title: Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report.
abstract: As the demand for evidence to support the value of genetic counseling increases, it is critical that reporting of genetic counseling interventions in research and other types of studies (e.g. process improvement or service evaluation studies) adopt greater rigor. As in other areas of healthcare, the appraisal, synthesis, and translation of research findings into genetic counseling practice are likely to be improved if clear specifications of genetic counseling interventions are reported when studies involving genetic counseling are published. To help improve reporting practices, the National Society of Genetic Counselors (NSGC) convened a task force in 2015 to develop consensus standards for the reporting of genetic counseling interventions. Following review by the NSGC Board of Directors, the NSGC Practice Guidelines Committee and the editorial board of the Journal of Genetic Counseling, 23 items across 8 domains were proposed as standards for the reporting of genetic counseling interventions in the published literature (GCIRS: Genetic Counseling Intervention Reporting Standards). The authors recommend adoption of these standards by authors and journals when reporting studies involving genetic counseling interventions.
authors.affiliation: NextGxDx, 810 Crescent Centre Dr, Suite 280, Franklin, TN, 37067, USA. gillian.hooker@gmail.com.
authors.forename: Gillian W
authors.initials: GW
authors.lastname: Hooker
authors.affiliation: Ambry Genetics, Aliso Viejo, CA, USA.
authors.forename: D
authors.initials: D
authors.lastname: Babu
authors.affiliation: Cincinnati Children's Hospital Medical Center and University of Cincinnati, Cincinnati, OH, USA.
authors.forename: M F
authors.initials: MF
authors.lastname: Myers
authors.affiliation: University of Minnesota, Minneapolis, MN, USA.
authors.forename: H
authors.initials: H
authors.lastname: Zierhut
authors.affiliation: Cardiff University, Cardiff, UK.
authors.forename: M
authors.initials: M
authors.lastname: McAllister
mesh_terms: D026683:Advisory Committees; D005260:Female; D005817:Genetic Counseling / Q000592:standards*; D006801:Humans; D008297:Male; D058028:Research Report / Q000592:standards*; D012955:Societies, Medical; D014481:United States
keywords: Genetic counseling intervention; Genetic counseling research; Reporting standards