title: Priority service needs and receipt across the lifespan for individuals with autism spectrum disorder.
abstract: Individuals with Autism Spectrum Disorder (ASD) have a range of health, community, and social support needs across the lifespan that create age-specific challenges in navigating service sectors. In this study, we set out to identify the priority needs of individuals with ASD across the lifespan, and the factors that predict receiving priority services. Participants included 3,317 individuals with ASD from a Canada-wide online caregiver survey, stratified into five age groups (preschool, elementary school age, adolescence, emerging adulthood, adulthood). Priority receipt was calculated as a ratio of current services that corresponded to individualized priority need. Age-stratified Poisson regression analyses were used to identify the sociodemographic, clinical and systemic predictors of priority receipt. Results indicate that the distribution of priority need varied by age, except for social skills programming, which was a high across all groups. The number of high and moderate priority needs diversified with age. Overall, 30% of individuals had none of their priority needs met and priority receipt decreased with age. Systemic factors were most consistently related to priority receipt across the lifespan. Understanding patterns and correlates of priority needs and use that currently exist in different age groups can inform policies to improve service access. Autism Res 2017, 10: 1436-1447. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.
authors.affiliation: Department of Psychology, York University, Toronto, Canada.
authors.forename: Jonathan K Y
authors.identifier: http://orcid.org/0000-0002-3060-1232
authors.initials: JKY
authors.lastname: Lai
authors.affiliation: Department of Psychology, York University, Toronto, Canada.
authors.forename: Jonathan A
authors.identifier: http://orcid.org/0000-0002-5849-7334
authors.initials: JA
authors.lastname: Weiss
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D000067877:Autism Spectrum Disorder / Q000628:therapy*; D002170:Canada; D002648:Child; D002675:Child, Preschool; D005260:Female; D019538:Health Care Surveys / Q000706:statistics & numerical data*; D006297:Health Services Accessibility / Q000706:statistics & numerical data*; D006301:Health Services Needs and Demand / Q000706:statistics & numerical data*; D006801:Humans; D008297:Male; D008875:Middle Aged; D012959:Socioeconomic Factors; D055815:Young Adult
keywords: autism spectrum disorder; predictors; priority needs; service need; service receipt