title: Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources.
abstract: Research ethics anew gained importance due to the changing scientific landscape and increasing demands and competition in the academic field. These changes are further exaggerated because of scarce(r) resources in some countries on the one hand and advances in genomics on the other. In this paper, we will highlight the current challenges thereof to scientific integrity. To mark key developments in research ethics, we will distinguish between what we call research ethics 1.0 and research ethics 2.0. Whereas research ethics 1.0 focuses on individual integrity and informed consent, research ethics 2.0 entails social scientific integrity within a broader perspective of a research network. This research network can be regarded as a network of responsibilities in which every stakeholder involved has to jointly meet the ethical challenges posed to research.
authors.affiliation: Department of International Health, School CAPHRI, Maastricht University, Maastricht, The Netherlands.
authors.forename: Caroline
authors.initials: C
authors.lastname: Brall
authors.forename: Els
authors.initials: E
authors.lastname: Maeckelberghe
authors.forename: Rouven
authors.initials: R
authors.lastname: Porz
authors.forename: Jihad
authors.initials: J
authors.lastname: Makhoul
authors.forename: Peter
authors.initials: P
authors.lastname: Schröder-Bäck
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D032984:Ethics, Research; D023281:Genomics / Q000941:ethics*; D006801:Humans; D007258:Informed Consent / Q000941:ethics; D066262:Social Norms; D012941:Social Responsibility; D012945:Social Values
keywords: Network of responsibility; Research ethics; Research network; Scientific integrity