328:Adult; D002170:Canada; D002648:Child; D003219:Confidentiality / Q000331:legislation & jurisprudence; D057286:Electronic Health Records / Q000331:legislation & jurisprudence*; D017144:Focus Groups; D006801:Humans; D020407:Internet; D018907:Privacy / Q000331:legislation & jurisprudence*; D011795:Surveys and Questionnaires; D055815:Young Adult
keywords: access; adolescent; consumer; electronic; personal health information