title: A Novel Conceptual Architecture for Person-Centered Health Records.
abstract: Personal health records available to patients today suffer from multiple limitations, such as information fragmentation, a one-size-fits-all approach and a focus on data gathered over time and by institution rather than health conditions. This makes it difficult for patients to effectively manage their health, for these data to be enriched with relevant information from external sources and for clinicians to support them in that endeavor. We propose a novel conceptual architecture for person-centered health record information systems that transcends many of these limitations and capitalizes on the emerging trend of socially-driven information systems. Our proposed personal health record system is personalized on demand to the conditions of each individual patient; organized to facilitate the tracking and review of the patient's conditions; and able to support patient-community interactions, thereby promoting community engagement in scientific studies, facilitating preventive medicine, and accelerating the translation of research findings.
authors.affiliation: Department of Medicine, Indiana University; Regenstrief Institute Inc.
authors.forename: Titus
authors.initials: T
authors.lastname: Schleyer
authors.affiliation: Electrical and Computer Engineering Department, Purdue School of Engineering and Technology, IUPUI.
authors.forename: Zachary
authors.initials: Z
authors.lastname: King
authors.affiliation: Electrical and Computer Engineering Department, Purdue School of Engineering and Technology, IUPUI.
authors.forename: Zina Ben
authors.initials: ZB
authors.lastname: Miled
mesh_terms: D003199:Computer Systems; D003628:Database Management Systems; D057286:Electronic Health Records / Q000458:organization & administration; D066275:Health Information Exchange; D055991:Health Records, Personal; D006801:Humans; D016247:Information Storage and Retrieval; D061108:Social Media; D012984:Software