title: Supportive Care Organization in France: a national in-depth survey among patients and oncologists.
abstract: Medical doctors' (MDs), but not patients', perception of supportive care in cancer (SCC) in France has been previously assessed in a national survey. This study evaluated MDs and patients' perceptions of the SCC organization and implementation in France.
  
  
  
  The French SCC Association conducted two observational studies: study 1 (S1), containing a 30-point questionnaire sent to 2263 MDs, and study 2 (S2), containing a 40-point questionnaire sent to 2000 patients.
  
  
  
  Overall, 711 MDs completed S1 and 1562 patients completed S2. In S1, 81% of MDs reported relying on a SCC organization and 76% attended SCC multidisciplinary discussions. MDs considered palliative (98%), psychological (98%), and social care (98%) as the top 3 SCC areas of importance for patients. In contrast, patients' priorities were psychology (61%), nutrition (55%) and organization of intake consultations (55%). The concept of SCC was familiar to 34% of patients; according to MDs, this concept was introduced mainly by MDs (78%) and admission nurses (41%). Outpatients identified as professional resources for SCC information general practitioners (84%), nurses (58%), and pharmacists (52%). Patients reported supportive treatment being prescribed in 63% of cases, with 64% receiving information on the negative side-effects. Among MDs, 87% reported proposing palliative and 41% adjuvant SCC treatment. Furthermore, 72% of MDs recommended SCC treatment at the metastatic stage, and 36% immediately following diagnosis.
  
  
  
  Oncologists play a vital role in enhancing SCC efficacy. This can be increased by implementing a multidisciplinary integrated approach or by assuring the availability of patient information.
authors.affiliation: Department of Oncology, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France. florian.scotte@aphp.fr.|(AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France. florian.scotte@aphp.fr.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France. florian.scotte@aphp.fr.|Supportive Care in Cancer Unit, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France. florian.scotte@aphp.fr.
authors.forename: Florian
authors.initials: F
authors.lastname: Scotté
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France.
authors.forename: Christian
authors.initials: C
authors.lastname: Hervé
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France.|Supportive Care in Cancer Unit, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France.
authors.forename: Pauline
authors.initials: P
authors.lastname: Leroy
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Centre Hospitalier Universitaire La Miletrie, 350 Avenue Jacques-Cœur, 86000, Poitiers, France.
authors.forename: Jean-Marc
authors.initials: JM
authors.lastname: Tourani
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Centre de Haute Energie, 06000, Nice, France.
authors.forename: René-Jean
authors.initials: RJ
authors.lastname: Bensadoun
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Institut Universitaire de Cancérologie Toulousain, Toulouse, France.
authors.forename: Marie-Eve
authors.initials: ME
authors.lastname: Bugat
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Centre Léon Bérard, 28, Rue Laennec, 69008, Lyon, France.|Rhône-Alpes Region Cancer Network, Lyon, France.
authors.forename: Fadila
authors.initials: F
authors.lastname: Farsi
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Institut Jean Godinot, 1 Avenue du Général Koenig, 51100, Reims, France.
authors.forename: Nicolas
authors.initials: N
authors.lastname: Jovenin
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, 1 Place Dr JL Broquerie, 06250, Mougins, France.
authors.forename: Moïse
authors.initials: M
authors.lastname: Namer
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Hôpital Henri Mondor, 51 Avenue du Maréchal de Lattre de Tassigny, 94000, Créteil, France.
authors.forename: Christophe
authors.initials: C
authors.lastname: Tournigand
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France.|Supportive Care in Cancer Unit, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France.
authors.forename: Sophie
authors.initials: S
authors.lastname: Morin
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France.|Supportive Care in Cancer Unit, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France.
authors.forename: Cloé
authors.initials: C
authors.lastname: Brami
authors.affiliation: Department of Oncology, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France.|(AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.
authors.forename: Stéphane
authors.initials: S
authors.lastname: Oudard
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Ethics, University Paris Descartes, 45 Rue des Saints Pères, 75006, Paris, France.|Supportive Care in Cancer Unit, Hôpital Européen Georges Pompidou, 20 Rue Leblanc, 75105, Paris, France.
authors.forename: Alexandre
authors.initials: A
authors.lastname: Saadi
authors.affiliation: (AFSOS) Association Francophone pour les Soins Oncologiques de Support- French Speaking Association for Supportive Care in Cancer, Paris, France.|Department of Oncology, Centre Bergonié, Bordeaux, France.
authors.forename: Ivan
authors.initials: I
authors.lastname: Krakowski
mesh_terms: D005260:Female; D005602:France; D006801:Humans; D008297:Male; D009369:Neoplasms / Q000523:psychology*; D010166:Palliative Care / Q000523:psychology; D012017:Referral and Consultation / Q000592:standards*; D012944:Social Support; D011795:Surveys and Questionnaires
keywords: Multidisciplinary; National survey; Patient’s opinion; Supportive care