title: Aspects and Intensity of Pediatric Palliative Case Management Provided by a Hospital-Based Case Management Team: A Comparative Study Between Children With Malignant and Nonmalignant Disease.
abstract: OBJECTIVE
  Anticipating case management is considered crucial in pediatric palliative care. In 2012, our children's university hospital initiated a specialized pediatric palliative care team (PPCT) to deliver inbound and outbound case management for children with life-shortening disease. The aim of this report is to gain insight in the first 9 months of this PPCT.
  
  
  METHODS
  Aspects of care during the first 9 months of the PPCT are presented, and comparison is made between patients with malignant disease (MD) and nonmalignant disease (NMD) in a retrospective study design. Insight in the aspects of care of all patients with a life-shortening disease was retrieved from web-based files and the hour registrations from the PPCT.
  
  
  RESULTS
  Forty-three children were supported by the PPCT during the first 9 months: 22 with MD with a median of 50 (1-267) days and 29 minutes (4-615) of case management per patient per day and 21 patients with NMD with a median of 79.5 (5-211) days and 16 minutes of case management per day (6-64). Our data show significantly more interprofessional contacts for patients with MD and more in-hospital contacts for patients with NMD. The median number of admission days per patient was 11 (0-22) for MD (44% for anticancer therapy) and 44 (0-303) for NMD (36% for infectious diseases).
  
  
  CONCLUSIONS
  This overview of aspects of pediatric palliative case management shows shorter but more intensive case management for MD in comparison with NMD. This insight in palliative case management guides the design of a PPCT.
authors.affiliation: 1 Pediatric Oncology Department, Emma Children's Hospital, Academic Medical Centre, Amsterdam, the Netherlands.
authors.forename: Charissa T
authors.initials: CT
authors.lastname: Jagt-van Kampen
authors.affiliation: 2 Pediatrics Department, Emma Children's Hospital, Academic Medical Centre, Amsterdam, the Netherlands.
authors.forename: Derk A
authors.initials: DA
authors.lastname: Colenbrander
authors.affiliation: 2 Pediatrics Department, Emma Children's Hospital, Academic Medical Centre, Amsterdam, the Netherlands.
authors.forename: Diederik K
authors.initials: DK
authors.lastname: Bosman
authors.affiliation: 3 Psychosocial Department, Emma Children's Hospital, Academic Medical Centre, Amsterdam, the Netherlands.|4 Pediatric Oncology Department, Princess Máxima Center, Utrecht, the Netherlands.
authors.forename: Martha A
authors.initials: MA
authors.lastname: Grootenhuis
authors.affiliation: 5 Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands.
authors.forename: Marijke C
authors.initials: MC
authors.lastname: Kars
authors.affiliation: 1 Pediatric Oncology Department, Emma Children's Hospital, Academic Medical Centre, Amsterdam, the Netherlands.
authors.forename: Antoinette Yn
authors.initials: AY
authors.lastname: Schouten-van Meeteren
mesh_terms: D000293:Adolescent; D019090:Case Management / Q000458:organization & administration*; D002648:Child; D002673:Child, Hospitalized; D002675:Child, Preschool; D006776:Hospitals, Pediatric / Q000458:organization & administration*; D006785:Hospitals, University; D006801:Humans; D007223:Infant; D008297:Male; D009369:Neoplasms / Q000628:therapy; D010166:Palliative Care / Q000458:organization & administration*; D010343:Patient Admission / Q000706:statistics & numerical data; D010348:Patient Care Team / Q000458:organization & administration*; D012189:Retrospective Studies
keywords: case management; end-of-life care; palliative care; palliative care team; pediatrics