title: InfoSAGE: Use of Online Technologies for Communication and Elder Care.
abstract: Aging creates new information and communication needs for families who are helping to coordinate care for frail parents. To identify how information and communication needs evolve with the aging process, we created a living laboratory of families, supported by an online private social network with tools for care coordination. Site registrants are invite to participate in a more in-depth survey-based longitudinal study. In year one, we assessed the feasibility of an online living laboratory. During this first year, 155 individuals registered on InfoSAGE, and 26% opted into the more in-depth longitudinal study. The survey response rate for those in the study was 61%. We present here a descriptive analysis of our early participants and networks, as well as barriers to participation that the study team encountered.
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Yuri
authors.initials: Y
authors.lastname: Quintana
authors.affiliation: Medical College of Wisconsin, Milwaukee, WI.
authors.forename: Bradley
authors.initials: B
authors.lastname: Crotty
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Darren
authors.initials: D
authors.lastname: Fahy
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Alex
authors.initials: A
authors.lastname: Orfanos
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Ruchira
authors.initials: R
authors.lastname: Jain
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Eli
authors.initials: E
authors.lastname: Kaldany
authors.affiliation: Harvard Medical School, Boston, MA.
authors.forename: Lewis
authors.initials: L
authors.lastname: Lipsitz
authors.affiliation: Institute for Aging Research, Hebrew SeniorLife, Boston, MA.
authors.forename: Diane
authors.initials: D
authors.lastname: Engorn
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Jorge
authors.initials: J
authors.lastname: Rodriguez
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Frank
authors.initials: F
authors.lastname: Pandolfe
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Adarsha
authors.initials: A
authors.lastname: Bajracharya
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Warner V
authors.initials: WV
authors.lastname: Slack
authors.affiliation: Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA.
authors.forename: Charles
authors.initials: C
authors.lastname: Safran
mesh_terms: D000368:Aged; D003142:Communication; D003695:Delivery of Health Care; D006801:Humans; D020407:Internet; D008137:Longitudinal Studies; D010290:Parents; D011795:Surveys and Questionnaires
keywords: Health information technology (HIT); Internet; elderly; social network