title: Validation of the facial dysfunction domain of the Penn Acoustic Neuroma Quality-of-Life (PANQOL) Scale.
abstract: The objective of this study is to evaluate the strength of content validity within the facial dysfunction domain of the Penn Acoustic Neuroma Quality-of-Life (PANQOL) Scale and to compare how it correlates with a facial dysfunction-specific QOL instrument (Facial Clinimetric Evaluation, FaCE). The study design is online questionnaire survey. Members of the British Acoustic Neuroma Association received both PANQOL questionnaires and the FaCE scale. 158 respondents with self-identified facial paralysis or dysfunction had completed PANQOL and FaCE data sets for analysis. The mean composite PANQOL score was 53.5 (range 19.2-93.5), whilst the mean total FaCE score was 50.9 (range 10-95). The total scores of the PANQOL and FaCE correlated moderate (r = 0.48). Strong correlation (r = 0.63) was observed between the PANQOL's facial dysfunction domain and the FaCE total score. Of all the FaCE domains, social function was strongly correlated with the PANQOL facial dysfunction domain (r = 0.66), whilst there was very weak-to-moderate correlation (range 0.01-0.43) to the other FaCE domains. The current study has demonstrated a strong correlation between the facial dysfunction domains of PANQOL with a facial paralysis-specific QOL instrument.
authors.affiliation: The Skull Base Unit, Department of Otorhinolaryngology-Head and Neck Surgery, University Hospital Aintree, Liverpool, L9 7AL, UK.|Department of Otorhinolaryngology/Head and Neck Surgery, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
authors.forename: Wouter L
authors.initials: WL
authors.lastname: Lodder
authors.affiliation: The Skull Base Unit, Department of Otorhinolaryngology-Head and Neck Surgery, University Hospital Aintree, Liverpool, L9 7AL, UK.
authors.forename: Guleed H
authors.initials: GH
authors.lastname: Adan
authors.affiliation: Faculty of Medicine, University of Liverpool, Liverpool, UK.
authors.forename: Chung S
authors.initials: CS
authors.lastname: Chean
authors.affiliation: The Skull Base Unit, Department of Otorhinolaryngology-Head and Neck Surgery, University Hospital Aintree, Liverpool, L9 7AL, UK.
authors.forename: Tristram H
authors.initials: TH
authors.lastname: Lesser
authors.affiliation: The Skull Base Unit, Department of Otorhinolaryngology-Head and Neck Surgery, University Hospital Aintree, Liverpool, L9 7AL, UK. lcheel@doctors.org.uk.
authors.forename: Samuel C
authors.initials: SC
authors.lastname: Leong
mesh_terms: D000328:Adult; D005158:Facial Paralysis / Q000175:diagnosis / Q000209:etiology / Q000523:psychology; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D009464:Neuroma, Acoustic / Q000150:complications*; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D006113:United Kingdom; D014894:Weights and Measures
keywords: Acoustic Neuroma; Facial palsy; Quality of life; United Kingdom; Vestibular schwannoma