title: Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX.
authors.affiliation: Division of Haematology/Oncology, Department of Paediatrics, Child Health Evaluative Sciences, Research Institute, Hospital for Sick Children, University of Toronto, Toronto, ON, Canada.
authors.forename: M
authors.identifier: 0000-0001-5350-1763
authors.initials: M
authors.lastname: Carcao
authors.affiliation: CHCMN Hemophilia and Thrombosis Center Children's Hospital and Clinics of Minnesota, Minneapolis, MN, USA.
authors.forename: S
authors.initials: S
authors.lastname: Kearney
authors.affiliation: Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre, Istituto di Ricovero e Cura a Carattere Scientifico Cà Granda Foundation, Maggiore Hospital Policlinico, Milan, Italy.
authors.forename: E
authors.initials: E
authors.lastname: Santagostino
authors.affiliation: Department of Haemophilia, Haemostasis and Thrombosis, Hampshire Hospitals NHS Foundation Trust, Basingstoke, Hampshire, UK.
authors.forename: J O O
authors.initials: JOO
authors.lastname: Oyesiku
authors.affiliation: School of Rural and Northern Health and ECHO Research Centre, Laurentian University, Sudbury, ON, Canada.
authors.forename: N L
authors.initials: NL
authors.lastname: Young
authors.affiliation: Mapi, Patient-Centered Outcomes, Lyon, France.
authors.forename: J
authors.initials: J
authors.lastname: Meunier
authors.affiliation: Novo Nordisk A/S, Søborg, Denmark.
authors.forename: C S
authors.initials: CS
authors.lastname: Hoxer
authors.affiliation: Division of Haematology/Oncology, Department of Paediatrics, Child Health Evaluative Sciences, Research Institute, Hospital for Sick Children, University of Toronto, Toronto, ON, Canada.
authors.forename: C
authors.initials: C
authors.lastname: Zhang
authors.affiliation: Division of Haematology/Oncology, Department of Paediatrics, Child Health Evaluative Sciences, Research Institute, Hospital for Sick Children, University of Toronto, Toronto, ON, Canada.
authors.forename: V S
authors.initials: VS
authors.lastname: Blanchette
mesh_terms: D002648:Child; D002675:Child, Preschool; D005164:Factor IX / Q000627:therapeutic use*; D005260:Female; D002836:Hemophilia B / Q000188:drug therapy*; D006801:Humans; D008297:Male; D011092:Polyethylene Glycols / Q000627:therapeutic use*; D011788:Quality of Life; D011994:Recombinant Proteins / Q000627:therapeutic use
chemical_list: D011994:Recombinant Proteins; C000592276:nonacog beta pegol; D011092:Polyethylene Glycols; D005164:Factor IX