title: Illness Experience, Self-Determination, and Recreational Activities in Pediatric Asthma.
abstract: Although asthma self-management depends on ongoing and accurate self-assessment by the patient, pediatric asthma patients have weak skills in the area of symptom perception. Before developing an asthma game targeted to improving asthma self-management and improved symptom awareness, we sought to identify gaps in existing games. To clarify the role of relatedness and autonomy in asthma health game design, we investigated symptom awareness, vocabulary, and self-determination through a series of semi-structured interviews with children suffering from asthma. Using self-determination theory as a framework, interviews were oriented to patients' illness experience and vocabulary related to symptomatology, as well as to recreational activities. Formative analysis of the interviews reveals attitudes, perceptions, and motivational factors arising in the context of childhood asthma, and it elucidates the images and vocabulary associated with both illness experience and recreational activities. Qualitative assessment of patient perspectives leads to specific recommendations for game design ideas that will support market entry of a spirometer-controlled game for children with asthma.
authors.affiliation: 1 Department of Neurology, University of Vermont Medical Center , Burlington, Vermont.|2 Department of Pediatrics, University of Vermont Medical Center , Burlington, Vermont.
authors.forename: Peter M
authors.initials: PM
authors.lastname: Bingham
authors.affiliation: 1 Department of Neurology, University of Vermont Medical Center , Burlington, Vermont.|2 Department of Pediatrics, University of Vermont Medical Center , Burlington, Vermont.
authors.forename: Ian
authors.initials: I
authors.lastname: Crane
authors.affiliation: 1 Department of Neurology, University of Vermont Medical Center , Burlington, Vermont.|2 Department of Pediatrics, University of Vermont Medical Center , Burlington, Vermont.
authors.forename: Sarah Waterman
authors.initials: SW
authors.lastname: Manning
mesh_terms: D000293:Adolescent; D001249:Asthma / Q000150:complications / Q000523:psychology*; D002648:Child; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D008297:Male; D010465:Perception; D026684:Personal Autonomy; D036301:Qualitative Research; D011998:Recreation / Q000523:psychology*; D012648:Self Care; D018910:Video Games / Q000523:psychology
keywords: Asthma; Child; Chronic disease; Games; Recreational activities; Self-determination