title: Unmet home healthcare needs and quality of life in cancer patients: a hospital-based Turkish sample.
abstract: Home healthcare services in Turkey are provided primarily to patients that are bedridden or seriously disabled. There are no such services integrated with hospital services that are specifically designed for cancer patients. The present study aimed to explore the home healthcare needs of cancer patients and their experiences related to unmet home healthcare needs. The study included 394 adult cancer patients who were followed up at the surgical oncology department of a university hospital. A 37-item, study-specific questionnaire and the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire for cancer patients (EORTC-QLQ-C30) were administered, and patient clinical records were evaluated. Home healthcare was provided primarily by the patients' immediate family members; the professional home healthcare usage rate was only 2.8%. Patient quality of life (QoL) was negatively affected by cancer, especially those with stage three and four disease. The frequency of the need for home healthcare services due to disease-related health problems during the 30 days prior to administration of the questionnaires was as follows: pain (62.9%), surgical wound care (44.9%), injection of therapeutics (52.3%), gastrointestinal complaints (51.8%), anxiety (87.1%), psychosocial assistance (77.2%) and information about cancer (94.4%). In the absence of home healthcare services, the patients primarily used institutional healthcare services to meet their needs; otherwise, their needs were not met. The physical and psychosocial problems that cancer patients experience could be solved in most cases by professional home healthcare services. Hospital-integrated home healthcare services might not only improve cancer patient QoL but might also increase the effectiveness of hospital-based healthcare services.
authors.affiliation: Faculty of Medicine, Ankara University, Ankara, Turkey.
authors.forename: Gülsen
authors.initials: G
authors.lastname: Ataman
authors.affiliation: Faculty of Medicine, Ankara University, Ankara, Turkey.
authors.forename: Tugrul
authors.initials: T
authors.lastname: Erbaydar
mesh_terms: D000328:Adult; D000368:Aged; D017028:Caregivers; D005190:Family; D005260:Female; D006301:Health Services Needs and Demand; D006699:Home Care Services / Q000458:organization & administration* / Q000706:statistics & numerical data*; D006785:Hospitals, University / Q000458:organization & administration; D006801:Humans; D008297:Male; D008875:Middle Aged; D009367:Neoplasm Staging; D009369:Neoplasms / Q000523:psychology* / Q000628:therapy*; D011788:Quality of Life; D012959:Socioeconomic Factors
keywords: home care; home healthcare; quality of life