title: Online support groups for young women with breast cancer: a proof-of-concept study.
abstract: This initial study examined a therapist-led, synchronous, online support group (OSG) with psycho-education (OSG + E) compared to self-help psycho-education (E). The study aims were to examine proof of concept-feasibility, acceptability, and usefulness-and to hone methods for a formal RCT.
  
  
  
  One hundred five young breast cancer survivors (<50 years) post-treatment were randomized either to OSG + E or E. OSG + E received a therapist-led 10-week synchronous online intervention. E received a self-help workbook. Assessments were at baseline, 10 weeks, and 3 months, with willing OSG + E members completing post-study interviews. Researchers used inductive analysis, generating qualitative themes for feasibility, acceptability, and usefulness. We examined trajectories for one primary and two secondary quantitative outcomes and a combined moderator to discover who preferentially benefitted from the intervention.
  
  
  
  Qualitative analyses revealed that synchronous chat was at times challenging, but minimal technical coaching, structure, set topics, and professional facilitation enabled conversations that were focused and meaningful. A combined moderator indicated that generally more women benefitted from OSG + E relative to E and particularly those women in semi-rural and rural areas.
  
  
  
  This study suggests that therapist-led synchronous OSGs are feasible, acceptable, and useful for young breast cancer survivors and that a future RCT with a larger sample size, perhaps more focused on non-urban areas, is needed to establish its effectiveness.
authors.affiliation: Department of Oncology, University of Calgary, Calgary, Canada.|Department of Psychosocial Resources, Tom Baker Cancer Centre, 2202 2nd Street SW, Calgary, Alberta, T2S 3C1, Canada.|Allied Health, South Health Campus, Alberta Health Services, Calgary, Alberta, Canada.
authors.forename: Joanne
authors.initials: J
authors.lastname: Stephen
authors.affiliation: Redwood Outcomes, Vancouver, Canada.
authors.forename: Adina
authors.initials: A
authors.lastname: Rojubally
authors.affiliation: Department of Psychology, University of British Columbia, Vancouver, Canada.
authors.forename: Wolfgang
authors.initials: W
authors.lastname: Linden
authors.affiliation: Department of Oncology, University of Calgary, Calgary, Canada.|Department of Psychosocial Resources, Tom Baker Cancer Centre, 2202 2nd Street SW, Calgary, Alberta, T2S 3C1, Canada.
authors.forename: Lihong
authors.initials: L
authors.lastname: Zhong
authors.affiliation: British Columbia Cancer Agency, Vancouver, Canada.
authors.forename: Gina
authors.initials: G
authors.lastname: Mackenzie
authors.affiliation: Department of Oncology, University of Calgary, Calgary, Canada.|Department of Psychosocial Resources, Tom Baker Cancer Centre, 2202 2nd Street SW, Calgary, Alberta, T2S 3C1, Canada.
authors.forename: Sahar
authors.initials: S
authors.lastname: Mahmoud
authors.affiliation: Department of Oncology, University of Calgary, Calgary, Canada. jgieseda@ucalgary.ca.|Department of Psychosocial Resources, Tom Baker Cancer Centre, 2202 2nd Street SW, Calgary, Alberta, T2S 3C1, Canada. jgieseda@ucalgary.ca.
authors.forename: Janine
authors.identifier: 0000-0002-3759-9614
authors.initials: J
authors.lastname: Giese-Davis
mesh_terms: D000328:Adult; D001943:Breast Neoplasms / Q000523:psychology*; D003142:Communication; D005260:Female; D006801:Humans; D020407:Internet / Q000706:statistics & numerical data*; D008875:Middle Aged; D012657:Self-Help Groups / Q000706:statistics & numerical data*; D017741:Survivors / Q000523:psychology*
keywords: Breast cancer; Internet intervention; Online support groups; Professionally led; Young adult survivors