title: Psychosocial needs and interventions for heart failure patients and families receiving palliative care support: a systematic review.
abstract: Although diseases of the heart are the leading cause of death in the USA, palliative care research has largely focused on populations of cancer patients. However, a diagnosis of heart failure differs substantially than that of cancer. They differ in terms of signs and symptoms, disease trajectories, treatment options, stigma, and prognosis. Additionally, the populations affected by these differing illnesses are also unique in a number of fundamental ways. Based on these differences, it is reasonable to hypothesize that palliative care patients with heart failure, and their families, have a distinct set of psychosocial needs. The purpose of this review is to describe the psychosocial needs of palliative care heart failure patients, and their families, as well as the interventions that address those needs. Six electronic databases were searched in June 2016 resulting in 962 identified abstracts. After removal of 388 duplicates, 574 abstracts were screened based on the following criteria: (1) available in English, (2) peer-reviewed, (3) empirical data reported, (4) patient receiving palliative or hospice care, and (5) measured psychosocial needs of heart failure patients and/or their family caregivers. After screening 574 abstracts and conducting a full-text review of 150 articles, a total of 17 studies were identified in our review. Only three intervention studies were identified, two of which evaluated the impact of palliative care over usual care. The remaining study was a clinical trial of a psycho-educational support intervention, which failed to demonstrate beneficial outcomes. Heart failure patients and their family caregivers receiving palliative or hospice care have unique psychosocial needs that are largely unexamined by previous research. The need for further research is discussed.
authors.affiliation: School of Social Work, University of Maryland, 525 West Redwood Street, 3W13, Baltimore, MD, 21201, USA. jcagle@ssw.umaryland.edu.
authors.forename: John G
authors.initials: JG
authors.lastname: Cagle
authors.affiliation: School of Medicine, Universtity of Maryland, Baltimore, MD, USA.
authors.forename: Morgan
authors.initials: M
authors.lastname: Bunting
authors.affiliation: Medstar Washington Hospital Center, Section of Palliative Care, Washington, DC, USA.
authors.forename: Anne
authors.initials: A
authors.lastname: Kelemen
authors.affiliation: School of Social Work, University of Maryland, 525 West Redwood Street, 3W13, Baltimore, MD, 21201, USA.
authors.forename: Joonyup
authors.initials: J
authors.lastname: Lee
authors.affiliation: Health Sciences and Human Services Library, University of Maryland, Baltimore, MD, USA.
authors.forename: Dorothy
authors.initials: D
authors.lastname: Terry
authors.affiliation: Health Sciences and Human Services Library, University of Maryland, Baltimore, MD, USA.
authors.forename: Ryan
authors.initials: R
authors.lastname: Harris
mesh_terms: D017028:Caregivers / Q000523:psychology*; D006333:Heart Failure / Q000628:therapy*; D006801:Humans; D010166:Palliative Care / Q000523:psychology*; D011788:Quality of Life; D066107:Social Skills
keywords: Congestive heart failure; Depression; Heart disease; Informal caregivers; Isolation; Patients; Psychological needs; Social needs