title: Exploring the Potential for Secondary uses of Dementia Care Mapping (DCM) Data for Improving the Quality of Dementia Care.
abstract: The reuse of existing datasets to identify mechanisms for improving healthcare quality has been widely encouraged. There has been limited application within dementia care. Dementia Care Mapping is an observational tool in widespread use, predominantly to assess and improve quality of care in single organisations. Dementia Care Mapping data have the potential to be used for secondary purposes to improve quality of care. However, its suitability for such use requires careful evaluation. This study conducted in-depth interviews with 29 Dementia Care Mapping users to identify issues, concerns and challenges regarding the secondary use of Dementia Care Mapping data. Data were analysed using modified Grounded Theory. Major themes identified included the need to collect complimentary contextual data in addition to Dementia Care Mapping data, to reassure users regarding ethical issues associated with storage and reuse of care related data and the need to assess and specify data quality for any data that might be available for secondary analysis.
authors.affiliation: School of Dementia Studies, University of Bradford, UK.
authors.forename: Shehla
authors.initials: S
authors.lastname: Khalid
authors.affiliation: School of Health and Community Studies, Leeds Beckett University, UK.
authors.forename: Claire
authors.initials: C
authors.lastname: Surr
authors.affiliation: Faculty of Engineering and Informatics, University of Bradford, UK.
authors.forename: Daniel
authors.initials: D
authors.lastname: Neagu
authors.affiliation: Faculty of Health Studies, University of Bradford, UK.
authors.forename: Neil
authors.initials: N
authors.lastname: Small
mesh_terms: D016494:Computer Security; D066264:Datasets as Topic; D003704:Dementia / Q000628:therapy*; D005260:Female; D066296:Grounded Theory; D006801:Humans; D007407:Interviews as Topic; D018802:Patient-Centered Care; D058996:Quality Improvement; D011787:Quality of Health Care
keywords: Dementia Care Mapping; data quality; grounded theory; quality of care; secondary use of data