title: "Disjointed" approach to rare diseases is still failing patients, warn MPs.
authors.affiliation: London.
authors.forename: Adrian
authors.initials: A
authors.lastname: O'Dowd
mesh_terms: D022126:Access to Information / Q000331:legislation & jurisprudence*; D020022:Genetic Predisposition to Disease; D005820:Genetic Testing / Q000706:statistics & numerical data*; D006297:Health Services Accessibility / Q000458:organization & administration* / Q000706:statistics & numerical data; D006801:Humans; D010819:Physician's Role; D035583:Rare Diseases / Q000175:diagnosis / Q000628:therapy; D006113:United Kingdom