title: The multidisciplinary fetal center: clinical expertise is only part of the experience.
abstract: OBJECTIVE
  Multidisciplinary foetal centres have recently emerged in partnership with children's hospitals throughout the United States. The aim of this investigation was to describe the patient experience of pregnant women who were referred to our foetal centres for the evaluation of foetal congenital anomalies.
  
  
  METHODS
  A qualitative interview study of women referred to our foetal centres was conducted using semi-structured telephone interviews. The data were coded and analysed using thematic networks analysis.
  
  
  RESULTS
  Six themes were identified (i) foetal centre evaluations had a far-reaching impact on participants' lives, (ii) participants appreciated both expertise and support from providers, (iii) participants recognised the need to cope with uncertainty, (iv) participants sought additional support from multiple arenas, (v) participants specifically looked to the Internet for both information and support and (vi) participants had pre-established views about pregnancy termination.
  
  
  CONCLUSIONS
  Multidisciplinary foetal centres can provide a unified source of clinical expertise to women who are carrying a foetus with a suspected or identified congenital anomaly. Despite this diagnostic acumen, uncertainty is pervasive and patients seek support and additional information from a variety of other sources. This investigation is an important initial step in the evaluation of this emerging model of care.
authors.affiliation: Mary Bridge Children's Hospital, Tacoma, WA, USA.
authors.forename: Jennifer C
authors.initials: JC
authors.lastname: Kett
authors.affiliation: Seattle Children's Hospital, Seattle, WA, USA.
authors.forename: Elana
authors.initials: E
authors.lastname: Wolfe
authors.affiliation: Seattle Children's Hospital, Seattle, WA, USA.
authors.forename: Margaret M
authors.initials: MM
authors.lastname: Vernon
authors.affiliation: Seattle Children's Hospital, Seattle, WA, USA.|University of Washington, Seattle, WA, USA.
authors.forename: David
authors.initials: D
authors.lastname: Woodrum
authors.affiliation: Seattle Children's Hospital, Seattle, WA, USA.|University of Washington, Seattle, WA, USA.
authors.forename: Douglas
authors.initials: D
authors.lastname: Diekema
mesh_terms: D000328:Adult; D000013:Congenital Abnormalities; D005260:Female; D006801:Humans; D033183:Interdisciplinary Communication; D010348:Patient Care Team; D011247:Pregnancy; D011295:Prenatal Care / Q000458:organization & administration* / Q000523:psychology; D055815:Young Adult
keywords: Congenital anomalies; Foetal care centre; Foetal centre; Patient experience; Prenatal counselling