title: Safe and Inclusive Research Practices for Qualitative Research Involving People with Dementia: A Review of Key Issues and Strategies.
abstract: OBJECTIVE
  Developing strategies to ensure the safe participation of people with dementia in research is critical to support their wider inclusion in research and to advance knowledge in the areas of dementia policy and practice.
  
  
  OBJECTIVE
  This literature review synthesizes and critically appraises different approaches to promote the safe participation of people with dementia in qualitative research.
  
  
  METHODS
  Two databases were searched for articles that discuss the methodological or ethical aspects of qualitative research involving people with dementia. We did not focus on informed consent or ethical review processes as these have been reviewed elsewhere.
  
  
  RESULTS
  Key issues that impact participant safety include: language, gatekeepers, the research relationship, communication, dealing with distress, knowledge dissemination, and researcher skills.
  
  
  CONCLUSIONS
  By synthesizing different approaches to safety and highlighting areas of debate, we hope to advance discussion and to contribute to the development of inclusive research methods.
authors.affiliation: Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
authors.forename: Sheila
authors.initials: S
authors.lastname: Novek
authors.affiliation: Edinburgh Centre for Research on the Experiences of Dementia (E-CRED), University of Edinburgh, Edinburgh, UK.
authors.forename: Heather
authors.initials: H
authors.lastname: Wilkinson
mesh_terms: D003142:Communication; D003704:Dementia; D032984:Ethics, Research; D006801:Humans; D061214:Patient Safety; D036301:Qualitative Research; D012107:Research Design
keywords: dementia; ethics; inclusive research; qualitative research methods; safety