ACTIVLIM-CP a new Rasch-built measure of global activity performance for children with cerebral palsy.
OBJECTIVE
Children with cerebral palsy (CP) often have upper extremity (UE) and lower extremity (LE) impairments. While tools measuring separately UE and LE abilities are currently used, activities in which UE and LE are used in combination - numerous in everyday life - cannot be assessed because no instrument allows capturing global activity performance in children with CP. This study aimed to develop a clinical tool for measuring their global activity performance using the Rasch model.


METHODS
The caregivers of 226 children with CP (2-18 years old) answered a 154-item experimental questionnaire. Within 4-6 weeks, 129 of them filled in the questionnaire a second time. Responses were analyzed using the Rasch RUMM2020 software.


RESULTS
The final 43 item scale presented a high reliability (R=0.98) and reproducibility (R=0.97). The item difficulty hierarchy was consistent over time and did not vary according to age, gender, or clinical form, allowing the follow-up of children from 2 to 18 years old.


CONCLUSIONS
ACTIVLIM-CP is a unidimensional scale specifically developed to measure global activity performance in children with CP providing a reliable tool to follow children's evolution and document changes related to neurorehabilitation, especially where a combination of UE and LE is targeted. Its responsiveness is still to be tested.
Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium. Electronic address: yannick.bleyenheuft@uclouvain.be.
Yannick
Y
Bleyenheuft
Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium; Service l'escale, CHU Lyon, Lyon, France.
Julie
J
Paradis
Clinques universitaires Saint-Luc, Université catholique de Louvain, Brussels, Belgium.
Anne
A
Renders
Institute of NeuroScience, Université catholique de Louvain, Brussels, Belgium; Clinques universitaires Saint-Luc, Université catholique de Louvain, Brussels, Belgium.
Jean-Louis
JL
Thonnard
Haute Ecole Louvain en Hainaut, Physical and Occupational Therapy Department, Paramedical Category, Montignies-sur-Sambre, Belgium.
Carlyne
C
Arnould
D000203:Activities of Daily Living; D000293:Adolescent; D002547:Cerebral Palsy / Q000503:physiopathology*; D002648:Child; D002675:Child, Preschool; D005260:Female; D006801:Humans; D035002:Lower Extremity; D008297:Male; D009043:Motor Activity; D010290:Parents; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D034941:Upper Extremity
Activity; Cerebral palsy; Lower extremity+Rasch-model (outside Mesh); Upper extremity