title: The role of informal caregivers at the end of life: providing support through Advance Care Planning.
abstract: In the palliative phase of a person's illness, the needs of the patient and informal caregivers are paramount. Caregivers often look to palliative care practitioners for support, guidance and emotional comfort. This article reviews the role of the informal caregiver at the end of life, summarising their concerns and needs. The paper also highlights caregiver difficulties in making the coping transition when the patient's medical condition becomes advanced and they require end-of-life care. The focus of the review is placed on discussions about Advanced Care Planning (ACP). ACP is a complex legal, ethical and practical issue that can enable caregivers to consider future strategies and enable them to provide high quality care at the end of life. The paper looks at some of the ethical and legal issues associated with this sensitive end-of-life issue.
authors.affiliation: Associate Professor, Nanyang polytechnic, Singapore SIT@NYP (University of Manchester).
authors.forename: John
authors.initials: J
authors.lastname: Costello
mesh_terms: D000223:Adaptation, Psychological; D032722:Advance Care Planning / Q000941:ethics* / Q000331:legislation & jurisprudence; D017028:Caregivers; D064946:Hospice and Palliative Care Nursing; D006801:Humans; D013727:Terminal Care
keywords: Advance care planning; End of life; Informal caregivers