title: Exploring the impact of living with dyslexia: The perspectives of children and their parents.
abstract: A small but growing body of literature indicates that children with dyslexia are at elevated risk of internalising and externalising mental health problems. However, little research addresses why this might be the case, particularly from the point of view of the children or their parents. This study therefore aimed to explore the lived experiences of children with dyslexia, and their parents.
  
  
  
  Drawing on a phenomenological approach, 13 children with dyslexia and 21 parents were interviewed. The semi-structured interviews were analysed thematically.
  
  
  
  Dyslexia was seen to impact at the individual, family and community level. Children's accounts of their experiences were ecologically situated at both the micro and mesosystem levels of Bronfenbrenner's ecological model, while parent's accounts extended to include the exosystem. Both also reflected on "difference", a theme related to cultural and attitudinal views at the level of the macrosystem.
  
  
  
  Presentation of the themes contrasts the experiences of children and parents, illustrating that the experience of dyslexia is indicative of broader challenges associated with societal values and attitudes that privilege perceived ability and shame difference. This study provides information that could be used to inform and educate families and teachers about the impact of living with dyslexia.
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Suze
authors.initials: S
authors.lastname: Leitão
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Peta
authors.initials: P
authors.lastname: Dzidic
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Mary
authors.initials: M
authors.lastname: Claessen
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Joanne
authors.initials: J
authors.lastname: Gordon
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Kate
authors.initials: K
authors.lastname: Howard
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.|b The Dyslexia-SPELD Foundation , Perth , WA , Australia.
authors.forename: Mandy
authors.initials: M
authors.lastname: Nayton
authors.affiliation: a School of Psychology and Speech Pathology , Curtin University , Perth , WA , Australia and.
authors.forename: Mark E
authors.initials: ME
authors.lastname: Boyes
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000294:Adolescent Behavior; D002648:Child; D002652:Child Behavior; D017281:Cost of Illness; D004410:Dyslexia / Q000175:diagnosis / Q000523:psychology*; D004644:Emotions; D005195:Family Relations; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D008603:Mental Health; D010290:Parents / Q000523:psychology*; D010465:Perception; D036301:Qualitative Research
keywords: Dyslexia; children; mental health; parents; qualitative research