title: UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care.
abstract: The risks of poor transition include delayed and inappropriate transfer that can result in disengagement with healthcare. Structured transition care can improve control of chronic digestive diseases and long-term health-related outcomes. These are the first nationally developed guidelines on the transition of adolescent and young persons (AYP) with chronic digestive diseases from paediatric to adult care. They were commissioned by the Clinical Services and Standards Committee of the British Society of Gastroenterology under the auspices of the Adolescent and Young Persons (A&YP) Section. Electronic searches for English-language articles were performed with keywords relating to digestive system diseases and transition to adult care in the Medline (via Ovid), PsycInfo (via Ovid), Web of Science and CINAHL databases for studies published from 1980 to September 2014. The quality of evidence and grading of recommendations was appraised using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) system. The limited number of studies in gastroenterology and hepatology required the addition of relevant studies from other chronic diseases to be included.These guidelines deal specifically with the transition of AYP living with a diagnosis of chronic digestive disease and/or liver disease from paediatric to adult healthcare under the following headings;1. Patient populations involved in AYP transition2. Risks of failing transition or poor transition3. Models of AYP transition4. Patient and carer/parent perspective in AYP transition5. Surgical perspective.
authors.affiliation: Academic Department of Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Royal Hallamshire Hospital, Sheffield, UK.|Academic Department of Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Royal Hallamshire Hospital, Sheffield, UK.
authors.forename: Alenka J
authors.initials: AJ
authors.lastname: Brooks
authors.affiliation: Centre for Gastroenterology and Hepatology, Royal Free Hospital, London, UK.|Academic Department of Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Royal Hallamshire Hospital, Sheffield, UK.
authors.forename: Philip J
authors.initials: PJ
authors.lastname: Smith
authors.affiliation: Department of Surgery, UCLH, London, UK.
authors.forename: Richard
authors.initials: R
authors.lastname: Cohen
authors.affiliation: Royal Liverpool University Hospital, Liverpool, UK.
authors.forename: Paul
authors.initials: P
authors.lastname: Collins
authors.affiliation: Queen Elizabeth Hospital NHS Foundation Trust, University of East Anglia, King's Lynn, Norfolk, UK.
authors.forename: Andrew
authors.initials: A
authors.lastname: Douds
authors.affiliation: Sheffield Children's Hospital NHS Foundation Trust, Sheffield, UK.
authors.forename: Valda
authors.initials: V
authors.lastname: Forbes
authors.affiliation: Glasgow Royal Infirmary, Glasgow, UK.
authors.forename: Daniel R
authors.initials: DR
authors.lastname: Gaya
authors.affiliation: Deparment of Gastroenterology, Royal Victoria Hospital, Belfast, UK.
authors.forename: Brian T
authors.initials: BT
authors.lastname: Johnston
authors.affiliation: Liver Unit, Birmingham Children's Hospital, Birmingham, UK.
authors.forename: Patrick J
authors.initials: PJ
authors.lastname: McKiernan
authors.affiliation: Centre for Gastroenterology and Hepatology, Royal Free Hospital, London, UK.
authors.forename: Charles D
authors.initials: CD
authors.lastname: Murray
authors.affiliation: NIHR LCRN (Y&H) Gastroenterology Speciality Co-Lead, Hull & East Yorkshire NHS Trust, Hull, UK.
authors.forename: Shaji
authors.initials: S
authors.lastname: Sebastian
authors.affiliation: Queen Elizabeth Hospital Birmingham NHS Foundation Trust, Birmingham, UK.
authors.forename: Monica
authors.initials: M
authors.lastname: Smith
authors.affiliation: GI Services Division, University College London Hospital, London, UK.
authors.forename: Lisa
authors.initials: L
authors.lastname: Whitley
authors.affiliation: London, UK.
authors.forename: Lesley
authors.initials: L
authors.lastname: Williams
authors.affiliation: Department of Paediatric Gastroenterology, The Royal Hospital for Children Glasgow, Glasgow, UK.
authors.forename: Richard K
authors.initials: RK
authors.lastname: Russell
authors.affiliation: Department of Gastroenterology, UCLH, London, UK.
authors.forename: Sara A
authors.initials: SA
authors.lastname: McCartney
authors.affiliation: Bart's Health NHS Trust, The Royal London Hospital, London, UK.|Centre for Immunology and Infectious Disease, Blizard Institute, Barts and the London School of Medicine, Queen Mary University of London, London, UK.
authors.forename: James O
authors.initials: JO
authors.lastname: Lindsay
mesh_terms: D000293:Adolescent; D002908:Chronic Disease; D019317:Evidence-Based Medicine; D005767:Gastrointestinal Diseases / Q000628:therapy*; D006801:Humans; D008107:Liver Diseases / Q000628:therapy*; D010043:Outcome and Process Assessment, Health Care; D010353:Patient Education as Topic; D013997:Time Factors; D060305:Transition to Adult Care / Q000458:organization & administration / Q000592:standards*; D055815:Young Adult
keywords: GASTROINTESTINAL TRACT; INFLAMMATORY BOWEL DISEASE; LIVER; PAEDIATRIC GASTROENTEROLOGY