title: The Hidden Morbidity of Cancer: Burden in Caregivers of Patients with Brain Metastases.
abstract: Caregiving is a highly individualized experience. Although numerous articles have been published on caregiver burden from a variety of diagnoses and conditions, this article presents the unique features of caregiving in patients with brain metastases. Improved long-term survival, concerns about disease recurrence or progression, the cancer experience (initial diagnosis, treatment, survivorship, recurrence, progression, and end of life), and the increasing complexity of cancer treatments add to the demands placed on the caregivers of patients with brain metastases. Health care professionals must identify caregiver burden and administer the appropriate interventions, which must be as unique and individualized as the caregivers' experiences.
authors.affiliation: Clinical Trials and Research, John Wayne Cancer Institute, Providence Saint John's Health Center, University of California, Los Angeles, School of Nursing, 2200 Santa Monica Boulevard, Santa Monica, CA 90404, USA. Electronic address: sariam@jwci.org.
authors.forename: Marlon Garzo
authors.initials: MG
authors.lastname: Saria
authors.affiliation: University of California, Los Angeles, School of Nursing, 700 Tiverton Avenue, Los Angeles, CA 90095, USA.
authors.forename: Adeline
authors.initials: A
authors.lastname: Nyamathi
authors.affiliation: University of California, Los Angeles, School of Nursing, 700 Tiverton Avenue, Los Angeles, CA 90095, USA.
authors.forename: Linda R
authors.initials: LR
authors.lastname: Phillips
authors.affiliation: Department of Psychology, University of California, Los Angeles, 1285 Franz Hall, Box 951563, Los Angeles, CA 90095-1563, USA.
authors.forename: Annette L
authors.initials: AL
authors.lastname: Stanton
authors.affiliation: Nursing Science, University of California, Irvine, 106 Berk Hall, Irvine, CA 92697-3959, USA.
authors.forename: Lorraine
authors.initials: L
authors.lastname: Evangelista
authors.affiliation: Department of Translational Neuro-Oncology and Neurotherapeutics, John Wayne Cancer Institute, Providence Saint John's Health Center, 2200 Santa Monica Boulevard, Santa Monica, CA 90404, USA.
authors.forename: Santosh
authors.initials: S
authors.lastname: Kesari
authors.affiliation: University of California, Los Angeles, School of Nursing, 700 Tiverton Avenue, Los Angeles, CA 90095, USA; University of Kansas Medical Center, University of Kansas School of Nursing, Mail Stop 2029, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA.
authors.forename: Sally
authors.initials: S
authors.lastname: Maliski
mesh_terms: D000223:Adaptation, Psychological; D001932:Brain Neoplasms / Q000451:nursing*; D017028:Caregivers / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D009362:Neoplasm Metastasis; D009364:Neoplasm Recurrence, Local / Q000451:nursing*; D011788:Quality of Life; D013315:Stress, Psychological
keywords: Brain metastases; Cancer; Caregiver burden; Caregivers; Neuro-oncology