title: Involving healthcare professionals and family carers in setting research priorities for end-of-life care.
abstract: It is important to ensure regional variances are considered when setting future end-of-life research priorities, given the differing demographics and service provision. This project sought to identify end-of-life research priorities within Greater Manchester (United Kingdom). Following an initial scoping exercise, six topics within the 10 national priorities outlined by The Palliative and end-of-life care Priority Setting Partnership were selected for exploration. A workshop involving 32 healthcare professionals and a consultation process with 26 family carers was conducted. Healthcare professionals and carers selected and discussed the topics important to them. The topics selected most frequently by both healthcare professionals and carers were 'Access to 24 hour care', 'Planning end-of-life care in advance' and 'Staff and carer education'. Healthcare professionals also developed research questions for their topics of choice which were refined to incorporate carers' views. These questions are an important starting point for future end-of-life research within Greater Manchester.
authors.affiliation: Research Associate, The University of Manchester, Manchester, UK.
authors.forename: Janet
authors.initials: J
authors.lastname: Diffin
authors.affiliation: Programme Manager, NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Greater Manchester, Manchester, UK.
authors.forename: Michael
authors.initials: M
authors.lastname: Spence
authors.affiliation: Project Manager, NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Greater Manchester, Manchester, UK.
authors.forename: Rebecca
authors.initials: R
authors.lastname: Spencer
authors.affiliation: Facilitator, NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Greater Manchester, Manchester, UK.
authors.forename: Peter
authors.initials: P
authors.lastname: Mellor
authors.affiliation: Professor of Palliative Care, The University of Manchester, Manchester, UK.
authors.forename: Gunn
authors.initials: G
authors.lastname: Grande
mesh_terms: D032722:Advance Care Planning; D039602:After-Hours Care; D017028:Caregivers; D003266:Continuity of Patient Care; D006282:Health Personnel; D006297:Health Services Accessibility; D006699:Home Care Services; D006801:Humans; D012106:Research; D013727:Terminal Care; D006113:United Kingdom
keywords: End-of-life; Nursing