title: The use of a medico economic database as a part of French apheresis registry.
abstract: An apheresis registry is a part of each learned apheresis society. The interest in this is obvious, in terms of knowledge of the practice of apheresis, adverse events, and technical issues. However, because of the weight of data entry it could never be exhaustive and some data will be missing. While continuing our registry efforts and our efforts to match with other existing registries, we decided to extend the data collection to a medico-economic database that is available in France, the Programme de Médicalisation du Système d'Information (PMSI) that has covered reimbursement information for each public or private hospital since 2007. It contains almost all apheresis procedures in all apheresis fields, demographic patient data, and primary and related diagnoses, among other data. Although this data does not include technical apheresis issues or other complications of the procedures, its interest is great and it is complementary to the registry. From 2003-2014, we have recorded 250,585 apheresis procedures, for 48,428 patients. We showed that the data are reliable and exhaustive. The information shows a perfect real life practice in apheresis, regarding indications, the rhythm and the duration of apheresis treatment. This prospective data collection is sustainable and allows us to assess the impact of healthcare guidelines. Our objective is to extend the data collection and match it to other existing databases; this will allow us to conduct, for example, a cohort study specifically for ECP.
authors.affiliation: Unité d'aphérèse thérapeutique et Hémovigilance, Service d'hématologie, CHU de Montpellier, 191 avenue du Doyen Gaston Giraud, 34090 Montpellier, France; Société Française d'Hémaphérèse, Hôpital Cochin, 27 rue du Faubourg Saint-Jacques, 75014 Paris, France. Electronic address: t-kanouni@chu-montpellier.fr.
authors.forename: T
authors.initials: T
authors.lastname: Kanouni
authors.affiliation: Département de l'Information Médicale, Unité d'analyse Médico-Economique des Processus de Soins, CHU de Montpellier, 191 avenue du Doyen Gaston Giraud, 34090 Montpellier, France.
authors.forename: P
authors.initials: P
authors.lastname: Aubas
authors.affiliation: Société Française d'Hémaphérèse, Hôpital Cochin, 27 rue du Faubourg Saint-Jacques, 75014 Paris, France; Unité de Médecine Transfusionnelle, Hôpital Cochin, 27 rue du Faubourg Saint-Jacques, 75014 Paris, France.
authors.forename: F
authors.initials: F
authors.lastname: Heshmati
mesh_terms: D001781:Blood Component Removal / Q000191:economics* / Q000379:methods; D005602:France; D006801:Humans; D007348:Insurance, Health / Q000639:trends*; D012042:Registries
keywords: Apheresis; ECP; France; Health insurance; Medico-administrative databases; Registry