title: Optimizing medical trips to care for those with rare genetic diseases in remote settings: lessons learned from xeroderma pigmentosum.
authors.affiliation: Penn State College of Medicine, Hershey, PA, USA.
authors.forename: Allan
authors.initials: A
authors.lastname: Probert
authors.affiliation: Penn State College of Medicine, Hershey, PA, USA.
authors.forename: Celeste
authors.initials: C
authors.lastname: Bailey
authors.affiliation: Family and Community Medicine, Penn State Hershey Medical Center, Hershey, PA, USA.
authors.forename: Hadjh
authors.initials: H
authors.lastname: Ahrns
authors.affiliation: Dermatology and Family and Community Medicine, Penn State Hershey Medical Center, Hershey, PA, USA.
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Seiverling
mesh_terms: D003150:Community Health Workers / Q000193:education*; D003695:Delivery of Health Care / Q000458:organization & administration*; D006040:Goals; D006166:Guatemala; D006801:Humans; D008493:Medical Missions / Q000458:organization & administration* / Q000592:standards; D010348:Patient Care Team / Q000458:organization & administration; D010353:Patient Education as Topic; D058996:Quality Improvement; D035583:Rare Diseases / Q000628:therapy; D012424:Rural Population; D012878:Skin Neoplasms / Q000628:therapy*; D013473:Sunscreening Agents / Q000600:supply & distribution; D014983:Xeroderma Pigmentosum / Q000628:therapy*
chemical_list: D013473:Sunscreening Agents