A Patient and Provider Research Agenda on Diabetes and Hypertension Management.
BACKGROUND
A demonstration project in Richmond, Virginia involved patients and other stakeholders in the creation of a research agenda on dietary and behavioral management of diabetes and hypertension. Given the impact of these diseases on morbidity and mortality, considerable research has been directed at the challenges patients face in chronic disease management. The continuing need to understand disparities and find evidence-based interventions to improve outcomes has been fruitful, but disparities and unmet needs persist.


METHODS
The Stakeholder Engagement in Question Development (SEED) method is a stakeholder engagement methodology that combines engagement with a review of available evidence to generate research questions that address current research gaps and are important to patients and other stakeholders. Using the SEED method, patients and other stakeholders participated in research question development through a combination of collaborative, participatory, and consultative engagement. Steps in the process included: (1) identifying the topic and recruiting participants; (2) conducting focus groups and interviews; (3) developing conceptual models; (4) developing research questions; and (5) prioritizing research questions.


RESULTS
Stakeholders were involved in the SEED process from February to August 2015. Eighteen questions were prioritized for inclusion in the research agenda, covering diverse domains, from healthcare provision to social and environmental factors. Data analysis took place September to May 2016. During this time, researchers conducted a literature review to target research gaps.


CONCLUSIONS
The stakeholder-prioritized, novel research questions developed through the SEED process can directly inform future research and guide the development of evidence that translates more directly to clinical practice.
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia. Electronic address: emily.zimmerman@vcuhealth.org.
Emily B
EB
Zimmerman
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
Sarah K
SK
Cook
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
Amber D
AD
Haley
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
Steven H
SH
Woolf
School of Social Work, Virginia Commonwealth University, Richmond, Virginia.
Sarah K
SK
Price
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
D032763:Behavior Control / Q000379:methods; D035843:Biomedical Research / Q000379:methods*; D002908:Chronic Disease; D003920:Diabetes Mellitus / Q000628:therapy*; D004035:Diet Therapy / Q000379:methods; D019317:Evidence-Based Medicine / Q000379:methods; D017144:Focus Groups; D006801:Humans; D006973:Hypertension / Q000628:therapy*; D010358:Patient Participation / Q000379:methods*; D012107:Research Design; D014768:Virginia