title: OMERACT Quality-adjusted Life-years (QALY) Working Group: Do Current QALY Measures Capture What Matters to Patients?
abstract: OBJECTIVE
  To understand the limitations with current patient-reported outcome measures (PROM) used to generate quality-adjusted life-years (QALY) in rheumatology, and set a research agenda.
  
  
  METHODS
  Two activities were undertaken. The first was a scoping review of published studies that have used PROM to generate QALY in rheumatology between 2011 and 2016. The second was an interactive "eyeball test" exercise at Outcome Measures in Rheumatology 13 that compared subdomains of widely used generic PROM, as identified through the scoping review, to subdomains of the Assessment of SpondyloArthritis Health Index (ASAS-HI) condition-specific PROM for ankylosing spondylitis.
  
  
  RESULTS
  The scoping review included 39 studies. Five different PROM have been used to generate QALY in rheumatology; however, the EQ-5D and Short Form 6 Dimensions (SF-6D) were used most frequently (in 32 and 9 of included studies, respectively). Special interest group participants identified energy/drive and sleep as 2 key subdomains of the ASAS-HI instrument that may be missed by the EQ-5D, and sexual function as potentially missed by the SF-6D. Participants also expressed concerns that aspects of the process of care and non-health outcomes may be missed. Three ways of incorporating additional subdomains were discussed, including using an alternative generic PROM, modifying an existing generic PROM with "bolt-on" subdomain(s), and generating societal weights for a condition-specific PROM.
  
  
  CONCLUSIONS
  Three priorities for future research were identified: understanding whether the EQ-5D and SF-6D identify what matters to patients with different rheumatic conditions, analyzing how much patients value process or non-health outcomes, and identifying which approaches to incorporating a greater number of subdomains into the QALY are being undertaken in other disease areas.
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Logan
authors.initials: L
authors.lastname: Trenaman
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Annelies
authors.initials: A
authors.lastname: Boonen
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Francis
authors.initials: F
authors.lastname: Guillemin
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Mickael
authors.initials: M
authors.lastname: Hiligsmann
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Alison
authors.initials: A
authors.lastname: Hoens
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Carlo
authors.initials: C
authors.lastname: Marra
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Will
authors.initials: W
authors.lastname: Taylor
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Jennifer
authors.initials: J
authors.lastname: Barton
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: Peter
authors.initials: P
authors.lastname: Tugwell
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital.
authors.forename: George
authors.initials: G
authors.lastname: Wells
authors.affiliation: From the School of Population and Public Health, and Department of Physical Therapy, University of British Columbia; Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; Arthritis Patient Advisory Board, Arthritis Research Canada, Vancouver, British Columbia; School of Pharmacy, Memorial University, St. John's, Newfoundland; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, Care and Public Health Research Institute (CAPHRI), Maastricht University; Department of Health Services Research, CAPHRI, Maastricht University, Maastricht, the Netherlands; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy, France; Department of Medicine, University of Otago Wellington, Wellington, New Zealand; School of Medicine, Oregon Health and Science University, Portland, Oregon, USA. nick.bansback@ubc.ca.|L. Trenaman, MSc, School of Population and Public Health, University of British Columbia, and the Centre for Health Evaluation and Outcome Sciences, St. Paul's Hospital; A. Boonen, MD, PhD, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Graduate School, CAPHRI, Maastricht University; F. Guillemin, MD, PhD, Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC; M. Hiligsmann, PhD, Department of Health Services Research, Maastricht University, CAPHRI; A. Hoens, BScPT, MSc, Department of Physical Therapy, University of British Columbia, and Arthritis Patient Advisory Board, Arthritis Research Canada; C. Marra, PharmD, PhD, School of Pharmacy, Memorial University; W. Taylor, MBChB, PhD, FRACP, FAFRM, Department of Medicine, University of Otago; J. Barton, MD, School of Medicine, Oregon Health and Science University; P. Tugwell, MD, MSc, FRCPC, Department of Medicine, University of Ottawa; G. Wells, PhD, Department of Medicine, University of Ottawa; N. Bansback, PhD, School of Population and Public Health, University of British Columbia, and Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital. nick.bansback@ubc.ca.
authors.forename: Nick
authors.initials: N
authors.lastname: Bansback
mesh_terms: D006801:Humans; D010358:Patient Participation; D011594:Psychometrics; D011788:Quality of Life; D019057:Quality-Adjusted Life Years; D025241:Spondylarthritis / Q000523:psychology / Q000628:therapy*
keywords: COST-BENEFIT ANALYSIS; OMERACT; QUALITY-ADJUSTED LIFE-YEARS; RHEUMATOLOGY