title: 7-day weighed food diaries suggest patients with hereditary hemorrhagic telangiectasia may spontaneously modify their diet to avoid nosebleed precipitants.
abstract: Hereditary hemorrhagic telangiectasia (HHT) poses substantial burdens due to nosebleeds and iron deficiency resulting from recurrent hemorrhagic iron losses. Recent studies by our group found surprising links between HHT nosebleeds and certain food groups. In this letter, we report 7-day weighed food diary assessments of an unselected group of 25 UK patients with HHT whose nosebleeds ranged from mild to severe (median epistaxis severity score 4.66, range 0.89- 9.11). The diaries provide evidence that food items most commonly reported to provoke nosebleeds were ingested by fewer HHT patients, compared to food items less commonly reported to provoke nosebleeds (chi-squared p <0.001).
authors.affiliation: National Heart and Lung Institute Cardiovascular Sciences, Imperial College London, London, UK.|Diabetes and Nutritional Sciences Division, King's College London, London, UK.
authors.forename: Helen
authors.initials: H
authors.lastname: Finnamore
authors.affiliation: Imperial College School of Medicine, Imperial College London, London, UK.
authors.forename: B Maneesha
authors.initials: BM
authors.lastname: Silva
authors.affiliation: Nutrition and Dietetics, Plymouth University, Plymouth, UK.
authors.forename: B Mary
authors.initials: BM
authors.lastname: Hickson
authors.affiliation: Diabetes and Nutritional Sciences Division, King's College London, London, UK.
authors.forename: Kevin
authors.initials: K
authors.lastname: Whelan
authors.affiliation: National Heart and Lung Institute Cardiovascular Sciences, Imperial College London, London, UK. c.shovlin@imperial.ac.uk.|Respiratory Medicine, Imperial College Healthcare NHS Trust, London, UK. c.shovlin@imperial.ac.uk.
authors.forename: Claire L
authors.initials: CL
authors.lastname: Shovlin
mesh_terms: D000740:Anemia; D015930:Diet Records; D004844:Epistaxis / Q000517:prevention & control*; D005260:Female; D005395:Fish Oils; D006801:Humans; D008297:Male; D011795:Surveys and Questionnaires; D013683:Telangiectasia, Hereditary Hemorrhagic / Q000503:physiopathology / Q000517:prevention & control* / Q000523:psychology*
chemical_list: D005395:Fish Oils
keywords: 7-day weighed food diary; Anemia; Epistaxis; Fish oil; Hemorrhage adjusted iron requirement (HAIR); Iron