title: "Not Just a Receiver": Understanding Patient Behavior in the Hospital Environment.
abstract: Patient engagement leads to better health outcomes and experiences of health care. However, existing patient engagement systems in the hospital environment focus on the passive receipt of information by patients rather than the active contribution of the patient or caregiver as a partner in their care. Through interviews with hospitalized patients and their caregivers, we identify ways that patients and caregivers actively participate in their care. We describe the different roles patients and caregivers assume in interacting with their hospital care team. We then discuss how systems designed to support patient engagement in the hospital setting can promote active participation and help patients achieve better outcomes.
authors.affiliation: The Information School, University of Washington, Seattle, WA, USA.
authors.forename: Sonali R
authors.initials: SR
authors.lastname: Mishra
authors.affiliation: Biomedical and Health Informatics, University of Washington, Seattle, WA, USA.
authors.forename: Shefali
authors.initials: S
authors.lastname: Haldar
authors.affiliation: Department of Pediatrics, School of Medicine, University of Washington, Seattle, WA, USA; Division of Nephrology, Seattle Children's Hospital, Seattle, WA, USA.
authors.forename: Ari H
authors.initials: AH
authors.lastname: Pollack
authors.affiliation: Biomedical and Health Informatics, University of Washington, Seattle, WA, USA.
authors.forename: Logan
authors.initials: L
authors.lastname: Kendall
authors.affiliation: Biomedical and Health Informatics, University of Washington, Seattle, WA, USA.
authors.forename: Andrew D
authors.initials: AD
authors.lastname: Miller
authors.affiliation: Biomedical and Health Informatics, University of Washington, Seattle, WA, USA.
authors.forename: Maher
authors.initials: M
authors.lastname: Khelifi
authors.affiliation: The Information School, University of Washington, Seattle, WA, USA.
authors.forename: Wanda
authors.initials: W
authors.lastname: Pratt
keywords: H.5.m. Information interfaces and presentation; HCI; Health; Health informatics; J.3 Life and Medical Sciences; Medical Information Systems; hospital; interface design; patient engagement