title: Young-onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance.
abstract: Although dementia typically occurs in older people, it can also emerge in people aged younger than 65 years in the form of young-onset dementia, the most common type of which is Alzheimer's disease (AD). However, few studies have examined the needs of persons with young-onset AD (YO-AD) and their families, and cross-cultural research on the topic is even scarcer. In response, we investigated the situations, experiences and needs for assistance of carers of persons with YO-AD in Brazil and Norway.
  
  
  
  As part of our qualitative study, we formed a convenience sample of Brazilian (n = 9; 7 women) and Norwegian carers (n = 11; 6 women) in 2014 and 2015, respectively, and analysed data in light of a modified version of grounded theory.
  
  
  
  Carers' narratives from both countries revealed five common themes in terms of how YO-AD affected carers' psychological and emotional well-being, physical well-being, professional and financial well-being, social lives and need for support services.
  
  
  
  The infrequent differences between carers of persons with YO-AD in Brazil and Norway indicate that carers' problems are highly similar regardless of cultural differences and public services provided. Copyright © 2017 John Wiley & Sons, Ltd.
authors.affiliation: Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
authors.forename: M C N
authors.identifier: 0000-0001-6267-8202
authors.initials: MCN
authors.lastname: Dourado
authors.affiliation: Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
authors.forename: J
authors.initials: J
authors.lastname: Laks
authors.affiliation: Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
authors.forename: N R
authors.initials: NR
authors.lastname: Kimura
authors.affiliation: Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Rio de Janeiro, Brazil.
authors.forename: M A T
authors.initials: MAT
authors.lastname: Baptista
authors.affiliation: Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.|Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
authors.forename: M L
authors.initials: ML
authors.lastname: Barca
authors.affiliation: Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.|Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway.
authors.forename: K
authors.initials: K
authors.lastname: Engedal
authors.affiliation: VID Specialized University College, Oslo, Norway.
authors.forename: B
authors.initials: B
authors.lastname: Tveit
authors.affiliation: Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.|VID Specialized University College, Oslo, Norway.
authors.forename: A
authors.identifier: 0000-0002-7686-7263
authors.initials: A
authors.lastname: Johannessen
mesh_terms: D000328:Adult; D017668:Age of Onset; D000368:Aged; D000544:Alzheimer Disease / Q000451:nursing* / Q000523:psychology; D001938:Brazil; D017028:Caregivers / Q000523:psychology*; D003431:Cross-Cultural Comparison; D005260:Female; D066296:Grounded Theory; D006301:Health Services Needs and Demand; D006801:Humans; D008297:Male; D008875:Middle Aged; D020380:Needs Assessment; D009664:Norway; D036301:Qualitative Research; D055815:Young Adult
keywords: care support; carers; cross-cultural studies; early-onset dementia; young-onset Alzheimer's disease