title: Comparative Approaches to Genetic Discrimination: Chasing Shadows?
abstract: Genetic discrimination (GD) is one of the most pervasive issues associated with genetic research and its large-scale implementation. An increasing number of countries have adopted public policies to address this issue. Our research presents a worldwide comparative review and typology of these approaches. We conclude with suggestions for public policy development.
authors.affiliation: Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, QC H3A 1A4, Canada. Electronic address: yann.joly@mcgill.ca.
authors.forename: Yann
authors.initials: Y
authors.lastname: Joly
authors.affiliation: Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, QC H3A 1A4, Canada.
authors.forename: Ida Ngueng
authors.initials: IN
authors.lastname: Feze
authors.affiliation: Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, QC H3A 1A4, Canada.
authors.forename: Lingqiao
authors.initials: L
authors.lastname: Song
authors.affiliation: Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, QC H3A 1A4, Canada.
authors.forename: Bartha M
authors.initials: BM
authors.lastname: Knoppers
mesh_terms: D001675:Bioethics / Q000639:trends*; D004192:Discrimination, Psychological / Q000941:ethics; D004641:Emigration and Immigration; D036281:Genetic Research / Q000941:ethics* / Q000331:legislation & jurisprudence; D006806:Human Rights; D006801:Humans; D011640:Public Policy / Q000331:legislation & jurisprudence
keywords: bioethics; comparative law; genetic discrimination; human rights; insurance; personalized medicine