People-Centered Language Recommendations for Sleep Research Communication.
The growing embrace of patient-centered outcomes research (PCOR) in sleep medicine is a significant step forward for the field. In engaging and incorporating the unique perspectives of people with sleep disorders, PCOR enhances the relevance of findings and facilitates the uptake of research into practice. While centering research design around what matters most to people with sleep disorders is critical, research communication must be similarly people-centered. One approach is using "people-centered language" in both professional and public communications. People-centered language is rooted in sociolinguistic research demonstrating that language both reflects and shapes attitudes. People-centered language puts people first, is precise and neutral, and respects autonomy. By adhering to the language guidelines described in this article, sleep researchers will better serve the field's most important stakeholders.
Health Research Communication Strategies, Los Angeles, CA.
Rebecca E
RE
Fuoco
D003142:Communication; D006801:Humans; D007802:Language; D018802:Patient-Centered Care / Q000379:methods*; D017410:Practice Guidelines as Topic; D056508:Sleep Medicine Specialty / Q000379:methods*; D012893:Sleep Wake Disorders / Q000523:psychology
Narcolepsy; OSA; REM sleep behavior disorder; circadian rhythm disorders; communication; insomnia; language; patient-centered outcomes; restless legs syndrome; stigma.; terminology