title: Breaking bad news in spinal cord injury; a qualitative study assessing the perspective of spinal cord injury survivors in Turkey.
abstract: Prior abstract publication: 2ndMedical Rehabilitation Congress; Nov 4-7, 2010; Ankara, Turkey Objective: This study aims to investigate the process of breaking bad news from the perspective of spinal cord injury survivors.
  
  
  
  A cross sectional, qualitative study.
  
  
  
  Community.
  
  
  
  Fourteen spinal cord injury survivors.
  
  
  
  Subjects participated in a semi-structured interview about 'when', 'where' 'by whom' and 'how' they received and 'would' prefer to receive bad news.
  
  
  
  Answers to 'how' questions were coded according to SPIKES protocol (Setting, Perception, Invitation, Knowledge, Empathizing, Summary).
  
  
  
  Eight participants (57%) reported that they received bad news from a physician, mostly during rehabilitation. All would prefer to be informed by a physician and majority preferred to be gradually informed during rehabilitation. Half were not satisfied with the content of information. Only half felt that his/her physiatrist understood his/her emotional distress. Majority of participants who received bad news from physicians reported that the setting was private and their family members accompanied them.
  
  
  
  Most spinal cord injury survivors were unsatisfied with knowledge and emotional support provided by rehabilitation physicians. Participants would prefer to receive bad news by a senior physiatrist in a planned meeting during rehabilitation.
authors.affiliation: a Department of Physical Medicine and Rehabilitation , Koc University School of Medicine , Istanbul , Turkey.
authors.forename: Ozden
authors.initials: O
authors.lastname: Ozyemisci-Taskiran
authors.affiliation: b Department of Medical Education , Gazi University School of Medicine , Ankara , Turkey.
authors.forename: Ozlem
authors.initials: O
authors.lastname: Coskun
authors.affiliation: b Department of Medical Education , Gazi University School of Medicine , Ankara , Turkey.
authors.forename: Isil Irem
authors.initials: II
authors.lastname: Budakoglu
authors.affiliation: c Department of Physical Medicine and Rehabilitation , Gazi University School of Medicine , Ankara , Turkey.
authors.forename: Nesrin
authors.initials: N
authors.lastname: Demirsoy
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D000066530:Neurological Rehabilitation / Q000523:psychology*; D017060:Patient Satisfaction; D010817:Physician-Patient Relations; D013119:Spinal Cord Injuries / Q000523:psychology* / Q000534:rehabilitation; D014342:Truth Disclosure; D014421:Turkey
keywords: Communication; Paraplegia; Physician-patient relations; Prognosis; Rehabilitation; Spinal cord injuries