title: Treatment diary for botulinum toxin spasticity treatment: a pilot study.
abstract: The aim of this study is to develop a treatment diary for patients receiving spasticity treatment including botulinum toxin injection and physiotherapy and/or occupational therapy. The diary focuses on problems triggered by skeletal muscle overactivity; agreed goals for treatment and the patient's self-evaluation of achievement on the Goal Attainment Scale; which skeletal muscles were injected; physiotherapists' and occupational therapists' evaluation of the patients' achievement of objectives on the Goal Attainment Scale; and proposals for optimization of treatment and changing goals. The evaluation included a satisfaction questionnaire and the WHO-QoL BREF and WHO-5 well-being score. Overall, 10 patients were enrolled in the pilot study. The patients were generally satisfied with the diary, found that it involved them more in their treatment and made it easier to set personal goals, and found it worth the time spent using it. However, no clear advantage in relation to their quality of life (WHO-QoL BREF and WHO-5 well-being score) was reported.
authors.affiliation: aSpasticity Clinic bStroke Unit cNeurological Clinic dClinic for Spinal Cord Injuries, Neuroscience Centre, Rigshospitalet, University of Copenhagen, Glostrup, Denmark.
authors.forename: Bo
authors.initials: B
authors.lastname: Biering-Sørensen
authors.forename: Helle K
authors.initials: HK
authors.lastname: Iversen
authors.forename: Inge M S
authors.initials: IMS
authors.lastname: Frederiksen
authors.forename: Jeanet R
authors.initials: JR
authors.lastname: Vilhelmsen
authors.forename: Fin
authors.initials: F
authors.lastname: Biering-Sørensen
mesh_terms: D000328:Adult; D001905:Botulinum Toxins / Q000627:therapeutic use*; D005260:Female; D006040:Goals; D006801:Humans; D008297:Male; D008875:Middle Aged; D009128:Muscle Spasticity / Q000628:therapy*; D009465:Neuromuscular Agents / Q000627:therapeutic use*; D009788:Occupational Therapy; D026741:Physical Therapy Modalities; D010865:Pilot Projects; D011788:Quality of Life; D011996:Records; D057566:Self Report
chemical_list: D009465:Neuromuscular Agents; D001905:Botulinum Toxins