title: Applying the International Classification of Functioning-Children and Youth Version to Pediatric Neuro-oncology.
abstract: Given the increased survival rates in patients with pediatric central nervous system tumors, late effects such as treatment- and/or illness-related neurologic sequelae as well as neuropsychological deficits and social difficulties have moved into focus in follow-up care. In order to provide personalized treatment recommendations for pediatric brain tumor survivors, it is crucial not only to assess cognitive impairments but also to measure a patient's functional deficiencies, for example, restricted participation in everyday social activities. Thus, this article introduces the International Classification of Functioning-Children and Youth version (ICF-CY) as a conceptual framework for quantifying functional limitations and informing long-term care in pediatric neuro-oncology. A standardized self-report and proxy-report questionnaire for measuring participation is briefly discussed and specific recommendations based on so-called core sets for clinical practice in pediatric neuro-oncology are provided.
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Thomas
authors.initials: T
authors.lastname: Pletschko
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Anna
authors.initials: A
authors.lastname: Felnhofer
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Agathe
authors.initials: A
authors.lastname: Schwarzinger
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Liesa
authors.initials: L
authors.lastname: Weiler
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Irene
authors.initials: I
authors.lastname: Slavc
authors.affiliation: 1 Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
authors.forename: Ulrike
authors.initials: U
authors.lastname: Leiss
mesh_terms: D001932:Brain Neoplasms / Q000145:classification* / Q000150:complications / Q000175:diagnosis / Q000523:psychology*; D002648:Child; D060825:Cognitive Dysfunction / Q000145:classification* / Q000175:diagnosis / Q000209:etiology*; D006801:Humans; D011581:Psychological Tests; D012720:Severity of Illness Index
keywords: assessment; children; neuro-oncology; neuropsychology; psychosocial functioning