title: [Burden and Rehabilitation Goals of Families in Pediatric-oncological Rehabilitation].
abstract: Burden and Rehabilitation Goals of Families in Pediatric-oncological Rehabilitation Survival rates of childhood cancer patients increased during the past years up to 80 %. Therefore, pediatric oncological rehabilitation is essential for reintegrating children with cancer into normal life. We performed an analysis of the current state in pediatric oncological rehabilitation with regards to the impairments of the participants and results in rehabilitation. Descriptive and content analyses of 422 medical discharge summaries were conducted. 55 % of the pediatric patients are male; the average age is 8.7 years. Children attending rehabilitation program are affected by various functional and psychosocial impairments. We identified global rehabilitation-goals such as integration in peer group and specific goals such as pain relief. According to rehabilitation physicians' opinion most patients achieve their rehabilitation-goals. Accompanying family members report a range of psychosocial burden and diverse concerns for rehabilitation. Medical discharge summaries display the complexity of family-oriented rehabilitation. We conclude that rehabilitation treatment needs to be tailored according to individual burdens and the whole family.
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Laura
authors.initials: L
authors.lastname: Inhestern
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Volker
authors.initials: V
authors.lastname: Beierlein
authors.affiliation: Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
authors.forename: Konstantin A
authors.initials: KA
authors.lastname: Krauth
authors.affiliation: Rehabilitationsklinik Bad Oexen Oexen 27 32549 Bad Oeynhausen Deutschland Rehabilitationsklinik Bad Oexen.
authors.forename: Thomas
authors.initials: T
authors.lastname: Schulte
authors.affiliation: Arbeitsgemeinschaft für Krebsbekämpfung Nordrhein-Westfalen Universitätsstraße 140 44799 Bochum Deutschland Arbeitsgemeinschaft für Krebsbekämpfung.
authors.forename: Dieter
authors.initials: D
authors.lastname: Berger
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Uwe
authors.initials: U
authors.lastname: Koch
authors.affiliation: Institut für Medizinische Psychologie Universitätsklinikum Hamburg-Eppendorf Martinistraße 52 D-20246 Hamburg Deutschland Institut für Medizinische Psychologie am Universitätsklinikum Hamburg-Eppendorf.
authors.forename: Corinna
authors.initials: C
authors.lastname: Bergelt
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D017281:Cost of Illness; D004185:Disability Evaluation; D005196:Family Therapy / Q000379:methods*; D005260:Female; D005858:Germany; D006040:Goals; D006301:Health Services Needs and Demand; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology* / Q000534:rehabilitation*; D059408:Pain Management / Q000523:psychology; D010379:Peer Group; D012047:Rehabilitation Centers; D012917:Social Adjustment
keywords: Familie; Kind; Krebs; cancer; child; family; pediatric oncological rehabilitation; pädiatrisch-onkologische Rehabilitation