title: Sharing Patient-Generated Data in Clinical Practices: An Interview Study.
abstract: Patients are tracking and generating an increasingly large volume of personal health data outside the clinic due to an explosion of wearable sensing and mobile health (mHealth) apps. The potential usefulness of these data is enormous as they can provide good measures of everyday behavior and lifestyle. However, how we can fully leverage patient-generated data (PGD) and integrate them in clinical practice is less clear. In this interview study, we aim to understand how patients and clinicians currently share patient-generated data in clinical care practice. From the study, we identified technical, social, and organizational challenges in sharing and fully leveraging patient-generated data in clinical practices. Our findings can provide researchers potential avenues for enablers and barriers in sharing patient-generated data in clinical settings.
authors.affiliation: Pennsylvania State University, University Park, PA.
authors.forename: Haining
authors.initials: H
authors.lastname: Zhu
authors.affiliation: Pennsylvania State University, University Park, PA.
authors.forename: Joanna
authors.initials: J
authors.lastname: Colgan
authors.affiliation: Northwestern University, Evanston, IL.
authors.forename: Madhu
authors.initials: M
authors.lastname: Reddy
authors.affiliation: Pennsylvania State University, University Park, PA.
authors.forename: Eun Kyoung
authors.initials: EK
authors.lastname: Choe
mesh_terms: D057286:Electronic Health Records; D006282:Health Personnel; D055991:Health Records, Personal; D006801:Humans; D033181:Information Dissemination; D007407:Interviews as Topic; D063731:Mobile Applications; D010361:Patients