title: Development and Implementation of a Registry of Patients Attending Multidisciplinary Pain Treatment Clinics: The Quebec Pain Registry.
abstract: The Quebec Pain Registry (QPR) is a large research database of patients suffering from various chronic pain (CP) syndromes who were referred to one of five tertiary care centres in the province of Quebec (Canada). Patients were monitored using common demographics, identical clinical descriptors, and uniform validated outcomes. This paper describes the development, implementation, and research potential of the QPR. Between 2008 and 2013, 6902 patients were enrolled in the QPR, and data were collected prior to their first visit at the pain clinic and six months later. More than 90% of them (mean age ± SD: 52.76 ± 4.60, females: 59.1%) consented that their QPR data be used for research purposes. The results suggest that, compared to patients with serious chronic medical disorders, CP patients referred to tertiary care clinics are more severely impaired in multiple domains including emotional and physical functioning. The QPR is also a powerful and comprehensive tool for conducting research in a "real-world" context with 27 observational studies and satellite research projects which have been completed or are underway. It contains data on the clinical evolution of thousands of patients and provides the opportunity of answering important research questions on various aspects of CP (or specific pain syndromes) and its management.
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada.
authors.forename: M
authors.identifier: 0000-0001-9593-8883
authors.initials: M
authors.lastname: Choinière
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; Alan Edwards Centre for Research on Pain, McGill University, Montreal, QC, Canada; Department of Family Medicine, Faculty of Medicine, McGill University, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, McGill University, Montreal, QC, Canada.
authors.forename: M A
authors.identifier: 0000-0002-1286-1719
authors.initials: MA
authors.lastname: Ware
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada.
authors.forename: M G
authors.identifier: 0000-0002-7742-2717
authors.initials: MG
authors.lastname: Pagé
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada; Département des Sciences de la Santé, Université du Québec en Abitibi-Témiscamingue, Rouyn-Noranda, QC, Canada.
authors.forename: A
authors.identifier: 0000-0002-3992-5145
authors.initials: A
authors.lastname: Lacasse
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada.
authors.forename: H
authors.initials: H
authors.lastname: Lanctôt
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; Department of Anesthesiology, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
authors.forename: N
authors.initials: N
authors.lastname: Beaudet
authors.affiliation: Department of Anesthesiology, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada; Quebec Pain Research Network, Sherbrooke, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Montreal University, Montreal, QC, Canada; Pain Clinic, Centre Hospitalier de l'Université de Montréal, Montréal, QC, Canada.
authors.forename: A
authors.initials: A
authors.lastname: Boulanger
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; School of Nursing, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
authors.forename: P
authors.initials: P
authors.lastname: Bourgault
authors.affiliation: Pain Centre of Expertise, Integrated Health Network of Sherbrooke University, Sherbrooke, QC, Canada; Department of Neurosurgery, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada; Pain Clinic, Centre Hospitalier de l'Université de Sherbrooke, Sherbrooke, QC, Canada.
authors.forename: C
authors.initials: C
authors.lastname: Cloutier
authors.affiliation: Impacts Inc., Saint-Lambert, QC, Canada.
authors.forename: L
authors.identifier: 0000-0003-0828-9665
authors.initials: L
authors.lastname: Coupal
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; Quebec Mental Health Institute of Research Center, Quebec City, QC, Canada; Department of Psychiatry & Neurosciences, Faculty of Medicine, Université Laval, Quebec City, QC, Canada.
authors.forename: Y
authors.initials: Y
authors.lastname: De Koninck
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada; Department of Family Medicine, Faculty of Medicine, Université de Montréal, Montreal, QC, Canada.
authors.forename: D
authors.initials: D
authors.lastname: Dion
authors.affiliation: Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Clinic, Hôtel-Dieu de Lévis, Lévis, QC, Canada.
authors.forename: P
authors.initials: P
authors.lastname: Dolbec
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada.
authors.forename: L
authors.initials: L
authors.lastname: Germain
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada.
authors.forename: V
authors.identifier: 0000-0002-4360-8759
authors.initials: V
authors.lastname: Martin
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; Department of Pharmacology and Physiology, Faculty of Medicine and Health Sciences, Université de Sherbrooke, Sherbrooke, QC, Canada.
authors.forename: P
authors.initials: P
authors.lastname: Sarret
authors.affiliation: Quebec Pain Research Network, Sherbrooke, QC, Canada; Alan Edwards Centre for Research on Pain, McGill University, Montreal, QC, Canada; Department of Anesthesiology, Faculty of Medicine, McGill University, Montreal, QC, Canada.
authors.forename: Y
authors.initials: Y
authors.lastname: Shir
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada; Research Center of the Montreal Heart Institute, Montreal, QC, Canada.
authors.forename: M-C
authors.initials: MC
authors.lastname: Taillefer
authors.affiliation: Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Clinic, Hôtel-Dieu de Lévis, Lévis, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Laval University, Quebec City, QC, Canada.
authors.forename: B
authors.identifier: 0000-0003-0627-7564
authors.initials: B
authors.lastname: Tousignant
authors.affiliation: Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), Montréal, QC, Canada.
authors.forename: A
authors.initials: A
authors.lastname: Trépanier
authors.affiliation: Department of Anesthesiology, Faculty of Medicine, Université Laval, Quebec City, QC, Canada; Pain Centre of Expertise, Integrated Health Network of Laval University, Quebec City, QC, Canada; Pain Clinic, Centre Hospitalier Universitaire de Québec, Quebec City, QC, Canada.
authors.forename: R
authors.initials: R
authors.lastname: Truchon
mesh_terms: D000328:Adult; D000368:Aged; D059350:Chronic Pain / Q000175:diagnosis / Q000453:epidemiology* / Q000628:therapy*; D005260:Female; D006284:Health Plan Implementation / Q000379:methods / Q000592:standards; D006801:Humans; D008297:Male; D008875:Middle Aged; D018710:Pain Clinics / Q000706:statistics & numerical data*; D059408:Pain Management / Q000379:methods*; D010147:Pain Measurement; D011792:Quebec / Q000453:epidemiology; D012042:Registries / Q000592:standards / Q000706:statistics & numerical data; D012189:Retrospective Studies; D011795:Surveys and Questionnaires; D013997:Time Factors