title: [Burden of Parents of Pediatric Cancer Patients in Pediatric-oncological Rehabilitation].
abstract: Burden of Parents of Pediatric Cancer Patients in Pediatric-oncological Rehabilitation All family members experience high burden in case of paediatric cancer. Family-oriented rehabilitation (FOR) aims to improve the physical and mental situation of the families. We investigated anxiety and depression (HADS) and cancer-related burden of parents (n = 69) before and after FOR and analysed its association with quality of life of the ill children. At beginning of FOR 70 % of the parents showed moderate to high anxiety scores and 47 % moderate to high depression scores. They reported cancer-related burden such as exhaustion, cancer-related fears and a burden of family's daily life due to the cancer disease. At the end of FOR 40 % of the parents showed moderate to high anxiety scores and 30 % moderate to high depression. Cancer-related burden measured with self-developed items also decreased after FOR. Compared to age- and gender-adapted norm values, mothers show significantly higher anxiety and depression scores, whereas fathers show no differences in depression scores compared to norm values at the end of FOR. Quality of life of ill children and anxiety and depression scores in the parents are significantly associated with each other. Results of the study show that parents stabilise after FOR and improve their mental situation. However, the results also underline the need for long-term psychosocial support for all family members.
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Laura
authors.initials: L
authors.lastname: Inhestern
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Volker
authors.initials: V
authors.lastname: Beierlein
authors.affiliation: Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
authors.forename: Konstantin A
authors.initials: KA
authors.lastname: Krauth
authors.affiliation: Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
authors.forename: Ursula
authors.initials: U
authors.lastname: Rolfes
authors.affiliation: Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
authors.forename: Thomas
authors.initials: T
authors.lastname: Schulte
authors.affiliation: Arbeitsgemeinschaft für Krebsbekämpfung Nordrhein-Westfalen Universitätsstraße 140 44799 Bochum Deutschland Arbeitsgemeinschaft für Krebsbekämpfung.
authors.forename: Dieter
authors.initials: D
authors.lastname: Berger
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Uwe
authors.initials: U
authors.lastname: Koch
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Corinna
authors.initials: C
authors.lastname: Bergelt
mesh_terms: D000203:Activities of Daily Living / Q000145:classification / Q000523:psychology; D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001008:Anxiety Disorders / Q000523:psychology / Q000628:therapy; D002648:Child; D002675:Child, Preschool; D003131:Combined Modality Therapy; D017281:Cost of Illness; D003866:Depressive Disorder / Q000523:psychology / Q000628:therapy; D005196:Family Therapy / Q000379:methods*; D005220:Fathers / Q000523:psychology*; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D009369:Neoplasms / Q000523:psychology* / Q000534:rehabilitation*; D010043:Outcome and Process Assessment, Health Care; D010865:Pilot Projects; D011788:Quality of Life / Q000523:psychology; D012047:Rehabilitation Centers; D011795:Surveys and Questionnaires
keywords: Hospital anxiety and depression scale (HADS); Krebserkrankung im Kindesalter; Lebensqualität; familienorientierte Rehabilitation; family-oriented rehabilitation; mental burden; paediatric cancer; psychische Belastung; quality of life