Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients.
BACKGROUND
Patient and consumer engagement in clinical practice guideline development is internationally advocated, but limited research explores mechanisms for successful engagement.


OBJECTIVE
To investigate the perspectives of potential patient/consumer guideline representatives on topics pertaining to engagement including guideline development group composition and barriers to and facilitators of engagement.


METHODS
Participants were guideline-naïve volunteers for programs designed to link community members to academic research with diverse ages, gender, race, and degrees of experience interacting with health care professionals.


METHODS
Three focus groups and one key informant interview were conducted and analyzed using a qualitative descriptive approach.


RESULTS
Participants recommended small, diverse guideline development groups engaging multiple patient/consumer stakeholders with no prior relationships with each other or professional panel members. No consensus was achieved on the ideal balance of patient/consumer and professional stakeholders. Pre-meeting reading/training and an identified contact person were described as keys to successful early engagement; skilled facilitators, understandable speech and language, and established mechanisms for soliciting patient opinions were suggested to enhance engagement at meetings.


CONCLUSIONS
Most suggestions for effective patient/consumer engagement in guidelines require forethought and planning but little additional expense, making these strategies easily accessible to guideline developers desiring to achieve more meaningful patient and consumer engagement.
Department of Neurology, University of Florida College of Medicine, Gainesville, Florida, United States of America.
Melissa J
http://orcid.org/0000-0002-2163-1907
MJ
Armstrong
Pharmaceutical Health Research Department, University of Maryland School of Pharmacy, Baltimore, Maryland, United States of America.
C Daniel
CD
Mullins
Department of Neurology, University of Kansas Medical Center, Kansas City, Kansas, United States of America.
Gary S
GS
Gronseth
Toronto General Research Institute, University Health Network, Toronto, Ontario, Canada.
Anna R
AR
Gagliardi
D000328:Adult; D005260:Female; D005431:Florida; D017144:Focus Groups; D006282:Health Personnel; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008396:Maryland; D008875:Middle Aged; D010358:Patient Participation / Q000523:psychology; D057240:Patient Preference; D017410:Practice Guidelines as Topic; D036301:Qualitative Research; D014495:Universities