title: Evaluation of the incidence of rare diseases: difficulties and uncertainties, the example of chronic thromboembolic pulmonary hypertension.
authors.affiliation: Assistance Publique-Hôpitaux de Paris, Service de Pneumologie, Hôpital Bicêtre and Hôpital Marie Lannelongue, Paris Sud University, Paris, France gerald.simonneau@gmail.com.
authors.forename: Gérald
authors.initials: G
authors.lastname: Simonneau
authors.affiliation: Department of Respiratory Medicine and German Centre of Lung Research (DZL), Hannover Medical School, Hannover, Germany.
authors.forename: Marius M
authors.initials: MM
authors.lastname: Hoeper
mesh_terms: D006801:Humans; D006976:Hypertension, Pulmonary; D015994:Incidence; D011655:Pulmonary Embolism; D035583:Rare Diseases