title: Anxiety, Intolerance of Uncertainty and Restricted and Repetitive Behaviour: Insights Directly from Young People with ASD.
abstract: In order to investigate the experience of anxiety and restricted and repetitive behaviours (RRB) in young people with ASD, 19 families with young people with ASD aged between 13 and 20 years completed questionnaire measures of RRB, anxiety, and intolerance of uncertainty. Ten young people also completed a novel semi-structured interview exploring an individualised example of an RRB. Findings demonstrated that young people with ASD can self-report and show insight in to their RRB, and replicated previous findings based on parent report showing a significant positive relationship between RRB and anxiety. This is the first evidence of young person self-report using both quantitative and qualitative data and indicates a range of reasons why young people may engage in RRB.
authors.affiliation: Clinical Psychology, Institute of Neuroscience, Newcastle University, Ridley Building 1, Newcastle upon Tyne, NE1 7RU, UK. carolinejoyce1@nhs.net.
authors.forename: Caroline
authors.initials: C
authors.lastname: Joyce
authors.affiliation: School of Psychology, Newcastle University, Ridley Building 1, Newcastle upon Tyne, NE1 7RU, UK.
authors.forename: Emma
authors.initials: E
authors.lastname: Honey
authors.affiliation: School of Psychology, Wales Autism Research Centre, Cardiff University, Park Place, Cardiff, CF10 3AT, UK.
authors.forename: Susan R
authors.initials: SR
authors.lastname: Leekam
authors.affiliation: School of Psychology, Wales Autism Research Centre, Cardiff University, Park Place, Cardiff, CF10 3AT, UK.
authors.forename: Sarah L
authors.initials: SL
authors.lastname: Barrett
authors.affiliation: Institute of Neuroscience, Newcastle University, Ridley Building 1, Newcastle upon Tyne, NE1 7RU, UK.
authors.forename: Jacqui
authors.initials: J
authors.lastname: Rodgers
mesh_terms: D000293:Adolescent; D001007:Anxiety / Q000150:complications / Q000523:psychology*; D000067877:Autism Spectrum Disorder / Q000150:complications / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D057566:Self Report; D013239:Stereotyped Behavior; D011795:Surveys and Questionnaires; D035501:Uncertainty; D055815:Young Adult
keywords: ASD; Anxiety; Intolerance of uncertainty; Restricted and repetitive behaviours; Self-report