title: Moving toward a shared process: The impact of parent experiences on perinatal palliative care.
abstract: Perinatal palliative care programs seek to support parents expecting a baby diagnosed with a serious medical condition. Clinicians have increasingly recognized the importance of parental perspectives on the medical care mothers and their fetuses and live-born children receive, especially regarding factors influencing individual choices and knowledge of the medical community. We describe, using literature on trisomy 13 and trisomy 18, how information shared between parents and providers can improve perinatal counseling and family support.
authors.affiliation: Division of Neonatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Box 45, 225 E. Chicago Ave, Chicago, IL 60611.
authors.forename: Susan L
authors.initials: SL
authors.lastname: Hasegawa
authors.affiliation: Division of Neonatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Box 45, 225 E. Chicago Ave, Chicago, IL 60611. Electronic address: jtfry@luriechildrens.org.
authors.forename: Jessica T
authors.initials: JT
authors.lastname: Fry
mesh_terms: D025063:Chromosome Disorders; D002882:Chromosomes, Human, Pair 13; D002887:Chromosomes, Human, Pair 18; D003657:Decision Making; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D010166:Palliative Care; D010290:Parents; D018743:Perinatal Care; D011247:Pregnancy; D011368:Professional-Family Relations; D012944:Social Support; D014314:Trisomy; D000073839:Trisomy 13 Syndrome; D000073842:Trisomy 18 Syndrome
keywords: Decision Making; Neonatal; Palliative care; Parent experiences; Perinatal; Trisomy 13; Trisomy 18