title: Illness Doula: Adding a New Role to Healthcare Practice.
abstract: In this article, we explore the possibility of adding a new role to the clinical encounter: an illness doula. Even though research and education in medical humanities and narrative medicine have made improvements in humanizing healthcare, progress is slow and ongoing. There needs to be an intervention in the practice of healthcare now for people currently going through the system. An illness doula, like a birth doula, would facilitate and insure that attention is paid to the personal needs and desires of the patient in the present system. We envision illness doulas having the ability and availability to accompany the patient throughout the healthcare process, to help communicate with clinicians, and to ensure that patient preferences are understood and respected along the way. We discuss how this idea emerged through the clinical encounters of two of our authors, the possibilities and limitations of creating a new role for illness doulas, and the logistics of how to put this new role into play.
authors.affiliation: New York University Langone Medical Center, New York, NY, USA.
authors.forename: Annie
authors.initials: A
authors.lastname: Robinson
authors.affiliation: Columbia University, New York, NY, USA.
authors.forename: Danielle
authors.initials: D
authors.lastname: Spencer
authors.affiliation: New York University, New York, NY, USA. bl466@nyu.edu.
authors.forename: Brad
authors.initials: B
authors.lastname: Lewis
mesh_terms: D003695:Delivery of Health Care; D059037:Doulas; D006801:Humans; D000073935:Narrative Medicine; D057240:Patient Preference; D018802:Patient-Centered Care; D011369:Professional-Patient Relations; D012944:Social Support
keywords: Doula; Humanism; Illness doula; Lived-experience; Narrative medicine; Patient-centered care