title: International spinal cord injury bowel function basic data set (Version 2.0).
abstract: METHODS
  International expert working group.
  
  
  OBJECTIVE
  To revise the International Spinal Cord Injury (SCI) Bowel Function Basic Data Set as a standardized format for the collecting and reporting of a minimal amount of information on bowel function in clinical practice and research.
  
  
  METHODS
  Working group appointed by the American Spinal injury association (ASIA) and the International Spinal Cord Society (ISCoS).
  
  
  METHODS
  The draft prepared by the working group was reviewed by the International SCI Data Set Committee and later by members of the ISCoS Executive and Scientific Committees and the ASIA board. The revised data set was posted on the ASIA and ISCoS websites for 1 month to allow further comments and suggestions. Changes resulting from a Delphi process among experts in children with SCI were included. Members of ISCoS Executive and Scientific Committees and the ASIA board made a final review and approved the data set.
  
  
  RESULTS
  The International SCI Bowel Function Basic Data Set (Version 2.0) consists of the following 16 items: date of data collection, gastrointestinal and anal sphincter dysfunction unrelated to SCI, surgical procedures on the gastrointestinal tract, defecation method and bowel-care procedures, average time required for defecation, frequency of defecation, uneasiness, headache or perspiration during defecation, digital stimulation or evacuation of the anorectum, frequency of fecal incontinence, flatus incontinence, need to wear pad or plug, oral laxatives and prokinetics, anti-diarrheal agents, perianal problems, abdominal pain and discomfort and the neurogenic bowel dysfunction score.
  
  
  CONCLUSIONS
  The International SCI Bowel Function Basic Data Set (Version 2.0) has been developed.
authors.affiliation: Department of Hepatology and Gastroenterology, Neurogastroenterology Unit, Aarhus University Hospital, Aarhus, Denmark.
authors.forename: K
authors.initials: K
authors.lastname: Krogh
authors.affiliation: GI Physiology Unit, University College Hospital, London, UK.
authors.forename: A
authors.initials: A
authors.lastname: Emmanuel
authors.affiliation: Department of Physical Medicine and Rehabilitation, St Jacques Hospital, University Hospital of Nantes, Nantes, France.
authors.forename: B
authors.initials: B
authors.lastname: Perrouin-Verbe
authors.affiliation: Department of Medicine, Ichan School of Medicine, Mount Sinai and James J Peters VA Medical Center, Bronx, NY, USA.|VA National Center for the Medical Consequences of Spinal Cord Injury, Bronx, NY, USA.
authors.forename: M A
authors.initials: MA
authors.lastname: Korsten
authors.affiliation: Department of Occupational Therapy, Thomas Jefferson University, Jefferson College of Health Professions, Philadelphia, PA, USA.
authors.forename: M J
authors.initials: MJ
authors.lastname: Mulcahey
authors.affiliation: Clinic for Spinal Cord Injuries, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
authors.forename: F
authors.initials: F
authors.lastname: Biering-Sørensen
mesh_terms: D003625:Data Collection / Q000379:methods; D016208:Databases, Factual / Q000592:standards; D066264:Datasets as Topic / Q000592:standards; D013505:Digestive System Surgical Procedures; D005765:Gastrointestinal Agents / Q000627:therapeutic use; D005767:Gastrointestinal Diseases / Q000209:etiology* / Q000534:rehabilitation; D006801:Humans; D038622:Internationality; D013119:Spinal Cord Injuries / Q000150:complications* / Q000534:rehabilitation
chemical_list: D005765:Gastrointestinal Agents