title: Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients' knowledge and decision-making.
abstract: Patients considering renal transplantation face an increasingly complex array of choices as a result of the revised kidney transplant allocation system. Decision aids have been shown to improve patient decision-making through the provision of detailed, relevant, individualized clinical data. A mobile iOS-based application (app) including animated patient education and individualized risk-adjusted outcomes following kidney transplants with varying donor characteristics and DSA waiting times was piloted in two large US transplant programs with a diverse group of renal transplant candidates (N = 81). The majority (86%) of patients felt that the app improved their knowledge and was culturally appropriate for their race/ethnicity (67%-85%). Patients scored significantly higher on transplant knowledge testing (9.1/20 to 13.8/20, P < .001) after viewing the app, including patients with low health literacy (8.0 to 13.0, P < .001). Overall knowledge of and interest in living and deceased donor kidney transplantation increased. This pilot project confirmed the benefit and cultural acceptability of this educational tool, and further refinement will explore how to better communicate the risks and benefits of nonstandard donors.
authors.affiliation: Brody School of Medicine, East Carolina University, Greenville, NC, USA.|XynManagement Inc, Boerne, TX, USA.
authors.forename: David A
authors.identifier: 0000-0001-5684-0613
authors.initials: DA
authors.lastname: Axelrod
authors.affiliation: David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, CA, USA.
authors.forename: Crystal S
authors.initials: CS
authors.lastname: Kynard-Amerson
authors.affiliation: Department of Medicine, Massachusetts General Hospital, Boston, MA, USA.
authors.forename: David
authors.identifier: 0000-0001-5342-0277
authors.initials: D
authors.lastname: Wojciechowski
authors.affiliation: Department of Medicine, Massachusetts General Hospital, Boston, MA, USA.
authors.forename: Marie
authors.initials: M
authors.lastname: Jacobs
authors.affiliation: XynManagement Inc, Boerne, TX, USA.|Abdominal Transplant Center, St. Louis University, St. Louis, MO, USA.
authors.forename: Krista L
authors.initials: KL
authors.lastname: Lentine
authors.affiliation: XynManagement Inc, Boerne, TX, USA.|Abdominal Transplant Center, St. Louis University, St. Louis, MO, USA.
authors.forename: Mark
authors.initials: M
authors.lastname: Schnitzler
authors.affiliation: David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, CA, USA.
authors.forename: John D
authors.initials: JD
authors.lastname: Peipert
authors.affiliation: David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, CA, USA.
authors.forename: Amy D
authors.initials: AD
authors.lastname: Waterman
mesh_terms: D000328:Adult; D000368:Aged; D040421:Cell Phone / Q000706:statistics & numerical data*; D054521:Cultural Competency; D003657:Decision Making; D005260:Female; D005500:Follow-Up Studies; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D016030:Kidney Transplantation; D019520:Living Donors; D008297:Male; D008875:Middle Aged; D010353:Patient Education as Topic; D010865:Pilot Projects; D009927:Tissue and Organ Procurement; D066027:Transplant Recipients / Q000193:education*; D055815:Young Adult
keywords: 
  EPTS
  ; 
  KPDI
  ; kidney transplant; living donor; outcomes research; patient education